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Reply | Forward Message #4478 of 4788 |
Waiting for a Diagnosis...

Hi,
I am new to the group and I am hoping for some support and
information. First a little about myself...ok, a lot. I am 21
years old and have been having symptoms of something that sounds
like MS for just about a year now. Just about all of my symptoms
are on my left side. Left sided weakness, tingling in my left hand
and from my knee down, tremors in both hands,fatigue, severe pain
(localized mostly in my left hip), tight muscles in my left knee (spasticity?)
I've found this to be very annoying but not really painful, unbalanced, and
recently pain in my left eye. Everything started very suddenly and I obviously
went to the doc. and I got tested for many things, all of which came back
negative. Then I got a brain MRI, which came back clean. The doc. was baffled,
gave me drugs for the pain and referred me to a Neurologist. I went to the
appointment and he told me to go to my home town (because I was down at college
and finals were almost over) and let them figure it out because it was not his
problem (he was a very big jerk!). Well, by this time things were better
(sypmtoms began as severe pain on my entire left side, tingling in my left
extremities, and severe left sided weakness.)

So when things got better we all thought ok, weird thing happened
but it's gone now! Well, 2 months later the same things happened
again but with an intention tremor in my hands and I couldn't move
my last 3 toes in my left foot. So I went to my family doc at home
and he was about to tell me it was stress (like everyone else) until
he saw I couldn't move my toes. He told me something was clearly
wrong! No kidding! So he referred me to a neuro. Unfortunately,
by the time the neuro saw me my symptoms were almost gone. She told
me the MRI I had done was terrible and re-did it but included my
spine too. She flat out told me she thought it was MS. We got the
MRI back and it was clean so then she told me all we could really do
was wait and see (we were hoping it was a post-viral thing because I
had been sick about a month before everything started). She offered
to do a spinal tap but said she didn't think we should at that time.
She gave me gabapentin and told me to start taking that if my
symptoms came back. I had some pretty bad eye pain and a headache
about a week before my other sypmtoms started (I don't know if this
has anything to do with the rest of this). Then everything started
again but now I am very unbalanced too (but I don't feel most of the
symptoms are as severe as before, but definitely enough to put a
hold on my life). I started the gabapentin but it was NOT
controlling my pain so I called my neuro and she doubled the dose.
I feel like my pain is controlled but what about everything else?!?
By the time I can actually get in to see my neuro I probably won't
have symptoms again! I don't know what to do and I feel like I
can't live my life like this. I am a nursing student and just want
to know what is going on. Is this MS? Does it sound like MS? I
would really appreciate anyone's opinion on what I should do and
what I should ask my neurologist when I see her. Sorry this is so
long but I think it'll help if people kind of know my story. Any
input would be greatly appreciated!

Thanks!
~Jen









Wed Mar 15, 2006 6:22 am

jmort21185
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Message #4478 of 4788 |
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Hello All, I was diagnosed with MS about 2 months ago. First I was diagnosed with hypothyroidism, I have Hashimotos disease. Then I was diagnosed with ...
new2quilting2003
new2quilting...
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Mar 27, 2006
10:07 pm

Hi, I am new to the group and I am hoping for some support and information. First a little about myself...ok, a lot. I am 21 years old and have been having...
Jmort211
jmort21185
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Mar 27, 2006
10:08 pm

I know that this info has been discussed before, but fatigue is one MS problem that I don't have and I haven't kept track of what was posted. However, a good...
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Mar 27, 2006
10:09 pm

My mom was diagnosed with MS about 9 years ago. She is still doing good (walking with a cane) but has her "bad" days. I am only able to talk to her each week...
doodled997
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Mar 28, 2006
1:31 pm

For all of you, I am telling this to all of you to give you all hope that there Is "love after MS"! I was diagnosed with ms "October 27, 1997". I was in the...
beankittyky
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Mar 28, 2006
1:31 pm

