Skip to search.

Breaking News Visit Yahoo! News for the latest.

×Close this window

AUTISM-FBI · "FIGHTING BACK with dietary INTERVENTION" is a list for the experienced parent using dietary intervention in the treatment of t

The Yahoo! Groups Product Blog

Check it out!

Group Information

  • Members: 820
  • Category: Autism
  • Founded: Jan 10, 1999
  • Language: English
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Real people. Real stories. See how Yahoo! Groups impacts members worldwide.

Messages

Advanced
Messages Help
Messages 2278 - 2307 of 7786   Oldest  |  < Older  |  Newer >  |  Newest
Messages: Show Message Summaries Sort by Date ^  
#2278 From: bergamotsq@...
Date: Fri Sep 1, 2000 8:33 pm
Subject: local support group
bergamotsq@...
Send Email Send Email
 
Hello All!
I'm really interested in finding people in my area who are helping
their autistic children through dietary intervention.
My son, who is four, diagnosed with PDD, has been on the GFCF diet
since June.  We are now looking forward (?) to starting him on the
yeast-free diet as well.
If any of you live in my area, St. Mary's or Calvert County Maryland,
and would be interested in getting a "support group" together, please
contact me privately at bergamotsq@....
(I'm new to the list, please forgive any ignorance on my part.)
Thank you,
Theresa

#2279 From: "jj-cupples" <jj-cupples@...>
Date: Sat Sep 2, 2000 6:27 pm
Subject: Amaranth & Quinoa
jj-cupples@...
Send Email Send Email
 
Interesting post from the Celiac listserv.

Janice in TX

------------------------------------------------------------------------

Date:    Fri, 1 Sep 2000 21:57:30 -0400
Subject: Amaranth & Quinoa

<<Disclaimer: Verify this information before applying it to your
situation.>>

The summer issue of The Celiac Disease Foundation(California)has an article
that might be of interest to anyone wondering if they should eat these
grains.  It is by Joan Wade the president of CDF. She writes:  ...I would
like to address Fact versus Myth as it pertains to the issues of growing,
harvesting, transpotation, milling and/or processing. Consider these Facts:
GROWING: In the growing process amaranth is normally rotated with corn and
soy.  Neither grain contains gluten.  Nu-World Amaranth, Inc is the largest
supplier of amaranth products in the U.S.  They are very aware of the
contaminationissue and their suppliers do not rotate the crops with grains
that contain gluten.  They have trucks that Transport only amaranth and a
mill that only mills amaranth.  Over 90% of the quinoa on the market is
grown in South America in regiona that do not grow wheat or other grains
that contain gluten.  Ancient Harvest Quinoa Corp. is the largest supplier
of quinoa in the U.S.  Their quinoa is grown in S.Amer., and they have
their own milling facility that is dedicated to the milling of quinoa
HARVESTING:  Since the growing season of most grains varies by several
weeks it is highly unlikely that a previous year's crop(of
wheat,barley,rye,spelt,kamut,or oats) would accidentally sprout in a field
or aramanth or quinoa and mature at the same time.
TRANSPORTATION:  ...the transportation system doesn't have designated
freight cars for gluten-free grains.  What prevents contamination that may
take place during transit is filtered out during the milling process...
MILLING:  In the milling process foreign particles and unwanted "other
grains" are removed by passing the grain through sieves, perforated
cylinders and disks, which are so accurate that they can segregate the
wheat kernels by size....I asked a farmer what the chances would be of
finding a wheat kernel in amaranthe that had been processed for milling,
his reply was "Probably one in a million."  ...Some plants mill only
rice,quinoa,soy, bean flour, or corn.  Most companies that manufacture
gluten-free products are aware that contamination is an issue with their
customers and source their flour from facilities that mill only gf flour.
PROCESSING:  All processing or packaging plants practice Safe Manufacturing
Practices that are established and monitored by the Food and Drug Admin.
All the plants that I have visited have been exceptionally clean....
The most important questions that need to be asked about contamination
are:  What company milled your flours?  What other Flours are milled at
that facility?...

#2280 From: tata4u6828@...
Date: Sat Sep 2, 2000 3:30 pm
Subject: Hamburger/Hot Dog Rolls - Delicious!
tata4u6828@...
Send Email Send Email
 
Hello All:

I just got done making these, they were easy and delicious.

