I am Melissa. The group description said it is for anyone open to
with an interest in Multiple Sclerosis. I have interest in this
matter. I was certain (that is the way I felt) that I do not have
it. I have been questioned about whether I have it or not and if I
have been tested by 2 - 3 doctors (ER), due to my symptoms and my
MRI's they have on file. I may have some long posts showing my MRI
results. I know this is not a site to diagnose or be used as so for
such purpose. I just want to share with everyone what I am going
through and see what you think.
I am 35 years of age and it all started over 10 years ago with just
an intense headache. I was dizzy, off balance, slurred speech, and the head
pain was so intense it made me sick! I went to the ER 3 days in a row in hopes
to get some help, due to the intensity. I was in Indiana at the time. The
first day they just said migrane and sent me home, the second they did tests and
nothing. the 3rd they did another CT & then a spinal tap. They compared the 2
CT's and determined it was a brain tumor. Okay, I will not get into the whole
story - it would be a small book. Anyway, over the years I have had more and
more symptoms. I have some symptoms this day that are there and then not and
there again. Some that are there always and just okay and then horrible.
I am in pain constantly. I was diagnosed with arnold chiari type 1
and had surgery for it...the pain still here and the symptoms too.
The doctors have chose to ignore and NOT LOOK at my MRI's over the years until I
had to show one of them the MRI's the second time. He was stunned and said he
can't wait to see my next one (when all they do is the same exact one over and
over again). They show lesions, the tumor, the chiari, etc. I am wondering now
with my symptoms if I was wrong about the possibility of having MS.
My list of symptoms:
Headaches - everyday (somedays moderate, some severe)
Back of head pain
Neck pain
shoulder pain
back pain
leg pain
arm/hand pain
numbness in the face, arms, hands, feet, legs.
tingling in the face, arms, hands, feet, legs.
burning in my foot and arms & hands (was just one arm now it is both)
dizziness
nausea
vomitting (was constant, now just occasionally)
Have passed out a few times
Trouble walking - it is at times, like it comes on pretty strong then
just kinda lets up a bit.
lightheadedness
anxiety - with chest pain, etc..
(then had some depression for a short time - due to being sick of
being sick and not getting anywhere with what is wrong with me)
slurring of my speech
sometimes stuttering of my speech
lack of concentration
poor memory at times
some vision problems
balance issues (kind of goes along with my walking issue)
problems sleeping
fatigue
I am so sick of being sick. I just want to feel better. I will share with you
my MRI results. Like I said before, they keep doing
the same over and over recently and not of the correct regions and
will not compare to my other ones.
Thanks for letting me share.
Melissa