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My Daughter - update   Message List  
Reply | Forward Message #4473 of 4788 |
STILL confused

My MRI was negative, however, neuro said has some patients that are
clear still have MS so I have to go have a lumbar puncture and a vep test for my
eyes and then more MRI's.

Really scared, definitely afraid of needles and now this and then neuro told me
that treatments are needles as well.

Am I going in the right direction? One lady I met said don't let them send you
to a clinic and watch what they do, but if I never knew anyone who has had this
how do I know what to “watch” for?








Fri Mar 3, 2006 11:25 pm

shelbyroo22000
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Message #4473 of 4788 |
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I was diagnosed with MS four years ago. In order to maintain a somewhat normal life I am on a variety of medications which include Copaxone. I used to be a...
reginas
gina120402
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Mar 8, 2006
2:24 pm

My MRI was negative, however, neuro said has some patients that are clear still have MS so I have to go have a lumbar puncture and a vep test for my eyes and...
jgym66
shelbyroo22000
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Mar 8, 2006
2:29 pm

If you want to know what's wrong with you, be prepared to do anything your neurologist needs to do to help him diagnose your condition. Isn't it much better to...
radbower
raebower
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Mar 24, 2006
6:01 pm

It sounds to me like your neuro wants to pin down the diagnosis. It used to be that you would be put in a "possible" catagory and have to just wait and see....
kfryk1
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Mar 24, 2006
6:04 pm

Hi everyone: I'm Lisa and 39 yrs old. Have recently been diagnosed with MS. My brain MRI shows all kinds of lesions. MY back, neck MRI is clear. I am lucky...
armandominks
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Mar 24, 2006
6:05 pm

Hello All, I was diagnosed with MS about 2 months ago. First I was diagnosed with hypothyroidism, I have Hashimotos disease. Then I was diagnosed with ...
new2quilting2003
new2quilting...
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Mar 27, 2006
10:07 pm

Hi, I am new to the group and I am hoping for some support and information. First a little about myself...ok, a lot. I am 21 years old and have been having...
Jmort211
jmort21185
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Mar 27, 2006
10:08 pm

I know that this info has been discussed before, but fatigue is one MS problem that I don't have and I haven't kept track of what was posted. However, a good...
gaild1975
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Mar 27, 2006
10:09 pm

My mom was diagnosed with MS about 9 years ago. She is still doing good (walking with a cane) but has her "bad" days. I am only able to talk to her each week...
doodled997
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Mar 28, 2006
1:31 pm

For all of you, I am telling this to all of you to give you all hope that there Is "love after MS"! I was diagnosed with ms "October 27, 1997". I was in the...
beankittyky
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Mar 28, 2006
1:31 pm

My name is Valary, I was dx'ed in '03 with r/r ms, although I've had symptoms since '99, I had a previous nuerologic disorder that kind've hid it, & at the...
scorpina76_2
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Mar 28, 2006
1:33 pm

I was diagnosed at age 39 - and am now 57. Sounds like you have familiar early symptoms, Lisa - but there are a variety of tests that will better confirm....
lonim
lonimarkert
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Mar 30, 2006
1:45 am

Hello, Thank you for letting me join your group. My name is Linda Angela Hoecker. I do not have MS but I am here to learn and understand. I'm a second-degree...
vette77lover
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Mar 30, 2006
1:46 am

Hello everybody Sorry I haven't posted since joining it's just been some busy months. I have had R&R MS since 1989. I am 45 yr old widower and I enjoy cooking...
nyboy1960
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Mar 30, 2006
1:48 am

Ginseng sometimes helps fatigue. It helped me almost as much as caffiene for awhile. I still take ginseng even though it does not seem to help my fatigue...
dhkoppel
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Mar 30, 2006
7:29 pm

Every single symptom Jen has, I have. I still don't have an official diagnosis because all my tests are "clean" too. My Dr finally gave me something that's...
taliswoman
taliswoman7
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Mar 30, 2006
7:33 pm

Hi, I have been diagnosed with multiple scloresis in 1986. I was pretty young and scared. it affected my eyes first and eventually I lost the vision on one of...
tahmoresi
susan_tahmoresi
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Mar 30, 2006
7:36 pm

What suggestion do you have for losing weight? I should weigh 115, but weight abit over 143. I am doing 'gentle yoga' two times a week, and I don't think you...
dislikeyohoo
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Apr 1, 2006
6:11 pm

Hello group, I have been lurking around for a while and reading some of your postings. Ever since my mom was diagnosed with MS 9 years ago, I have been afraid...
doodled997
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Apr 1, 2006
6:11 pm

Wow, that's a great love story from Happy in Kentucky Derby Land. I also met my man on the net, about 7 years after being diagnosed (and about 4-5 years ago)....
bitokaren
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Apr 1, 2006
6:11 pm

Hi everyone, is there a place that you go to purchase things that you need, like special chairs, home improvement items, or anything that would help in your...
vette77lover
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Apr 4, 2006
1:24 pm

I had a weight issue before I started taking this medicine (El Dopa) which luckily has something in it that made me lose weight. Have you asked your doctor for...
taliswoman7
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Apr 4, 2006
1:26 pm

I don't think weight has anything to do with it. My left leg doesn't work that well, and it doesn't matter that I wasn't overweight when it started, and it...
dla123
dislikeyohoo
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Apr 5, 2006
7:26 pm

Just wanted to say Hi to everyone. Just joined this morning. I need a place that has a good view and attitude toward life with this MonSter. Actually, what I...
shezebra
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Apr 7, 2006
9:31 pm

I don't think weight has anything to do with it all, was just providing an example of ignorant things people say. El Dopa is the nickname of a Parkinson's...
taliswoman7
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Apr 9, 2006
9:17 pm

Hi all, I have hashimotos thyroid disease along with the MS. Since I was just recently diagnosed with the MS I haven't started treatment yet. I am trying to...
new2quilting
new2quilting...
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Apr 9, 2006
9:21 pm

Sherry is right! Sometimes we shouldn't take all of our symptoms too seriously, although we need to be cognizant that we can share with our Doctors that...
lonim
lonimarkert
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Apr 11, 2006
7:16 pm

Has anyone else had this awful pulling down feeling that can last for hours. Even my tongue feels like it is being pulled down. Every part of my body, while...
dotjiris
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Apr 14, 2006
6:47 pm

I am concerned that your doctor says you shouldn't be on MS meds because you aren't "bad enough." The MS Society has recommended that people go on one of the...
kfryk1
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Apr 18, 2006
5:12 pm
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