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Reply | Forward Message #4755 of 4787 |
reply to Freebie

Freebie have you actually been neurologically diagnosed with MS. The
ABC-T drugs, one of which is Avonex, are the treatments of choice for MS but the
narcotics you have been prescribed seem a bit unusual. Spinal fluid tests,
visual acuity tests, MRI's while not always positive can indicate the disease.
Methyl prednisone is also a standard treatment but you did not mention anything
but pain meds and Avonex. Without more information it is difficult to know
whether you have repetive/remissive or chronic progressive MS but if you have
had an undiagnosed problem for 20 years it can't be chronic progressive. I don't
know where you live but I suggest seeking out a neurologist who specializes in
MS and get a more definitive diagnosis through more MS specific testing. MRI's
highlight brain and spinal lesions although not all MS sufferers have abnormal
numbers of lesions most do. Fibromyalgia can mimic MS symptoms to a fair degree.
I strongly recommend that you do further research with an MS specific
Neurologist. Chronic pain is not a common symptom of MS in my experience. I have
had R/R MS for 20+ years and have fortunately J had the "standard" exacerbations
and resulting reduction in nerve transmission associated with the loss of
myelin.

Best wishes and good luck
Bob



Sat Oct 4, 2008 2:50 pm

max1776
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Message #4755 of 4787 |
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I have had M.S. for 25 years. For 20 of those years no one was aware of my disease. I appeared "normal" to the outside world. For the last 5 years I have been...
freebie1952
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Oct 4, 2008
12:11 am

Freebie have you actually been neurologically diagnosed with MS. The ABC-T drugs, one of which is Avonex, are the treatments of choice for MS but the narcotics...
max1776
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Oct 6, 2008
10:48 pm

I have been with a neurologist in the Stanford University area/hospital, who does specialize in MS, for all this time. I was diagnosed with...
freebie1952
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Oct 8, 2008
10:18 pm

Hey Freebie, Sorry to hear about your downward spiral! I hate to suggest another medication on top of all you're taking but what about getting on a stronger...
kfryk1
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Oct 6, 2008
10:52 pm
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