Hi All,
I have not been diagnosed yet with MS. I suppose that it may seem premature to
join a group then, but I have and have had for so many years, many of the
symptoms of MS. I really never followed up with doctor appts. for many of the
things that would happen to me. But for maybe even fifteen years, I have had on
again/ off again very noticeable to me, weakness in my left arm and then maybe
about five occasions where I lost all strength on the whole left side of my
body. Of those five occasions, three times I did go to the doctor, for ruling
out stroke or heart issues. And they did.
Also in the past year and a half I have fallen three times. Spraining my left
ankle twice.
One time too, I got up to walk and could not navigate. I could not help but
veer and that against the wall. I was quite scared by that, and went to the
doctor later that week. They did a CT scan but it was normal. The thing is
that over the past months, I have had such an unrelenting fatigue and pains,
times when it feels like I have elastic bands gripping my chest and also waking
up in the night with what feels like fireants on my feet and traveling up my
legs, kinda like electricity. I have become clumsier too.
For years too I have trouble yawning, meaning I yawn like crazy. I can't help
it. I try chewing gum to keep from yawning sometimes.
Oh and back about three and a half years ago, I woke up one day with my eyes
feeling sore and the pain increased and I actually lost my vision for two days.
I went to the Urgent Care and the next day follow-up with an ophthalmologist and
he said I had corneal dystrophy. Since then, I have had times when my eyes just
are so sore and the sockets too, and also the muscles pull at times, making like
a rippling feeling.
I did go to the doctor this January and some lab work came back with a somewhat
elevated liver enzyme. But the rest of the tests done, satisfied my doctor that
I did not have hepatitises or cancer or whatever. Then she said that maybe I
had mono, and I said, "Oh, yeah...I feel kinda like that, cos I had such a very
severe case of that as a teenager." But then she ruled out mono cos she said
you only get it once.
But cos of the pain, she gave my cymbalta, but it has not helped at all, and
certainly has not helped with the fatigue.
I have tried to figure out what all I should do to be a good partner in my own
health care, so I went online, and many of my symptoms seem to be those of MS
when I enter them in search engines. I am a little nervous though. Cos I feel
that some of the stuff seems so elusive and non-descript. And could just be a
culmination of aging or something. I don't know, I might not have even written
all the stuff here, but go back to my doctor on next Wednesday, the 8th. I
wonder if y'all think I have a valid profile to investigate the diagnosis of MS.
And if so, what all should I say and what all should I expect?
Thank you so very much for all your help as I believe it is good to talk to
others about these things.
Kind Regards,
Bonnie Kim