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Tysabri in the News   Message List  
Reply | Forward Message #4248 of 4788 |
my opinion about drugs

I don't usually post here, but I do read these posts.

I've been holding off doing the shots for 9 years and I still get around albiet
with a cane. According to the most recent issue of NMSS's publication "Inside
MS" 50% of people with MS are not on the ABC or R. I have many questions that go
unanswered by mainstream medicine.

Also, the drug companies don't make any claim about preventing further
progression. They only claim that it may help delay progression of disability
and frequency of attacks in RRMS.
I realize this is an extremely controvercial subject, but not all of us buy into
the drug companies (and that doesn't make us bad people). I have a 9 year
history of some seriously negative situations with the medical profession and my
MS actually being made worse after I received a tetanus shot. Of course, no
doctor wants to acknowledge this. And they don't! I've just gone through the
legal process.

I know that science can do much better if the drug companies didn't have their
mighty dollar driven agenda. Too little research makes it pretty obvious.
More dollars go into one football game than has gone into MS research in the
past 56 years! Why is that? I feel like we're just cash cows.

I know this post opens me up for all kinds of critical comments. But believe
me, I can take it. I have a 10 page word document, entitled, "Finding Hope in
the Truth", that I wrote last year that was printed in two publications. As a
result, I was a guest speaker at an MS support group this past February. There
was one person who walked out before I had finished. That person was an MD. He
could not handle that there was someone actually going against the grain. The
support group leader was very pleased that I had rattled his chains and actually
struck a nerve.

We need better, folks, lots better. Let's call it like it is.
I am not trying to offend anyone here, but there are people like me who have a
totally different view of "treatment" and my view counts just as much regardless
of what any MD has to say.






Fri May 6, 2005 9:37 pm

bubbina_1999
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Message #4248 of 4788 |
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Hi Lou ~ I was diagnosed in 1989 as well. Progression was slow for the first several years but I tried Avonex for a year. I didn't respond to it very well. Had...
lonim
lonimarkert
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May 6, 2005
10:01 pm

I don't usually post here, but I do read these posts. I've been holding off doing the shots for 9 years and I still get around albiet with a cane. According...
bubbina_1999
Send Email
May 8, 2005
3:40 pm

I met a lady who is going through chemo treatment for MS not for cancer. She's happy about it but I personally wouldn't want it. You can ask your Doctor if you...
dla123
dislikeyohoo
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May 8, 2005
3:43 pm

Hello, Every therapy is good for different patients. I think that interferon based meds have more side effects linked to them. But if it works for you its...
olgamogilev
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May 9, 2005
4:03 pm

I just read in the MS support group that only a 1/3 of MS patients respond to A-B-C drugs so I think treating the underlying problems is more important then...
nyboy1960
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May 9, 2005
4:07 pm

I completely understand your skepticism about drugs; with them, the entire concern is about money! However, I have to say that my personal experience has to...
Flash!
gaild1975
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May 10, 2005
8:36 pm

I was wondering if we would all be willing to say what drugs we are taking at this time & why that choice was made. At the moment, I'm on once-a-week beta...
dla123
dislikeyohoo
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May 11, 2005
7:58 pm

I have had medical problems for the past 4 1/2 years. Much of it relating to the spine and brain. I had cervical anterior diskectomy surgery with plating 2...
stkr333
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May 11, 2005
7:58 pm

nyboy1960 wrote that he read that only a 1/3 of MS patients respond to A-B-C drugs. I don't think this is right; do you have a source? There has been a lot of...
howardfrant
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May 13, 2005
2:49 am

All of the information I have read as well showed a 1/3 reduction in exasterbations as well. I would also like to know that persons source of information....
hamorley
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May 14, 2005
12:04 pm

The only thing I would add to the ABCs reducing exacerbations by about 1/3 is that this is an average. Some will do better, some less than the 1/3 reduction....
kfryk1
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May 14, 2005
12:05 pm

Hi all, In response to the statement that only one third of MSers respond to the ABC drugs: I agree with Howard. Someone misread the info from the data....
Msjnich
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May 16, 2005
12:01 pm

I agree, it does depend on the individual. I have tried all of the meds (Avone, Betaseron & Copaxone) and none of those worked for me. I've been on Rebif for 2...
unamexicana1
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May 16, 2005
12:02 pm
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