Bonita


Hamburger or Hot Dog Buns
  This recipe comes to us from: Jane Conrad.

  Preheat oven to 400 degrees.

  Ingredients:
  3/4 cup rice flour
  1/4 cup potato starch
  1/2 cup tapioca starch
  2 teaspoon baking powder
  1/2 teaspoon xanthan gum
  1/2 teaspoon salt
  1 tablespoon sugar

  Mix above ingredients. In a separate bowl mix the following:

  2 eggs
  1/3 cup oil
  1/2 cup milk

  Mix wet ingredients with dry ingredients. Spray cookie sheet with pam and
then spray inside of muffin rings. Put 2 very large spoonfuls of batter in
each, make sure the rings aren't to close to each other. Sprinkle with sesame
seeds. and bake immediately for approx. 13-15 minutes, should get nice and
golden brown on top. Should get 5 buns out of it. You can double the recipe
and make a bigger batch, if you use them often. Don't undercook or they will
fall when cooling. Take out of muffin rings and let cool completely.

  Variation: add 1 cup grated cheddar cheese for a lovely cheese bun. For hot
dogs: add 1/4 - 1/2 teaspoon more of the xanthan gum to the batter, and on
greased cookie sheet, spoon batter in an oblong shape, about 5 inches long
(all depends on how big you want them), sprinkle sesame seeds, and bake
immediately. Let cool completely, wrap individually in saran wrap, and place
in a freezer bag and freeze. Take out whenever you need one. When their
thawed Usually microwave one for about 15-20 seconds, not to much, just to
warm them up.

#2281 From: miraclwipp@...
Date: Sun Sep 3, 2000 12:10 pm
Subject: Re: Simple GF/CF recepie for "Honey Graham Crackers"
miraclwipp@...
Send Email Send Email
 
I missed the cheese sauce can anyone please repeat it please.


Flo

#2282 From: Betsy Prohaska <prohaska@...>
Date: Sun Sep 3, 2000 5:57 pm
Subject: RE: Amaranth & Quinoa
prohaska@...
Send Email Send Email
 
Janice,
      This was very interesting, as well as, reassuring.  Thanks for taking
the time to send it to our group.  We all need to clear out of the "rice
mode" and look to other grains for nutrient purposes.
            Betsy

-----Original Message-----
From: jj-cupples [SMTP:jj-cupples@...]
Sent: Saturday, September 02, 2000 1:27 PM
To: GFCFKids@onelist.com; AUTISM-FBI; GFCFrecipes
Subject: [AUTISM-FBI] Amaranth & Quinoa


Interesting post from the Celiac listserv.

Janice in TX

------------------------------------------------------------------------

Date:    Fri, 1 Sep 2000 21:57:30 -0400
Subject: Amaranth & Quinoa

<<Disclaimer: Verify this information before applying it to your
situation.>>

The summer issue of The Celiac Disease Foundation(California)has an article
that might be of interest to anyone wondering if they should eat these
grains.  It is by Joan Wade the president of CDF. She writes:  ...I would
like to address Fact versus Myth as it pertains to the issues of growing,
harvesting, transpotation, milling and/or processing. Consider these Facts:
GROWING: In the growing process amaranth is normally rotated with corn and
soy.  Neither grain contains gluten.  Nu-World Amaranth, Inc is the largest
supplier of amaranth products in the U.S.  They are very aware of the
contaminationissue and their suppliers do not rotate the crops with grains
that contain gluten.  They have trucks that Transport only amaranth and a
mill that only mills amaranth.  Over 90% of the quinoa on the market is
grown in South America in regiona that do not grow wheat or other grains
that contain gluten.  Ancient Harvest Quinoa Corp. is the largest supplier
of quinoa in the U.S.  Their quinoa is grown in S.Amer., and they have
their own milling facility that is dedicated to the milling of quinoa
HARVESTING:  Since the growing season of most grains varies by several
weeks it is highly unlikely that a previous year's crop(of
wheat,barley,rye,spelt,kamut,or oats) would accidentally sprout in a field
or aramanth or quinoa and mature at the same time.
TRANSPORTATION:  ...the transportation system doesn't have designated
freight cars for gluten-free grains.  What prevents contamination that may
take place during transit is filtered out during the milling process...
MILLING:  In the milling process foreign particles and unwanted "other
grains" are removed by passing the grain through sieves, perforated
cylinders and disks, which are so accurate that they can segregate the
wheat kernels by size....I asked a farmer what the chances would be of
finding a wheat kernel in amaranthe that had been processed for milling,
his reply was "Probably one in a million."  ...Some plants mill only
rice,quinoa,soy, bean flour, or corn.  Most companies that manufacture
gluten-free products are aware that contamination is an issue with their
customers and source their flour from facilities that mill only gf flour.
PROCESSING:  All processing or packaging plants practice Safe Manufacturing
Practices that are established and monitored by the Food and Drug Admin.
All the plants that I have visited have been exceptionally clean....
The most important questions that need to be asked about contamination
are:  What company milled your flours?  What other Flours are milled at
that facility?...






