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Tysabri Question   Message List  
Reply | Forward Message #4764 of 4787 |
My Tysabri Experience

Hi

My name is Aoife and I was diagnosed 8 months ago at 15. I've been on
Tysabri for 7 months and it has been really great. I have very active
MS - I had 3 relapses in 4 months before diagnosis - but I haven't had
any relapses and only mild symptoms since I was on the Tysabri,
although I have had some bladder symptoms recently. I've also had some
vertigo but I think this is because I was doing yoga and stupidly did a
handstand :)

I had some reservations about Tysabri because of PML, which is a
possible side-effect of Tysabri. It's a dangerous disease which can be
life-threatening : however, the chances of getting it are extremely
slim and if you start Tysabri treatment you will be fully informed
about PML and its symptoms - if they catch it early it's very treatable.

I hope this helps. My experience of Tysabri has been extremely positive.

Aoife




Sat Nov 29, 2008 6:53 pm

aoife992
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Message #4764 of 4787 |
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Hi, I have had MS for a 20 years, but it has not shown itself to be so bad until now. I was diagnosed in 1997. I was not told it was MS in 1988 when I had...
sciabba5
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Apr 25, 2008
4:33 pm

Can't be a whole lot of help because I just had my first Tysabri infusion April 16th. However, over the years, I have had remissions. I'm now 64. I had help...
sunshiner61
knitkin
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Apr 30, 2008
1:52 am

Hi My name is Aoife and I was diagnosed 8 months ago at 15. I've been on Tysabri for 7 months and it has been really great. I have very active MS - I had 3...
aoife992
Offline Send Email
Mar 12, 2009
12:40 pm
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