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Tysabri in the News   Message List  
Reply | Forward Message #4243 of 4788 |
From one newbie to another

Yes, yes, yes. You will get people wanting to explain away your symptoms. The
most common I have found is "Well I (or someone else) have that symptom and it
is-----just age, or stress, or etc." It's hard to hear because you feel like
they aren't taking your disease seriously. I guess it's important to know that
they are probably wanting to deny that you have MS because they care about you.
I started on Copaxone three years ago and my exacerbations have dwindled down to
nothing! I'm so pleased. Of course I don't know that it's the drug but I'm not
going to stop it! Copaxone seems to be the least problematic and the latest
studies they have done show that in the long term it seems to be decreasing the
number of brain lesions that occur. I did try Naltrexone. Many people say they
have had great results but I didn't notice a difference. I also got hooked up
with an allergist who thinks that episodes are triggered by allergies. He said
I was highly allergic to many things. I took the shots he recommended and got
the air purifiers, etc, but didn't notice any difference in my symptoms or
exacerbations at the time so stopped all that except for staying off milk and
all milk products. He claims that his studies show that a high percentage of
people with MS are allergic to milk. That may contribute to my success but I
don't really know. Good luck with your journey. I've heard that many
researchers think MS may be several different diseases so different things work
for different
people.






Tue May 3, 2005 5:11 pm

kfryk1
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Message #4243 of 4788 |
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I understand how you feel, I was diagnosed in September of last year and since I have multiple family members with the disease, Everyone has been through...
hamorley
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May 3, 2005
7:54 pm

Yes, yes, yes. You will get people wanting to explain away your symptoms. The most common I have found is "Well I (or someone else) have that symptom and it...
kfryk1
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May 3, 2005
11:55 pm

I suggest that you don't hold off on starting treatment!! The current standard of care in MS suggests that you should be on one of these drugs ASAP. This is...
GCD
gaild1975
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May 5, 2005
1:24 pm

Hi there, I've had MS since 1989 and was on Beteaseron when it came out, also was in trials. When I moved to VA the Doc put me on Copanoxe, but last week the...
nyboy1960
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May 5, 2005
1:33 pm

Hello, Another new member! Was given diagnosis 4-25-2005. Optic neuritis back in Dec. 2004, 3 MRI's later, have 1 active lesion on spine & 1 active on brain....
ktcreek
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May 6, 2005
9:55 pm

Hi Lou ~ I was diagnosed in 1989 as well. Progression was slow for the first several years but I tried Avonex for a year. I didn't respond to it very well. Had...
lonim
lonimarkert
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May 6, 2005
10:01 pm

I don't usually post here, but I do read these posts. I've been holding off doing the shots for 9 years and I still get around albiet with a cane. According...
bubbina_1999
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May 8, 2005
3:40 pm

I met a lady who is going through chemo treatment for MS not for cancer. She's happy about it but I personally wouldn't want it. You can ask your Doctor if you...
dla123
dislikeyohoo
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May 8, 2005
3:43 pm

Hello, Every therapy is good for different patients. I think that interferon based meds have more side effects linked to them. But if it works for you its...
olgamogilev
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May 9, 2005
4:03 pm

I just read in the MS support group that only a 1/3 of MS patients respond to A-B-C drugs so I think treating the underlying problems is more important then...
nyboy1960
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May 9, 2005
4:07 pm

I completely understand your skepticism about drugs; with them, the entire concern is about money! However, I have to say that my personal experience has to...
Flash!
gaild1975
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May 10, 2005
8:36 pm

I was wondering if we would all be willing to say what drugs we are taking at this time & why that choice was made. At the moment, I'm on once-a-week beta...
dla123
dislikeyohoo
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May 11, 2005
7:58 pm

I have had medical problems for the past 4 1/2 years. Much of it relating to the spine and brain. I had cervical anterior diskectomy surgery with plating 2...
stkr333
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May 11, 2005
7:58 pm

nyboy1960 wrote that he read that only a 1/3 of MS patients respond to A-B-C drugs. I don't think this is right; do you have a source? There has been a lot of...
howardfrant
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May 13, 2005
2:49 am

All of the information I have read as well showed a 1/3 reduction in exasterbations as well. I would also like to know that persons source of information....
hamorley
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May 14, 2005
12:04 pm

The only thing I would add to the ABCs reducing exacerbations by about 1/3 is that this is an average. Some will do better, some less than the 1/3 reduction....
kfryk1
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May 14, 2005
12:05 pm

Hi all, In response to the statement that only one third of MSers respond to the ABC drugs: I agree with Howard. Someone misread the info from the data....
Msjnich
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May 16, 2005
12:01 pm

I agree, it does depend on the individual. I have tried all of the meds (Avone, Betaseron & Copaxone) and none of those worked for me. I've been on Rebif for 2...
unamexicana1
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May 16, 2005
12:02 pm
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