Fighting For Our Children

#2283 From: tata4u6828@...
Date: Sun Sep 3, 2000 5:19 pm
Subject: Mock Cheese Recipe - NOT GOOD AT ALL!
tata4u6828@...
Send Email Send Email
 
The Mock Cheese Recipe is terrible!!!!!!  I even sampled it, at least not in
my opinion, and would not make it again.

  Hello everyone:

  I just made the recipe from Lisa Lewis's book for Mock Cheese.  It smells
  like "cheese salsa" and has a nice texture.  I was thinking about freezing
it
  and grating it for future pizza's.


  Thanks,
  Bonita

#2284 From: Thomas Eric Ost <toazty@...>
Date: Mon Sep 4, 2000 7:12 pm
Subject: Detoxification
toazty@...
Send Email Send Email
 
Please excuse the cross-posting.

The community working hypothessises are that autism may be caused by 1.
vaccination toxicity;
2. gluten intoxication and/or casein intoxication, and assumes the
opiate theory;
3. heavy metal toxicity;
4. salicylate toxicity; and or other
5. sensitivities.

That being said, while wandering the aisles at various health food
stores, I have seen varoius products claiming to "detoxify" the body, or
various systems within the body.

Has anyone out there tried any of these approaches?
If so, what did you try and how did it work?

Does anyone know of any studies on it?

#2285 From: "The Kramer Family" <nmkramer@...>
Date: Tue Sep 5, 2000 8:07 pm
Subject: Eliminating Guess Work
nmkramer@...
Send Email Send Email
 
> one of my many reasons for loving dr. stone is that he eliminates so much
of the guess work.

katie and all,

Earlier you mentioned that we may be sick of hearing about Dr. Stone.  Well,
I for one will never get sick of hearing a success story - never!  And even
for those listening in who could never see Dr. Stone, just hearing about his
approach may help them to find a practitioner who is using methods along his
lines, or at least help them search in the right direction, so as far as I
am concerned, keep talking - I appreciate it.

You mentioned that Dr. Stone has eliminated much of the guess work, and I
really think you hit a key point there.  Before finding our Dr. Boxer
(allergist) and Dr. Mercola, I was really lost.  While both are imperfect
(!) they have helped me to focus on the most important areas.  Maybe I'm in
the minority, but seeing Dr. Mercola has payed off for my daughter.  About a
month after first seeing him and beginning his diet, my daughter showed much
improved color.  Was it the diet, the supplemental oils, the individual
liquid minerals, the elimination of the multi-vitamin/mineral I had her on,
or elimination of certain foods?  I don't know.  Since that time (please
don't shoot me) I have to admit that getting her on a very low grain diet
has been extremely important for her sinus condition, and every time I give
her a bowl of rice she gets stuffed up, so I haven't given the low grain
approach up yet.  I've been told it's not an allergy, but rather a
sugar-related problem - ingest too much simple carbs and one's ability to
tolerate offending foods is worsened.  I've spent $$$ there over the last 2
years, so this hasn't been cheap, but, warts and all, he's a resource.  It
takes these practitioners PLUS my ideas to make things happen, though.  I
haven't found anyone whom I would trust enough to just sit back and do what
they say without doing some thinking and learning on my own.  And both of
these Drs. have prescribed a drug at my request.

I really think, though, that Mercola's therapists who practice the Total
Body Modification are the most helpful.  If those who haven't done so can
link up with some kind of energy medicine practitioner, especially if they
have more than one approach (i.e. if they have been trained in more than one
method), it might help eliminate the guess work even more.  I think, in
fact, this is the greatest weakness of everyone whom we've seen - they know
about the methods they were trained in but not the universe of
possiblilties, and unfortunately until you find the right approach you may
not make the progress you want to.

