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Reply | Forward Message #4286 of 4788 |
No, your not crazy

I have MS + TN + ibs/c + migraines + severe sleep apnea. It has taken me years
to figure it all out. I had to go to a lot of doctors and have lots of test and
lots of meds and lots of money to pay for it all. Doctors look at you like - you
must BE crazy or a hypochondriac. But, over time I have learned that doctors are
scared to tell you anything concrete, about what is wrong with you, without the
help of many test and many more OTHER doctor to back them up, and even more
doctors to back up the back up doctors. I don't really know if this is fear of
law suites or just one hand greasing the next hand. "You know what I mean". I
may sound a bit cynical, but it’s just the way it is. Doctors are a business
these days? Not caring old county doctors, like the old days. And you can't
fight there system. You just need to know what there system is and put up with
it until they finally get all they can from your ins com, and you. Oh, wait a
minute- maybe I am a little cynical-- ha-ha! But any way --- YOU ARE NOT CRAZY.
If you would read back in this site, you will get some insight to what you are
feeling, because all of us have already been there.

I posted a note about my TN, a couple of weeks ago. If you would
go back and read that one, it might help you figure some things out.
And please go back and read as many or all of the other post that
other people have put up. It was a great help to me, to know that I’m not
alone. Not that I would wish this on another soul.

Hang in there
peggy







Thu Jul 14, 2005 11:53 pm

graphictraveler
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Message #4286 of 4788 |
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I really do not know how I got on this e-mail but I am glad I did. Why are you retired? Is it because of MS? I am worried of course about my daughter's...
laniness2
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Jul 14, 2005
1:19 pm

I have MS + TN + ibs/c + migraines + severe sleep apnea. It has taken me years to figure it all out. I had to go to a lot of doctors and have lots of test and...
graphictraveler
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Jul 15, 2005
11:49 am

I know somebody that has MS (I have it too) and she has chemo for it. Has anybody heard of this? My DH thinks that's a bad Idea, I tend to agree, I don't want...
dla123
dislikeyohoo
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Jul 15, 2005
8:30 pm

Thanks for your time and the encouragement. Sometimes its hard to explain why I'm having a bad day when I'm not able to share what the real problem is so I...
dmoraga93030
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Jul 15, 2005
8:30 pm

Hi ~ I've never heard of this! It seems a bit radical ~ but different strokes for different folks. Loni...
lonim
lonimarkert
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Jul 16, 2005
3:06 pm

Mitoxantrone and Cyclophosphamide are the 2 "Chemo" drugs that I have heard about used in treating MS. I believe they are used in conjuction with the ABC drugs...
about_ms
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Jul 16, 2005
3:31 pm

My Dr put me on a course of a chemo drug called novatrone. It worked well for me -- I had no flare-ups in the 2 years I was on it. It was a quarterly...
scoutmomskf
scoutmomskf2
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Jul 18, 2005
12:08 pm

You are not alone. Take comfort in knowing many of us are equally frustrated. Hope today will be a good one and tomorrow even better. Try to remember always...
lonim
lonimarkert
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Jul 18, 2005
12:08 pm

Hi there. I suspect my attitude is different towards MS than it is from most other people with MS I've met. I've made a conscious effort to mix with and work...
radbower
about_ms
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Jul 21, 2005
11:38 am

Glad to hear someone is trying to get things down around here. Ruth from Bailey, MI....
zoee15
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Jul 22, 2005
12:00 am

My name is Angela and recently my doctor told me I probably has MS, but after an MRI has questions and is sending me to a neurologist. The problem is that I...
angelamendoza5
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Jul 22, 2005
4:00 pm

That's the USA spirit ! My husband used to say, "When you get knocked down in the ring, just take a deep breath and come up swinging"! He was a boxer in his...
elladee2000
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Jul 22, 2005
4:01 pm

I have almost the same I have numbness to the right side of the face, pain in the joints, nasuea and my neurologist said its possible MS after the spinal tap...
dmoraga93030
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Jul 23, 2005
3:36 am

Hi MS is a bummer diagnosis, and Angela's symptoms do sound like that's what she is facing. Definitely need to wait until a definitive diagnosis is given...
radbower
raebower
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Jul 23, 2005
3:08 pm

Hi , I am new to this MS thing. I have been going thru test, different meds, and so many doctors. About 2 years ago is when I had my first MRI and that is when...
sacstmom
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Jul 28, 2005
4:17 am

Dizziness can certainly come from MS. I have a lesion near the vestubular nerve which controls balance and when it flares it get terrible vertigo but it can...
kfryk1
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Jul 28, 2005
10:24 pm

I'm trying to decide whether to get Novantrone, so here's the story as I know it: Novantrone (mitoxantrone) is currently the only drug approved by the FDA for...
howard
howardfrant
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Jul 28, 2005
10:52 pm

Thank you for your reply, I know I have lesions but My neuroligist hasn't told me exactly where they are close to. I see him in a couple weeks I will have to...
sacstmom
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Jul 28, 2005
10:54 pm

There's a simple 'brain map' at: http://www.bbc.co.uk/science/humanbody/body/interactives/organs/brainmap/ I've compared it with the films of my MRI scans. The...
jayne
jaynea2001
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Jul 29, 2005
4:31 pm

I'm on the once-a-week Avonex, also just started Modafinil. Anyone think I should change? Diane in WV...
dla123
dislikeyohoo
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Jul 30, 2005
8:45 pm

I believe that Betaseron is approved for Secondary Progressive MS also! Vince...
instman50
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Jul 30, 2005
8:45 pm

I would like to know if anyone has tried (or at least heard about) macrobiotics and it's effect on Multiple Sclerosis. Thank you, George...
groubani
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Aug 11, 2005
9:19 pm

SOURCE: Health Day News Key differences in lesion types between multiple sclerosis (MS) patients can determine whether a therapy called plasma exchange will ...
about_ms moderator
about_ms
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Aug 12, 2005
5:18 am

More than 700 cyclists are expected to participate in the Rona MS bike tours on Aug. 20 and Aug. 21. The participants of the event will ride from Brampton to...
about_ms
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Aug 12, 2005
6:45 pm

Source: Oregon Health & Science University Oregon Health & Science University researchers have identified some of the key factors that prevent the repair of...
about_ms
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Aug 12, 2005
6:46 pm

Nearly 2 000 people who took the now-suspended multiple sclerosis drug Tysabri in clinical trials have shown no signs of developing the deadly illness that led...
about_ms moderator
about_ms
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Aug 13, 2005
8:33 pm
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