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Tysabri in the News   Message List  
Reply | Forward Message #4239 of 4788 |
tyvm for replies!


For quite awhile I have noticed, intermittently, that I get pins and
needles, especially if I bend my arm back, (as if I were scratching my back). It
was only in the last week or two that I noticed occasional pins and needles when
I walk (as I put my heel down), but not all the time.

From all that I've heard and read, it seems people have small symptoms that they
ignore for years, because they're infrequent, or because it doesn't seem like a
big deal. When I mentioned the pins and needles to my friend Vivian, who has MS,
she said "you might want to see a neurologist". That's what got me thinking.
Your comments are encouraging, but I guess the only way to be sure is to have an
exam.

Oddly enough, I haven't had symptoms for the last few days, but from what little
I understand about MS, that's not unusual, right? I will see my doctor about it.

Everyone on this board has been so kind - thank you.







Mon Apr 11, 2005 3:18 am

histemieveryday
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Message #4239 of 4788 |
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The symptoms can be explained by other things besides MS - the hand and arm tingling could be carpal tunnel syndrome and the tingling in your legs after...
stowne517
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Apr 8, 2005
5:15 pm

For quite awhile I have noticed, intermittently, that I get pins and needles, especially if I bend my arm back, (as if I were scratching my back). It was only...
histemieveryday
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Apr 11, 2005
11:42 am

I am 27 and a mother of one. I have had a few automobile accidents. Most recently, was a year ago, I was hit in the back of the head with a log.(don't ask) For...
cgoddard01
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Apr 23, 2005
1:42 am

I am new to this chatroom and was diagnosed July 1, 2004. Since my diagnosis, I haven't done much as far as drugs. I would love to know any natural meds anyone...
saraslarson
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May 2, 2005
7:49 pm

I understand how you feel, I was diagnosed in September of last year and since I have multiple family members with the disease, Everyone has been through...
hamorley
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May 3, 2005
7:54 pm

Yes, yes, yes. You will get people wanting to explain away your symptoms. The most common I have found is "Well I (or someone else) have that symptom and it...
kfryk1
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May 3, 2005
11:55 pm

I suggest that you don't hold off on starting treatment!! The current standard of care in MS suggests that you should be on one of these drugs ASAP. This is...
GCD
gaild1975
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May 5, 2005
1:24 pm

Hi there, I've had MS since 1989 and was on Beteaseron when it came out, also was in trials. When I moved to VA the Doc put me on Copanoxe, but last week the...
nyboy1960
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May 5, 2005
1:33 pm

Hello, Another new member! Was given diagnosis 4-25-2005. Optic neuritis back in Dec. 2004, 3 MRI's later, have 1 active lesion on spine & 1 active on brain....
ktcreek
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May 6, 2005
9:55 pm

Hi Lou ~ I was diagnosed in 1989 as well. Progression was slow for the first several years but I tried Avonex for a year. I didn't respond to it very well. Had...
lonim
lonimarkert
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May 6, 2005
10:01 pm

I don't usually post here, but I do read these posts. I've been holding off doing the shots for 9 years and I still get around albiet with a cane. According...
bubbina_1999
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May 8, 2005
3:40 pm

I met a lady who is going through chemo treatment for MS not for cancer. She's happy about it but I personally wouldn't want it. You can ask your Doctor if you...
dla123
dislikeyohoo
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May 8, 2005
3:43 pm

Hello, Every therapy is good for different patients. I think that interferon based meds have more side effects linked to them. But if it works for you its...
olgamogilev
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May 9, 2005
4:03 pm

I just read in the MS support group that only a 1/3 of MS patients respond to A-B-C drugs so I think treating the underlying problems is more important then...
nyboy1960
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May 9, 2005
4:07 pm

I completely understand your skepticism about drugs; with them, the entire concern is about money! However, I have to say that my personal experience has to...
Flash!
gaild1975
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May 10, 2005
8:36 pm

I was wondering if we would all be willing to say what drugs we are taking at this time & why that choice was made. At the moment, I'm on once-a-week beta...
dla123
dislikeyohoo
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May 11, 2005
7:58 pm

I have had medical problems for the past 4 1/2 years. Much of it relating to the spine and brain. I had cervical anterior diskectomy surgery with plating 2...
stkr333
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May 11, 2005
7:58 pm

nyboy1960 wrote that he read that only a 1/3 of MS patients respond to A-B-C drugs. I don't think this is right; do you have a source? There has been a lot of...
howardfrant
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May 13, 2005
2:49 am

All of the information I have read as well showed a 1/3 reduction in exasterbations as well. I would also like to know that persons source of information....
hamorley
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May 14, 2005
12:04 pm

The only thing I would add to the ABCs reducing exacerbations by about 1/3 is that this is an average. Some will do better, some less than the 1/3 reduction....
kfryk1
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May 14, 2005
12:05 pm

Hi all, In response to the statement that only one third of MSers respond to the ABC drugs: I agree with Howard. Someone misread the info from the data....
Msjnich
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May 16, 2005
12:01 pm

I agree, it does depend on the individual. I have tried all of the meds (Avone, Betaseron & Copaxone) and none of those worked for me. I've been on Rebif for 2...
unamexicana1
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May 16, 2005
12:02 pm
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