We had an interesting homeopathic (energy medicine) experience this July.
Based on muscle testing, the TBM practitioner announced that my daughter had
an amoeba in her gall bladder.  Note that this is not something that would
show up in a stool test, or perhaps any other test.  The TBM practitioner
muscle tested various antiparasitic remedies on Joan.  She ruled out black
walnut hull, which didn't surprise me - she's extremely allergic, and most
herbal remedies are impossible to use on her.  She ended up testing OK for
Artemesia Annua and she prepared a homeopathic version of the herb for her
to use.  She took this (3 drops of at bedtime with food) for nearly a month
and for the next few months she's supposed to take it for a few days during
the full moon.

Three days after beginning these drops a red raised blister-like patch
showed up on the inside of one of my daughter's arms, and when we saw the
TBM therapist again she said it was where the parasite toxins were leaving
her body.  This thing started to heal in the center and spread out by a ring
of tiny blisters.  It ended up being about 2 inches wide with most blister
activity at the edge, with occasional breakouts in the center also.  Towards
the end of the month long treatment it began to heal and it looks pink and
smooth right now.  I used peroxide on it, then neosporin, then lotromin, and
wonderful waterproof bandages that got us through swiming in public places
without any problems.  I suspect, though, that it would have eventually
healed without any medicine.

Because I had been reading emails from the homeodetox-talk group for over a
year, I was sort of prepared for this 'cleansing point', but seeing it
happen with my own two eyes was still amazing.  I sure wasn't expecting it.
Thanks to Barb (listmate) she was also taking intestinal/parasite related
lymphatic drainage homeopathic drops, and I wonder if this is why my
daughter had no behavioral reactions to the parasite drops.  I can't say
I've seen any big changes in my daughter, except her mood and willingness to
comply seems better - though as always that could be due to other things we
do.

Sorry so long, Mary K.

#2286 From: tata4u6828@...
Date: Wed Sep 6, 2000 1:28 pm
Subject: FRAZZLED!!!! - Kraft Products
tata4u6828@...
Send Email Send Email
 
Hello all:

I am trying to find out from the company if the Kraft "Good Seasons" Italian
salad dressing, this is the dry product, is Gluten/Casein Free.

I have placed numerous calls to the company to date.  My first call was "We
can't give any information over the phone but have a list of gluten free
products we can mail you".  Well, that's wonderful!!!!!  What parent is
looking to make a recipe one week from the date of calling???

I get the list and the product is not listed as being Gluten Free however, on
their list it states: "If a product you are interested in does not appear on
the list, it may still be appropriate for you to consume.  We recommend that
you base your decision on the ingredient line and your personal experience.
If you want to be conservative, assume that a source of gluten may be
present."
Anyone for a game of russian roulette ??? **SNIP**.

They suggested that I contact the American Dietetic Association....my
response was "What could they possible tell me about your product that you
being Kraft can't??

Can anyone help me out with this???

Bonita

#2287 From: Linda Reichert <4sweetp@...>
Date: Wed Sep 6, 2000 7:38 pm
Subject: Re: FRAZZLED!!!! - Kraft Products
4sweetp@...
Send Email Send Email
 
I have also tried to find info on this very same product, I think their
vagueness means they really dont want to say, LOL I got the same useless
list - glad to know their coffee filters are gf!!

I have used small amounts with Megan, she dips things in it and will eat it
where with out it she will not eat the item, has to have her "dip"

I use some questionable items with Megan because of her failure to thrive,
sometimes we need to cheat to get her to eat.

Please post if you hear, I just use it sparingly since I cant before sure,
if I get some energy back I will try to call them AGAIN!!

