Hi everyone! This is old Granny Red and I'm still kicking. I've graduated from
my cane to my wheeled walker with a nice big wide seat on it (to match my
behind) so I can plop down when necessary. I'm still getting by on neurontin,
but mayhap this is what makes me feel so dopey. It's not a bad feeling, just
pleasantly woozy, whenever the pain isn't too bad. My doctor, who has MS, too,
doesn't seem to think I need the shots yet. I hope never, but will face that
when it comes. My doctor thought I seemed depressed, and prescribed Wellbutrin.
That was awful stuff. I felt like my head would explode. I don't FEEL depressed,
so was advised to use St. John's Wort instead. That's OK. There are times when I
wonder if a bottle of good old scotch wouldn't do as well. No, just spoofin'.
Hang in there all of you , and if you get knocked down, just come up swinging!!
On Christmas Eve, I beheld an event that made my heart glad. After dinner, as we
opened our presents, there was a little boy in our midst who was just ten years
old. He was in his wheelchair, and as he was presented with each gift, he would
open it, and shout and clap his hands, and such joyous laughter! He would thank
each person for their gift, and proceeded to enjoy himself hugely the whole
evening until his little body became exhausted and they had to take him home.
This little guy was born prematurely and suffered nerve damage. He has had many
surgeries, the last one (a very difficult one) at his own request, as he wants
to be able to walk and play. I was reminded of Tiny Tim in Dickens "A Christmas
Carol". It made me really appreciate the fact that I can still walk, if somewhat
wobbly. It made Christmas very real to me.
http://health.groups.yahoo.com/group/LookingForTheAnswer/ Hello!!!! I'm 24, a future student (Cisco-Networking type stuff, I live in Southeast Texas, and have...
Hi everyone! This is old Granny Red and I'm still kicking. I've graduated from my cane to my wheeled walker with a nice big wide seat on it (to match my...
Well, I'm 50 and was diagnosed in 1974. I have R/R and when I had major issues, like long term symptoms, I was put on a Solumedrol IV treatment with an oral...
I'd say kimberly has given detrol a long enough time to work and now something else should be tried! Ask your doctor. Ruth...
zoee15
Jan 24, 2004 3:07 pm
First on the Detrol LA, I've had similar bladder challenges, and have just finished with a fairly completely assessment with a urologist. Bottom line is that...
Personally I have no experience with rebif. I do think however there was a recent study that said temporarily stopping has no effect on how the medicin works....
Hello, To get more information about M.S.therapies go to http://www.MSWatch.com and http://www.MSuniversity.com If someone is on Copaxone Therapy, then call...
As most newly diagnosed MS patients I tried everything, including Bee Venom Therapy. BVT is exactly what is says, therapy via the induced venom of Bees. You...
Try drinking Pedialyte every day. It comes flavored or plain. Look for store brands..they are less expensive. I had monstrous leg spasms, and it helped me....
Hi Granny Red is always such an encouragement! I hope you soon find a remedy for the night pain. I take Tylenol PM's almost every night. Usually they work, but...
I, too, have terrible veins; so bad that I was told not to come back for IV treatments without a portacath. This is implanted high on my chest and has worked...
Hello everyone. I am hoping by joining this group I may get some suggestions for when those "weird" symptoms occur. I was diagnosed about three years ago. I...
I, too, joined because I was out of my mind with leg pain, tingling, etc. I was put on Neurotin but it didn't help me and only caused me to gain weight. I know...
I learned something very interesting about diet stuff. The component that they add to diet sodas turns into formaldehyde above freezing. (My Diet Dr Pepper is...
Hi, I just wanted to tell Granny Red "God Bless You" I love reading your encouraging words and I always smile at your jokes. Thank you for always putting a...
I've been under the impression that most people regard bee therapy as not at all reliably effective. Like any other therapies for MS, it operates on playing...
My experience with both ditrapan and Detrol LA is not the same. Ditrapan did work fine for what it was taken for, but made me very groggy and sleepy. I get...
Hi all, I'm new to this group too and will introduce myself but I wanted to say to Robyn that it does sound like what is happening in your arm and hand is...
lemon_drops1 wrote: << snip>>...I am hoping by joining this group I may get some suggestions for when those "weird" symptoms occur. I was diagnosed about...
One thing about ms is that you can't put it in a box and say "these are the symptoms." We're all as different as snowflakes so we all end up with a different...
Thanks for the ideas and the support. Right now that problem has been moved to the back burner. I went through the steriod injections and had a bad reaction so...
I am sooooooo glad you discussed the weird pain on your ear. I have had that too and just assumed it was something else strange, not connected. Never heard of...
Finger spasticity has been a problem with me also. I was put on Zanaflex. At first I didn't notice anything, but after telling my dr that, he kept increasing...
JTsRetreat
Jan 31, 2004 10:48 pm
gail_demaine wrote: <SNIP>I, too, have terrible veins; so bad that I was told not to come back for IV treatments without a portacath. This is implanted high ...
Thanks for the input. I have recently moved and am looking for a new neurologist in the area. My second episode that you referred to that masked the symptoms...
I have seen studies where it says only 5% of siblings get MS. Do any of your siblings have it? My brother is going thru weird symptoms like I have. Because he ...
Hi everyone, I've had RRMS for the past 10 years and have my good days and bad. My main problem is balance, not vertigo (dizziness) but just totally losing my...
I was diagnosed w/ R/R MS in 1999 and my sister was diagnosed in 2003. (I gained a huge amount of weight while on Rebif but am now doing very well on ...