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Reply | Forward Message #4254 of 4788 |
Help-MS?

I have had medical problems for the past 4 1/2 years. Much of it
relating to the spine and brain. I had cervical anterior diskectomy
surgery with plating 2 1/3 years ago. I had rib dissection surgery
(upper 2 left ribs removed) for thoracic outlet syndrome and
pressure on arteries. I have probelms in my thoracic spine. Severe
scoliosis and kyphosis. Multiple herniated discs and compression
fractures thru years. Impression on cord and large spurs leaning on
cord at T 4/5. Have brain lesions and diagnosed with cerebral
ischemia in 2001. Mini-strokes affecting left side.

My main problem though is with my left-side "episodes". They've
happened consistently over the past 4 years. About every 3-6 weeks
or so. When they happen... I have numbness around my left eye, pain
in left side of head. Some eye trouble and feel out of fous at
times. Get numbness, weakness, soreness into left arm, left hip,
and down left leg into foot. Tremendous pain over my left rib
cage. The numbness is like a flushing sensation that spreads...
somewhat like when novacaine takes affect and spreads with a
moderate pins and needles sensation. I have severe fatigue with
these. The first 1-2 days are intense and then it tapers off and
leaves a residual soreness on my left side. I can barely get out of
bed at first and sometimes don't... just ride it out.

I've had a couple of specialists say there is a high probability
that I have MS. A couple of others say no. My main neurologist
leans to ischemia but won't rule out MS. I had a spinal tap a
couple of years ago but it wasn't conclusive (didn't show bands?).
But 4 of the 7 CSF criteria were High and out of range. High
protein consistent with spinal cord injuries. Anyways, it's these
episodes that keep grinding me down. And I guess its difficult for
the doctors to say what's caused by spinal problems, versus brain,
and ischemia or MS.

So does any of this sound familiar to anyone with MS? I'm
definitely affected by heat and it seems to sometimes bring on an
episode. Do these episodes sound in any way consistent with MS?
Looking for help. Thank you.








Wed May 11, 2005 5:53 pm

stkr333
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Message #4254 of 4788 |
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I was wondering if we would all be willing to say what drugs we are taking at this time & why that choice was made. At the moment, I'm on once-a-week beta...
dla123
dislikeyohoo
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May 11, 2005
7:58 pm

I have had medical problems for the past 4 1/2 years. Much of it relating to the spine and brain. I had cervical anterior diskectomy surgery with plating 2...
stkr333
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May 11, 2005
7:58 pm

nyboy1960 wrote that he read that only a 1/3 of MS patients respond to A-B-C drugs. I don't think this is right; do you have a source? There has been a lot of...
howardfrant
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May 13, 2005
2:49 am

All of the information I have read as well showed a 1/3 reduction in exasterbations as well. I would also like to know that persons source of information....
hamorley
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May 14, 2005
12:04 pm

The only thing I would add to the ABCs reducing exacerbations by about 1/3 is that this is an average. Some will do better, some less than the 1/3 reduction....
kfryk1
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May 14, 2005
12:05 pm

Hi all, In response to the statement that only one third of MSers respond to the ABC drugs: I agree with Howard. Someone misread the info from the data....
Msjnich
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May 16, 2005
12:01 pm

I agree, it does depend on the individual. I have tried all of the meds (Avone, Betaseron & Copaxone) and none of those worked for me. I've been on Rebif for 2...
unamexicana1
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May 16, 2005
12:02 pm
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