Linda

> From: tata4u6828@...
> Reply-To: AUTISM-FBI@egroups.com
> Date: Wed, 6 Sep 2000 12:28:25 -0500
> To: AUTISM-FBI@egroups.com
> Subject: [AUTISM-FBI] FRAZZLED!!!! - Kraft Products
>
>
> Hello all:
>
> I am trying to find out from the company if the Kraft "Good Seasons" Italian
> salad dressing, this is the dry product, is Gluten/Casein Free.
>
> I have placed numerous calls to the company to date.  My first call was "We
> can't give any information over the phone but have a list of gluten free
> products we can mail you".  Well, that's wonderful!!!!!  What parent is
> looking to make a recipe one week from the date of calling???
>
> I get the list and the product is not listed as being Gluten Free however, on
> their list it states: "If a product you are interested in does not appear on
> the list, it may still be appropriate for you to consume.  We recommend that
> you base your decision on the ingredient line and your personal experience.
> If you want to be conservative, assume that a source of gluten may be
> present."
> Anyone for a game of russian roulette ??? **SNIP**.
>
> They suggested that I contact the American Dietetic Association....my
> response was "What could they possible tell me about your product that you
> being Kraft can't??
>
> Can anyone help me out with this???
>
> Bonita
>
> Fighting For Our Children
>
>

#2288 From: devillierchoate@...
Date: Thu Sep 7, 2000 12:11 am
Subject: Kraft
devillierchoate@...
Send Email Send Email
 
I have a friend who I think still works for Kraft.  I emailed him to
see if he knows of someone else that might be able to help with Kraft
products.  I'll post a message when I get a reply.

Debbie

#2289 From: tata4u6828@...
Date: Wed Sep 6, 2000 9:00 pm
Subject: Re: Kraft-Debbie
tata4u6828@...
Send Email Send Email
 
Hey Debbie:

We would all LOVE YOU a lot if you can get this information for us!

Bonita,
Mother to Nicole Anne

#2290 From: MIchelle Pilafas <promom1@...>
Date: Thu Sep 7, 2000 9:57 pm
Subject: Re: Eliminating Guess Work
promom1@...
Send Email Send Email
 
Dear Mary:

Could you explain this blister patch your daughter had?  Could a child purify of
parasite toxins through us of diet only?  The reason I ask is that my son had a
rash I though looked alot like chicken pox.  Then, it had a (multiple)
reoccurence.  I made an appointment with Dr. Boxer to see my son next week.
Michelle

The Kramer Family wrote:

>
> > one of my many reasons for loving dr. stone is that he eliminates so much
> of the guess work.
>
> katie and all,
>
> Earlier you mentioned that we may be sick of hearing about Dr. Stone.  Well,
> I for one will never get sick of hearing a success story - never!  And even
> for those listening in who could never see Dr. Stone, just hearing about his
> approach may help them to find a practitioner who is using methods along his
> lines, or at least help them search in the right direction, so as far as I
> am concerned, keep talking - I appreciate it.
>
> You mentioned that Dr. Stone has eliminated much of the guess work, and I
> really think you hit a key point there.  Before finding our Dr. Boxer
> (allergist) and Dr. Mercola, I was really lost.  While both are imperfect
> (!) they have helped me to focus on the most important areas.  Maybe I'm in
> the minority, but seeing Dr. Mercola has payed off for my daughter.  About a
> month after first seeing him and beginning his diet, my daughter showed much
> improved color.  Was it the diet, the supplemental oils, the individual
> liquid minerals, the elimination of the multi-vitamin/mineral I had her on,
> or elimination of certain foods?  I don't know.  Since that time (please
> don't shoot me) I have to admit that getting her on a very low grain diet
> has been extremely important for her sinus condition, and every time I give
> her a bowl of rice she gets stuffed up, so I haven't given the low grain
> approach up yet.  I've been told it's not an allergy, but rather a
> sugar-related problem - ingest too much simple carbs and one's ability to
> tolerate offending foods is worsened.  I've spent $$$ there over the last 2
> years, so this hasn't been cheap, but, warts and all, he's a resource.  It
> takes these practitioners PLUS my ideas to make things happen, though.  I
> haven't found anyone whom I would trust enough to just sit back and do what
> they say without doing some thinking and learning on my own.  And both of
> these Drs. have prescribed a drug at my request.
>
> I really think, though, that Mercola's therapists who practice the Total
> Body Modification are the most helpful.  If those who haven't done so can
> link up with some kind of energy medicine practitioner, especially if they
> have more than one approach (i.e. if they have been trained in more than one
> method), it might help eliminate the guess work even more.  I think, in
> fact, this is the greatest weakness of everyone whom we've seen - they know
> about the methods they were trained in but not the universe of
> possiblilties, and unfortunately until you find the right approach you may
> not make the progress you want to.
>
> We had an interesting homeopathic (energy medicine) experience this July.
> Based on muscle testing, the TBM practitioner announced that my daughter had
> an amoeba in her gall bladder.  Note that this is not something that would
> show up in a stool test, or perhaps any other test.  The TBM practitioner
> muscle tested various antiparasitic remedies on Joan.  She ruled out black
> walnut hull, which didn't surprise me - she's extremely allergic, and most
> herbal remedies are impossible to use on her.  She ended up testing OK for
> Artemesia Annua and she prepared a homeopathic version of the herb for her
> to use.  She took this (3 drops of at bedtime with food) for nearly a month
> and for the next few months she's supposed to take it for a few days during
> the full moon.
>
> Three days after beginning these drops a red raised blister-like patch
> showed up on the inside of one of my daughter's arms, and when we saw the
> TBM therapist again she said it was where the parasite toxins were leaving
> her body.  This thing started to heal in the center and spread out by a ring
> of tiny blisters.  It ended up being about 2 inches wide with most blister
> activity at the edge, with occasional breakouts in the center also.  Towards
> the end of the month long treatment it began to heal and it looks pink and
> smooth right now.  I used peroxide on it, then neosporin, then lotromin, and
> wonderful waterproof bandages that got us through swiming in public places
> without any problems.  I suspect, though, that it would have eventually
> healed without any medicine.
>
> Because I had been reading emails from the homeodetox-talk group for over a
> year, I was sort of prepared for this 'cleansing point', but seeing it
> happen with my own two eyes was still amazing.  I sure wasn't expecting it.
> Thanks to Barb (listmate) she was also taking intestinal/parasite related
> lymphatic drainage homeopathic drops, and I wonder if this is why my
> daughter had no behavioral reactions to the parasite drops.  I can't say
> I've seen any big changes in my daughter, except her mood and willingness to
> comply seems better - though as always that could be due to other things we
> do.
>
> Sorry so long, Mary K.
>
> Fighting For Our Children

