As a person living with MS, I'm amazed how many friends no longer stay in
touch because they don't understand the disease. I hope you will print this
essay so people will realize how we feel.
Don't Assume:
Don't assume that because I look well that I feel well. Looks can be very
deceiving. Many days I look great but feel terrible.
Don't say, "I know how you feel." No one knows how anyone else feels.
Don't tell me, "It could be worse." I don't need to be reminded.
Don't decide what I am capable of doing. Allow me to make those decisions.
There may be times I'm wrong, but I'll know soon enough.
Don't be upset that you cannot ease my problems. It won't do any good for
both of us to be miserable.
Don't ask me how I feel unless you really want to know. You may hear a lot
more than you are prepared to listen to.
Don't assume because I did a certain activity yesterday that I can do it
today.
Do realize I am angry and frustrated with the disease, not with you.
Do let me know when you are available to help me when I ask.
Do understand why I cancel plans at the last minute.
Do continue to invite me to activities. Just because I am not able to bike
ride along with the gang does not mean I can't meet you for the picnic at the
end of the trail.
This is very interesting and something that even those of us not collecting now should look at seriously. Since many of us have paid into FICA for years, and...
Here's the newspaper post: As a person living with MS, I'm amazed how many friends no longer stay in touch because they don't understand the disease. I hope...
I just joined this discussion group because I am out of my mind with leg pain! I read a message about bee therapy. How do you do it? Will it make the leg pain...
http://health.groups.yahoo.com/group/LookingForTheAnswer/ Hello!!!! I'm 24, a future student (Cisco-Networking type stuff, I live in Southeast Texas, and have...
Hi everyone! This is old Granny Red and I'm still kicking. I've graduated from my cane to my wheeled walker with a nice big wide seat on it (to match my...
Well, I'm 50 and was diagnosed in 1974. I have R/R and when I had major issues, like long term symptoms, I was put on a Solumedrol IV treatment with an oral...
I'd say kimberly has given detrol a long enough time to work and now something else should be tried! Ask your doctor. Ruth...
zoee15
Jan 24, 2004 3:07 pm
First on the Detrol LA, I've had similar bladder challenges, and have just finished with a fairly completely assessment with a urologist. Bottom line is that...
Personally I have no experience with rebif. I do think however there was a recent study that said temporarily stopping has no effect on how the medicin works....
Hello, To get more information about M.S.therapies go to http://www.MSWatch.com and http://www.MSuniversity.com If someone is on Copaxone Therapy, then call...
As most newly diagnosed MS patients I tried everything, including Bee Venom Therapy. BVT is exactly what is says, therapy via the induced venom of Bees. You...
Try drinking Pedialyte every day. It comes flavored or plain. Look for store brands..they are less expensive. I had monstrous leg spasms, and it helped me....
Hi Granny Red is always such an encouragement! I hope you soon find a remedy for the night pain. I take Tylenol PM's almost every night. Usually they work, but...
I, too, have terrible veins; so bad that I was told not to come back for IV treatments without a portacath. This is implanted high on my chest and has worked...
Hello everyone. I am hoping by joining this group I may get some suggestions for when those "weird" symptoms occur. I was diagnosed about three years ago. I...
I, too, joined because I was out of my mind with leg pain, tingling, etc. I was put on Neurotin but it didn't help me and only caused me to gain weight. I know...
I learned something very interesting about diet stuff. The component that they add to diet sodas turns into formaldehyde above freezing. (My Diet Dr Pepper is...
Hi, I just wanted to tell Granny Red "God Bless You" I love reading your encouraging words and I always smile at your jokes. Thank you for always putting a...
I've been under the impression that most people regard bee therapy as not at all reliably effective. Like any other therapies for MS, it operates on playing...
My experience with both ditrapan and Detrol LA is not the same. Ditrapan did work fine for what it was taken for, but made me very groggy and sleepy. I get...
Hi all, I'm new to this group too and will introduce myself but I wanted to say to Robyn that it does sound like what is happening in your arm and hand is...
lemon_drops1 wrote: << snip>>...I am hoping by joining this group I may get some suggestions for when those "weird" symptoms occur. I was diagnosed about...
One thing about ms is that you can't put it in a box and say "these are the symptoms." We're all as different as snowflakes so we all end up with a different...
Thanks for the ideas and the support. Right now that problem has been moved to the back burner. I went through the steriod injections and had a bad reaction so...
I am sooooooo glad you discussed the weird pain on your ear. I have had that too and just assumed it was something else strange, not connected. Never heard of...
Finger spasticity has been a problem with me also. I was put on Zanaflex. At first I didn't notice anything, but after telling my dr that, he kept increasing...
JTsRetreat
Jan 31, 2004 10:48 pm
gail_demaine wrote: <SNIP>I, too, have terrible veins; so bad that I was told not to come back for IV treatments without a portacath. This is implanted high ...