It has been awhile ...since I have been here!
This has been a really rough couple of months. Have been trying to be really
tough. Here are details.
On Dec. 18, a new episode, technically called a, "relapse", of MS, hit me. My
vision, balance and changes of tasting and a few other new symptoms seem to have
blossomed. Went through a Solumedrol (cortisone), "burst", for 5 days. then
prednizone taper. It was
done at home.
The day after Christmas I started having terrible pains and the muscles were
ceising down the backs of my legs. Couldn't get ahold of the neuro until
Thursday, but found out that I needed another medication to help with this new,
to me, symptom and that it is now possibly a constant problem to deal with,
unless neuro physical therapy will help? My vision and balance were hit hard
too. Seem to be in a, "brain fog", most of the time. Anyway, it has not been
pleasant but I seem to be getting some better. Everything combined seem to have
done a job to my personality, as well. Hopefully this will clear as I get
further away from the, "burst" of Solumedrol.
Had been taking Betaseron for 3 years.
New MRI showed new lesion activity.
In January my neurologist and I decided to change to Copaxone.
Well, I did fine the first 2 days of it. the third day, I had a horrible rash
that night. We had been told of a couple of possible bad reactions but not about
the rash possibility. Didn't know what the horrible rash was from the first
night, so took another shot the next day and that night the rash was even worse.
Called my Dr and Copaxone to report the rash and read the rest of the possible
reactions in the book that I had gotten with the medication.
The rash was from the Copaxone.
Went through a withdrawal from the therapies.
Was next referred to an MS specialist, across town (45 min.) and saw her for the
first time today. She is in charge of dispensing Tysabri infusions. The MRI
showed 20 new lesions and one is large and around the brain stem.
It has been very upsetting but I don't seem as depressed as when I was doing the
Betaseron shots.
So, I am interested in others who have gotten the Tysabri infusions.