#2291 From: "The Kramer Family" <nmkramer@...>
Date: Thu Sep 7, 2000 6:18 pm
Subject: Italian Salad Dressing
nmkramer@...
Send Email Send Email
 
Just for fun, here's my...

Aunt Mary's Salad Dressing

1/2 Cup Mazola (no substitutes)
1/4 Cup Olive Oil
1/4 Cup Apple Cider Vinegar
1 tea garlic salt
3 tea sugar
Pinch Oregano

Yield 1 Cup.

Salt and pepper the lettuce, green pepper, cucumber, tomato, and onion and
tosses it all with the dressing before serving.

Now - you could use any oil, and if you used GF vinegar you'd have GFCF
salad dressing.  (I'm not sure about garlic salt, but pure garlic powder
plus salt would be the same flavor).

To make it yeast free, substitute lemon juice for the vinegar and skip the
sugar or try stevia.

Personally, I'd go with pure olive oil and use basil instead of oregano, but
as my aunt is a purist I thought I'd give her recipe without mods.  If you
can find a shaker bottle, or save an old salad dressing bottle, this will
keep in the refrigerator.

Mary K.

#2292 From: tata4u6828@...
Date: Fri Sep 8, 2000 11:13 am
Subject: Recipe for Italian Dressing (dry mix)???
tata4u6828@...
Send Email Send Email
 
Hi Everyone:

Does anyone have a recipe for a dry Italian dressing mix, just like or close
to "Good Season's, like the Kraft product?

Desperate for this for recipe's.......

Thanks,
Bonita

#2293 From: "The Kramer Family" <nmkramer@...>
Date: Fri Sep 8, 2000 3:33 pm
Subject: Re: Eliminating Guess Work
nmkramer@...
Send Email Send Email
 
----- Original Message -----
From: MIchelle Pilafas <promom1@...>
To: <AUTISM-FBI@egroups.com>
Sent: Thursday, September 07, 2000 4:57 PM
Subject: Re: [AUTISM-FBI] Eliminating Guess Work


