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Re: headache   Message List  
Reply | Forward Message #3773 of 4788 |
R/R

Well, I'm 50 and was diagnosed in 1974. I have R/R and when I had major
issues, like long term symptoms, I was put on a Solumedrol IV treatment with
an oral taper afterwards. I don't know if that is done much now, but it is
not without it's own problems. My veins are now "chemotherapy" veins. The
veins blow and spasm and I have blood drawn through butterfly needles when I
have to have it done. Would I do anything any different, knowing that,
probably not, but it is still good info to know.

I took Betaseron when it first came out, but had injection site problems.
When Avonex came out I was switched to that with no problems.

My first baby was before I knew I had MS and the second was after, but
before any of the injectables. (Or anything else really.....) My
understanding was that pregnancy was not advised with any of the
injectables, but I may be wrong. I am having grandkids now, so that is not
really an area I keep up with. :)

Hope that helps.....
Elizabeth
Elizabeth & Michael Svercl
Bud & Mackenzie (Scottish Terrors!)
Plato (Congo African Grey)
Anoka, MN







Wed Jan 21, 2004 7:09 pm

scottiemam2002
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Message #3773 of 4788 |
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Hi everyone! This is old Granny Red and I'm still kicking. I've graduated from my cane to my wheeled walker with a nice big wide seat on it (to match my...
ella monfort
elladee2000
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Jan 23, 2004
4:56 pm

Well, I'm 50 and was diagnosed in 1974. I have R/R and when I had major issues, like long term symptoms, I was put on a Solumedrol IV treatment with an oral...
Elizabeth Svercl
scottiemam2002
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Jan 23, 2004
4:56 pm

I'd say kimberly has given detrol a long enough time to work and now something else should be tried! Ask your doctor. Ruth...
zoee15
Send Email
Jan 24, 2004
3:07 pm

First on the Detrol LA, I've had similar bladder challenges, and have just finished with a fairly completely assessment with a urologist. Bottom line is that...
Gail Demaine
gaild1975
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Jan 24, 2004
3:07 pm

Personally I have no experience with rebif. I do think however there was a recent study that said temporarily stopping has no effect on how the medicin works....
Wemke VanderWal
wemkewemke
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Jan 24, 2004
3:07 pm

Hello, To get more information about M.S.therapies go to http://www.MSWatch.com and http://www.MSuniversity.com If someone is on Copaxone Therapy, then call...
olgamogilev
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Jan 25, 2004
2:38 pm

Thanks for that awesome newspaper post, says it all really. Re the new medicine, better buy some stock now while it's still affordable! Karen...
bitokaren
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Jan 25, 2004
2:38 pm

As most newly diagnosed MS patients I tried everything, including Bee Venom Therapy. BVT is exactly what is says, therapy via the induced venom of Bees. You...
b.bobg
max1776_2000
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Jan 25, 2004
2:38 pm

Personally, All I can say MS and pregnant, bless her heart. Thinking and sending prayers her way. Laura L...
Laura
lauralfw
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Jan 26, 2004
12:49 pm

Try drinking Pedialyte every day. It comes flavored or plain. Look for store brands..they are less expensive. I had monstrous leg spasms, and it helped me....
elladee2000
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Jan 26, 2004
12:49 pm

Hi Granny Red is always such an encouragement! I hope you soon find a remedy for the night pain. I take Tylenol PM's almost every night. Usually they work, but...
rperson42000
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Jan 26, 2004
12:49 pm

I, too, have terrible veins; so bad that I was told not to come back for IV treatments without a portacath. This is implanted high on my chest and has worked...
gail_demaine
gaild1975
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Jan 27, 2004
2:00 pm

Hello everyone. I am hoping by joining this group I may get some suggestions for when those "weird" symptoms occur. I was diagnosed about three years ago. I...
lemon_drops1
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Jan 27, 2004
2:01 pm

I, too, joined because I was out of my mind with leg pain, tingling, etc. I was put on Neurotin but it didn't help me and only caused me to gain weight. I know...
taliswoman7
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Jan 27, 2004
2:06 pm

I learned something very interesting about diet stuff. The component that they add to diet sodas turns into formaldehyde above freezing. (My Diet Dr Pepper is...
taliswoman7
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Jan 28, 2004
3:38 pm

Hi, I just wanted to tell Granny Red "God Bless You" I love reading your encouraging words and I always smile at your jokes. Thank you for always putting a...
Jammie B
unamexicana1
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Jan 28, 2004
3:38 pm

I've been under the impression that most people regard bee therapy as not at all reliably effective. Like any other therapies for MS, it operates on playing...
gail_demaine
gaild1975
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Jan 28, 2004
3:55 pm

My experience with both ditrapan and Detrol LA is not the same. Ditrapan did work fine for what it was taken for, but made me very groggy and sleepy. I get...
E.Svercl
scottiemam2002
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Jan 29, 2004
1:34 pm

Hi all, I'm new to this group too and will introduce myself but I wanted to say to Robyn that it does sound like what is happening in your arm and hand is...
kfryk1
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Jan 29, 2004
1:35 pm

lemon_drops1 wrote: << snip>>...I am hoping by joining this group I may get some suggestions for when those "weird" symptoms occur. I was diagnosed about...
Kimberly
socal_kimber
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Jan 29, 2004
1:35 pm

One thing about ms is that you can't put it in a box and say "these are the symptoms." We're all as different as snowflakes so we all end up with a different...
Robin
rperson42000
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Jan 30, 2004
10:54 pm

Thanks for the ideas and the support. Right now that problem has been moved to the back burner. I went through the steriod injections and had a bad reaction so...
Kimberly
socal_kimber
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Jan 30, 2004
10:54 pm

I am sooooooo glad you discussed the weird pain on your ear. I have had that too and just assumed it was something else strange, not connected. Never heard of...
Tali
taliswoman7
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Jan 30, 2004
10:54 pm

Finger spasticity has been a problem with me also. I was put on Zanaflex. At first I didn't notice anything, but after telling my dr that, he kept increasing...
JTsRetreat
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Jan 31, 2004
10:48 pm

gail_demaine wrote: <SNIP>I, too, have terrible veins; so bad that I was told not to come back for IV treatments without a portacath. This is implanted high ...
Kimberly
socal_kimber
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Jan 31, 2004
10:49 pm

Thanks for the input. I have recently moved and am looking for a new neurologist in the area. My second episode that you referred to that masked the symptoms...
Robin Kay
lemon_drops1
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Jan 31, 2004
10:50 pm

I have seen studies where it says only 5% of siblings get MS. Do any of your siblings have it? My brother is going thru weird symptoms like I have. Because he ...
taliswoman7
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Feb 1, 2004
10:37 pm

Hi everyone, I've had RRMS for the past 10 years and have my good days and bad. My main problem is balance, not vertigo (dizziness) but just totally losing my...
Karen :)
bitokaren
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Feb 1, 2004
10:38 pm

I was diagnosed w/ R/R MS in 1999 and my sister was diagnosed in 2003. (I gained a huge amount of weight while on Rebif but am now doing very well on ...
KR Pace
Send Email
Feb 3, 2004
12:12 am

Hi, I got bee venom therapy last year (6 bites in every 2 days), and since I didn't have to go to steroid treatment since then (usually I have to go twice a...
Zoli
alphawalker
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Feb 3, 2004
12:21 am
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