My name is Valary, I was dx'ed in '03 with r/r ms, although I've had symptoms since '99, I had a previous nuerologic disorder that kind've hid it, & at the...
scorpina76_2
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Mar 28, 2006
1:33 pm

I was diagnosed at age 39 - and am now 57. Sounds like you have familiar early symptoms, Lisa - but there are a variety of tests that will better confirm....
lonim
lonimarkert
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Mar 30, 2006
1:45 am

Hello, Thank you for letting me join your group. My name is Linda Angela Hoecker. I do not have MS but I am here to learn and understand. I'm a second-degree...
vette77lover
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Mar 30, 2006
1:46 am

Hello everybody Sorry I haven't posted since joining it's just been some busy months. I have had R&R MS since 1989. I am 45 yr old widower and I enjoy cooking...
nyboy1960
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Mar 30, 2006
1:48 am

Ginseng sometimes helps fatigue. It helped me almost as much as caffiene for awhile. I still take ginseng even though it does not seem to help my fatigue...
dhkoppel
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Mar 30, 2006
7:29 pm

Every single symptom Jen has, I have. I still don't have an official diagnosis because all my tests are "clean" too. My Dr finally gave me something that's...
taliswoman
taliswoman7
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Mar 30, 2006
7:33 pm

Hi, I have been diagnosed with multiple scloresis in 1986. I was pretty young and scared. it affected my eyes first and eventually I lost the vision on one of...
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susan_tahmoresi
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Mar 30, 2006
7:36 pm

What suggestion do you have for losing weight? I should weigh 115, but weight abit over 143. I am doing 'gentle yoga' two times a week, and I don't think you...
dislikeyohoo
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Apr 1, 2006
6:11 pm

Hello group, I have been lurking around for a while and reading some of your postings. Ever since my mom was diagnosed with MS 9 years ago, I have been afraid...
doodled997
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Apr 1, 2006
6:11 pm

Wow, that's a great love story from Happy in Kentucky Derby Land. I also met my man on the net, about 7 years after being diagnosed (and about 4-5 years ago)....
bitokaren
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Apr 1, 2006
6:11 pm

Hi everyone, is there a place that you go to purchase things that you need, like special chairs, home improvement items, or anything that would help in your...
vette77lover
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Apr 4, 2006
1:24 pm

I had a weight issue before I started taking this medicine (El Dopa) which luckily has something in it that made me lose weight. Have you asked your doctor for...
taliswoman7
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Apr 4, 2006
1:26 pm

I don't think weight has anything to do with it. My left leg doesn't work that well, and it doesn't matter that I wasn't overweight when it started, and it...
dla123
dislikeyohoo
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Apr 5, 2006
7:26 pm

Just wanted to say Hi to everyone. Just joined this morning. I need a place that has a good view and attitude toward life with this MonSter. Actually, what I...
shezebra
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Apr 7, 2006
9:31 pm

I don't think weight has anything to do with it all, was just providing an example of ignorant things people say. El Dopa is the nickname of a Parkinson's...
taliswoman7
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Apr 9, 2006
9:17 pm

Hi all, I have hashimotos thyroid disease along with the MS. Since I was just recently diagnosed with the MS I haven't started treatment yet. I am trying to...
new2quilting
new2quilting...
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Apr 9, 2006
9:21 pm

Sherry is right! Sometimes we shouldn't take all of our symptoms too seriously, although we need to be cognizant that we can share with our Doctors that...
lonim
lonimarkert
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Apr 11, 2006
7:16 pm

Has anyone else had this awful pulling down feeling that can last for hours. Even my tongue feels like it is being pulled down. Every part of my body, while...
dotjiris
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Apr 14, 2006
6:47 pm

I am concerned that your doctor says you shouldn't be on MS meds because you aren't "bad enough." The MS Society has recommended that people go on one of the...
kfryk1
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Apr 18, 2006
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