>
> Dear Mary:
>
> Could you explain this blister patch your daughter had?  Could a child
purify of
> parasite toxins through us of diet only?  The reason I ask is that my son
had a
> rash I though looked alot like chicken pox.  Then, it had a (multiple)
> reoccurence.  I made an appointment with Dr. Boxer to see my son next
week.
> Michelle
>
> The Kramer Family wrote:
>
> >
> > > one of my many reasons for loving dr. stone is that he eliminates so
much
> > of the guess work.
> >
> > katie and all,
> >
> > Earlier you mentioned that we may be sick of hearing about Dr. Stone.
Well,
> > I for one will never get sick of hearing a success story - never!  And
even
> > for those listening in who could never see Dr. Stone, just hearing about
his
> > approach may help them to find a practitioner who is using methods along
his
> > lines, or at least help them search in the right direction, so as far as
I
> > am concerned, keep talking - I appreciate it.
> >
> > You mentioned that Dr. Stone has eliminated much of the guess work, and
I
> > really think you hit a key point there.  Before finding our Dr. Boxer
> > (allergist) and Dr. Mercola, I was really lost.  While both are
imperfect
> > (!) they have helped me to focus on the most important areas.  Maybe I'm
in
> > the minority, but seeing Dr. Mercola has payed off for my daughter.
About a
> > month after first seeing him and beginning his diet, my daughter showed
much
> > improved color.  Was it the diet, the supplemental oils, the individual
> > liquid minerals, the elimination of the multi-vitamin/mineral I had her
on,
> > or elimination of certain foods?  I don't know.  Since that time (please
> > don't shoot me) I have to admit that getting her on a very low grain
diet
> > has been extremely important for her sinus condition, and every time I
give
> > her a bowl of rice she gets stuffed up, so I haven't given the low grain
> > approach up yet.  I've been told it's not an allergy, but rather a
> > sugar-related problem - ingest too much simple carbs and one's ability
to
> > tolerate offending foods is worsened.  I've spent $$$ there over the
last 2
> > years, so this hasn't been cheap, but, warts and all, he's a resource.
It
> > takes these practitioners PLUS my ideas to make things happen, though.
I
> > haven't found anyone whom I would trust enough to just sit back and do
what
> > they say without doing some thinking and learning on my own.  And both
of
> > these Drs. have prescribed a drug at my request.
> >
> > I really think, though, that Mercola's therapists who practice the Total
> > Body Modification are the most helpful.  If those who haven't done so
can
> > link up with some kind of energy medicine practitioner, especially if
they
> > have more than one approach (i.e. if they have been trained in more than
one
> > method), it might help eliminate the guess work even more.  I think, in
> > fact, this is the greatest weakness of everyone whom we've seen - they
know
> > about the methods they were trained in but not the universe of
> > possiblilties, and unfortunately until you find the right approach you
may
> > not make the progress you want to.
> >
> > We had an interesting homeopathic (energy medicine) experience this
July.
> > Based on muscle testing, the TBM practitioner announced that my daughter
had
> > an amoeba in her gall bladder.  Note that this is not something that
would
> > show up in a stool test, or perhaps any other test.  The TBM
practitioner
> > muscle tested various antiparasitic remedies on Joan.  She ruled out
black
> > walnut hull, which didn't surprise me - she's extremely allergic, and
most
> > herbal remedies are impossible to use on her.  She ended up testing OK
for
> > Artemesia Annua and she prepared a homeopathic version of the herb for
her
> > to use.  She took this (3 drops of at bedtime with food) for nearly a
month
> > and for the next few months she's supposed to take it for a few days
during
> > the full moon.
> >
> > Three days after beginning these drops a red raised blister-like patch
> > showed up on the inside of one of my daughter's arms, and when we saw
the
> > TBM therapist again she said it was where the parasite toxins were
leaving
> > her body.  This thing started to heal in the center and spread out by a
ring
> > of tiny blisters.  It ended up being about 2 inches wide with most
blister
> > activity at the edge, with occasional breakouts in the center also.
Towards
> > the end of the month long treatment it began to heal and it looks pink
and
> > smooth right now.  I used peroxide on it, then neosporin, then lotromin,
and
> > wonderful waterproof bandages that got us through swiming in public
places
> > without any problems.  I suspect, though, that it would have eventually
> > healed without any medicine.
> >
> > Because I had been reading emails from the homeodetox-talk group for
over a
> > year, I was sort of prepared for this 'cleansing point', but seeing it
> > happen with my own two eyes was still amazing.  I sure wasn't expecting
it.
> > Thanks to Barb (listmate) she was also taking intestinal/parasite
related
> > lymphatic drainage homeopathic drops, and I wonder if this is why my
> > daughter had no behavioral reactions to the parasite drops.  I can't say
> > I've seen any big changes in my daughter, except her mood and
willingness to
> > comply seems better - though as always that could be due to other things
we
> > do.
> >
> > Sorry so long, Mary K.
> >
> > Fighting For Our Children
>
>
> Fighting For Our Children
>
>

