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WTG Ashley!   Message List  
Reply | Forward Message #4581 of 4788 |
Duration of sysmptoms

Hi Nimaoy,

Sorry to hear about your visual problems. I have all kinds of them for over 26
years. One of the longest periods of time was several months with nystagmus. I
think I may have had a longer period of time when my eyes were not in "sync"
with each other and they put prisms in my glasses, which corrected it. Then, it
went away. I have had periods, where I couldn't read and listened to books on
tape.
Thankfully, my vision is now normal except for being near sighted and
some slight problem telling certain subtle differences in color. When, it is
real hot, I avoid going outdoors because that can set off
problems. When I do have minor problems, I try to rest and not do too
much reading or computer work. Sometimes, they have treated me with IV Solu -
Medrol and sometimes not. I did have steroids eye drops once, which made me feel
self destructive.

I just read that the longest period of time you can have an MS symptom for with
no possibility of recover is 2 years, but I've heard of longer than that. I
believe Eric Small, the MS yoga guru, was in a w/c for about 15 years. He's in
his 70s and I saw him stand on his head a few years ago.

My own Mother, who has MS, was unable to walk, when she was first
diagnosed. Even though the docs said she would never walk. She walked
after 6 months, has used a cane for over 20 years and needs a scooter
sometimes for long treks in recent years. She's 83.

Since my legs have started acting up, my eyes have been fairly stable.
I, too, would like to know which drug is best for possibly stopping
the progression of visual problems specifically.

I see a wonderful neuro opthamologist with a special expertise in MS.
MS is just such a mystery.

Good luck, Maggie







Sun Aug 20, 2006 4:43 am

mags815
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Message #4581 of 4788 |
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Hi Ashley, Good for you for doing this project! It's always good for all of us with MS when others know more about it. In my case, I have Relapsing-Remitting...
kfryk1@...
kfryk1
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Aug 10, 2006
12:12 am

It is about 6 months for me now and my vision has still not recovered. I'm wondering if I should change drugs. I want to know how Betaferon/Betaseron works for...
nimaoy
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Aug 19, 2006
12:07 pm

Hi Nimaoy, Sorry to hear about your visual problems. I have all kinds of them for over 26 years. One of the longest periods of time was several months with...
mags815
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Aug 22, 2006
8:23 pm

Hello everyone, I am new to the group. I just found you while doing a search about MS like symptoms. I just wondered if anyone was told they had MS just from...
rsews1
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Aug 22, 2006
8:24 pm

Hi, I am glory, I am new to the group. Was interested in finding a group and came upon this group today. Was glad to hear that you pray for each other, as I...
tcglory
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Aug 23, 2006
11:30 pm

Hi : 3 years ago I was in the same situation as Rebecca. I had all types of MS Symptoms, walking problems, lost use of one hand, numbness on complete one side...
maxinehumenny2003
maxinehumenn...
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Aug 25, 2006
11:01 am

Hi Love your name Glory! t sounds like you've been through the run-a-round. I think that happens with a lot of us. Really no definitive test, so they keep you...
Sherryannz
shezebra
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Aug 25, 2006
11:05 am

I was told the same thing as Glory, go see a psychiatrist. I was told I had some deep problem way back in my brain that I didn't even know was there and only a...
maxinehumenny2003
maxinehumenn...
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Aug 28, 2006
10:24 pm
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