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Tysabri in the News   Message List  
Reply | Forward Message #4252 of 4788 |
Response to bubbina_1999

I completely understand your skepticism about drugs; with them, the entire
concern is about money! However, I have to say that my personal
experience has to throw huge credit to drugs!

After several years of annoying but manageable symptoms, I went into a
dramatic, terrifying and rapid decline that left me in a wheelchair and
pretty totally dependent on others for basic care. After an intensive and long
term chemo and steroid treatment protocol, I have my life back. I walk pretty
well with a cane, take care of myself, drive again and work full time. I
presently take lots of meds, including Copaxone (which is so easy that I'd
recommend it highly) and handfuls of immuno-suppressant pills every day. Things
aren't perfect, but I'd go through the same fairly difficult treatment again if
I needed to.








Tue May 10, 2005 2:12 pm

gaild1975
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Message #4252 of 4788 |
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I just read in the MS support group that only a 1/3 of MS patients respond to A-B-C drugs so I think treating the underlying problems is more important then...
nyboy1960
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May 9, 2005
4:07 pm

I completely understand your skepticism about drugs; with them, the entire concern is about money! However, I have to say that my personal experience has to...
Flash!
gaild1975
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May 10, 2005
8:36 pm

I was wondering if we would all be willing to say what drugs we are taking at this time & why that choice was made. At the moment, I'm on once-a-week beta...
dla123
dislikeyohoo
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May 11, 2005
7:58 pm

I have had medical problems for the past 4 1/2 years. Much of it relating to the spine and brain. I had cervical anterior diskectomy surgery with plating 2...
stkr333
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May 11, 2005
7:58 pm

nyboy1960 wrote that he read that only a 1/3 of MS patients respond to A-B-C drugs. I don't think this is right; do you have a source? There has been a lot of...
howardfrant
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May 13, 2005
2:49 am

All of the information I have read as well showed a 1/3 reduction in exasterbations as well. I would also like to know that persons source of information....
hamorley
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May 14, 2005
12:04 pm

The only thing I would add to the ABCs reducing exacerbations by about 1/3 is that this is an average. Some will do better, some less than the 1/3 reduction....
kfryk1
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May 14, 2005
12:05 pm

Hi all, In response to the statement that only one third of MSers respond to the ABC drugs: I agree with Howard. Someone misread the info from the data....
Msjnich
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May 16, 2005
12:01 pm

I agree, it does depend on the individual. I have tried all of the meds (Avone, Betaseron & Copaxone) and none of those worked for me. I've been on Rebif for 2...
unamexicana1
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May 16, 2005
12:02 pm
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