Hi,
I was diagnosed back in '98, but I'm pretty sure had MS for much longer than
that. My own MS is more relapsing-remitting than any other type (although to be
honest I'm so used to some of the symptoms that I donšt count them anymore), so
this may or may not be helpful. I prefer when the people in my life take my MS
as seriously as I take it. But my mind is sound and my judgment is fine. Is this
something that you can have a conversation with your mom about? Use your own
disability as a guide. I bet there are things youšre willing to let your family
know about life as a quad, and there are things that you want to handle on your
own. And there are probably things that you should take more seriously that you
just don't.
My own mom has advanced heart disease and also macular degeneration. She used to
harp on me about my decision to not try anymore of the CRAB meds (I tried three
out of four), unable to understand how an intelligent, educated person would
choose against them. Until her own diseases began to progress and she found
there were some treatments that she didnšt want to do, or wasnšt ready to do.
That was when we were able to actually have a conversation about what we were
each going through, and only then. Go figure.
Anyway, I hope this helps.
Josie