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Reply | Forward Message #4283 of 4788 |
I'm not crazy!

The pain I have had has increased, I have numbness to the face now on both
sides, pain to the rib cage, spine, feet, legs and hands. The top of my head if
a hair fall it hurts. I don't know which way to go. I have had a spinal and was
told possible MS and another thinks TN and have had several blood tests. Help
has anyone felt this?







Wed Jul 13, 2005 3:35 am

dmoraga93030
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Message #4283 of 4788 |
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I am a retired nurse and psychotherapist with MS....
kfryk1
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Jul 13, 2005
2:43 am

The pain I have had has increased, I have numbness to the face now on both sides, pain to the rib cage, spine, feet, legs and hands. The top of my head if a...
dmoraga93030
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Jul 14, 2005
1:13 pm

I'm a therapist who is in semi-retirement due to my M.S. and my life partner is a rehabilitation nurse. It would seem that we have a few things in common. ...
mb6781
bsakellarion
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Jul 14, 2005
1:15 pm

I really do not know how I got on this e-mail but I am glad I did. Why are you retired? Is it because of MS? I am worried of course about my daughter's...
laniness2
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Jul 14, 2005
1:19 pm

I have MS + TN + ibs/c + migraines + severe sleep apnea. It has taken me years to figure it all out. I had to go to a lot of doctors and have lots of test and...
graphictraveler
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Jul 15, 2005
11:49 am

I know somebody that has MS (I have it too) and she has chemo for it. Has anybody heard of this? My DH thinks that's a bad Idea, I tend to agree, I don't want...
dla123
dislikeyohoo
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Jul 15, 2005
8:30 pm

Thanks for your time and the encouragement. Sometimes its hard to explain why I'm having a bad day when I'm not able to share what the real problem is so I...
dmoraga93030
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Jul 15, 2005
8:30 pm

Hi ~ I've never heard of this! It seems a bit radical ~ but different strokes for different folks. Loni...
lonim
lonimarkert
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Jul 16, 2005
3:06 pm

Mitoxantrone and Cyclophosphamide are the 2 "Chemo" drugs that I have heard about used in treating MS. I believe they are used in conjuction with the ABC drugs...
about_ms
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Jul 16, 2005
3:31 pm

My Dr put me on a course of a chemo drug called novatrone. It worked well for me -- I had no flare-ups in the 2 years I was on it. It was a quarterly...
scoutmomskf
scoutmomskf2
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Jul 18, 2005
12:08 pm

You are not alone. Take comfort in knowing many of us are equally frustrated. Hope today will be a good one and tomorrow even better. Try to remember always...
lonim
lonimarkert
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Jul 18, 2005
12:08 pm

Hi there. I suspect my attitude is different towards MS than it is from most other people with MS I've met. I've made a conscious effort to mix with and work...
radbower
about_ms
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Jul 21, 2005
11:38 am

Glad to hear someone is trying to get things down around here. Ruth from Bailey, MI....
zoee15
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Jul 22, 2005
12:00 am

My name is Angela and recently my doctor told me I probably has MS, but after an MRI has questions and is sending me to a neurologist. The problem is that I...
angelamendoza5
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Jul 22, 2005
4:00 pm

That's the USA spirit ! My husband used to say, "When you get knocked down in the ring, just take a deep breath and come up swinging"! He was a boxer in his...
elladee2000
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Jul 22, 2005
4:01 pm

I have almost the same I have numbness to the right side of the face, pain in the joints, nasuea and my neurologist said its possible MS after the spinal tap...
dmoraga93030
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Jul 23, 2005
3:36 am

Hi MS is a bummer diagnosis, and Angela's symptoms do sound like that's what she is facing. Definitely need to wait until a definitive diagnosis is given...
radbower
raebower
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Jul 23, 2005
3:08 pm

Hi , I am new to this MS thing. I have been going thru test, different meds, and so many doctors. About 2 years ago is when I had my first MRI and that is when...
sacstmom
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Jul 28, 2005
4:17 am

Dizziness can certainly come from MS. I have a lesion near the vestubular nerve which controls balance and when it flares it get terrible vertigo but it can...
kfryk1
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Jul 28, 2005
10:24 pm

I'm trying to decide whether to get Novantrone, so here's the story as I know it: Novantrone (mitoxantrone) is currently the only drug approved by the FDA for...
howard
howardfrant
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Jul 28, 2005
10:52 pm

Thank you for your reply, I know I have lesions but My neuroligist hasn't told me exactly where they are close to. I see him in a couple weeks I will have to...
sacstmom
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Jul 28, 2005
10:54 pm

There's a simple 'brain map' at: http://www.bbc.co.uk/science/humanbody/body/interactives/organs/brainmap/ I've compared it with the films of my MRI scans. The...
jayne
jaynea2001
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Jul 29, 2005
4:31 pm

I'm on the once-a-week Avonex, also just started Modafinil. Anyone think I should change? Diane in WV...
dla123
dislikeyohoo
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Jul 30, 2005
8:45 pm

I believe that Betaseron is approved for Secondary Progressive MS also! Vince...
instman50
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Jul 30, 2005
8:45 pm

I would like to know if anyone has tried (or at least heard about) macrobiotics and it's effect on Multiple Sclerosis. Thank you, George...
groubani
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Aug 11, 2005
9:19 pm

SOURCE: Health Day News Key differences in lesion types between multiple sclerosis (MS) patients can determine whether a therapy called plasma exchange will ...
about_ms moderator
about_ms
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Aug 12, 2005
5:18 am

More than 700 cyclists are expected to participate in the Rona MS bike tours on Aug. 20 and Aug. 21. The participants of the event will ride from Brampton to...
about_ms
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Aug 12, 2005
6:45 pm

Source: Oregon Health & Science University Oregon Health & Science University researchers have identified some of the key factors that prevent the repair of...
about_ms
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Aug 12, 2005
6:46 pm

Nearly 2 000 people who took the now-suspended multiple sclerosis drug Tysabri in clinical trials have shown no signs of developing the deadly illness that led...
about_ms moderator
about_ms
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Aug 13, 2005
8:33 pm
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