#2294 From: "The Kramer Family" <nmkramer@...>
Date: Fri Sep 8, 2000 3:43 pm
Subject: Rash
nmkramer@...
Send Email Send Email
 
Michelle,

I know that my daughter had hives for a while (nut and seeds were the cause)
and Dr. Boxer spread the skin out over the red spot and the color went away,
and he said this meant it was a hive - that other bumps would retain their
color.  The hives never had blisters and ooze, though.  (Good news - she's
been eating pumpkin seeds without hives now for a few weeks! ! !)

I've heard some strange stories about skin breakouts - that some kids get a
few chicken pox when the virus is reactiviated or eliminated, for example.
Others have described skin outbreaks that ooze and say they are a sign of
detox.  This thing on my daughter's arm was new to me - it was oval shaped,
ended up being about 2 inches across, was raised at first then flattened out
and had had little blisters inside of it and along the perimeter.  I should
have taken a picture!  It was quite redish, almost like a burn would be.

As to whether diet could eliminate parasite toxins, I suppose it could.
Stop challenging the body with the wrong foods and it might heal itself.
Especially if you include antiparasitic herbs, garlic, etc. in the diet.
I'm no expert :(  But Hulda Clark's books talk a lot about the parasites she
recommends to eliminate parasites.  I can't use her protocol, as my daugher
is allergic to most herbs, or quickly becomes allergic to them.

Mary K.

> Could you explain this blister patch your daughter had?  Could a child
purify of
> parasite toxins through us of diet only?  The reason I ask is that my son
had a
> rash I though looked alot like chicken pox.  Then, it had a (multiple)
> reoccurence.  I made an appointment with Dr. Boxer to see my son next
week.
> Michelle

#2295 From: "The Kramer Family" <nmkramer@...>
Date: Fri Sep 8, 2000 5:56 pm
Subject: Re: ABMD group
nmkramer@...
Send Email Send Email
 
> Can you please tell me how to get on this list? I'm having trouble finding
it.

Sorry about that - I rushed that email off without double checking my names.
Also sorry I didn't answer sooner - we took a couple
of mini vacations, and when my daughter is home all day (summer vacation)  I
don't get much time on the computer.

ABMD, which stands for Autism BioMedical Discussion group, can be reached at
www.egroups.com.  Search for ABMD and sign up.

I receive the emails but don't really read them - too much mail.  But if I
want to find out about something, I'll search the emails
on my disk for mention of the topic I'm interested in.  I have heard that
egroups has a search function, which would in theory allow
you to search their archives, but I also heard once that it only searches
the last 500 messages, so it's not really good for those
of us looking for an obscure topic.  Anyway, my point is that even if you
can't read all the mail you may still benefit from having
the emails around.

The other group that went bananas was Autism-Mercury.  I was keeping up with
them but gave up and now have almost 5000 messages
unread.

What would be really great is if somehow the collected wisdom of these
groups could be provided somewhere.  Outside of reading for
months, I don't know how to do that.  You can post a question and you may or
may not get it answered.  I would advise reposting a
question if the answers you get aren't sufficient, and be as clear and
concise as possible.  It's not as much of a problem in this
group with fewer members, but these mega-groups have a lot of noise.

Mary K.

#2296 From: Brian Watts <rbwatts@...>
Date: Sat Sep 9, 2000 12:20 am
Subject: Thanks for Resonses to previous request, and results of Kirsten's food allergy tests.
rbwatts@...
Send Email Send Email
 
Dear GFCF parents:

      Many thanks for the responses to our appeals for ice-cream substitutes
and a source for Dari-Free.  We have not yet tried these as we were waiting
for the results of tests on Kirsten for dietary allergies.  The results
have just arrived!  We had both a Basic-10 Foods and 92-Foods Comprehensive
IgG tests done at Great Plains Lab (Dr. William Shaw)and have discussed the
results with Dr.Shaw.  We waited for these results in order to be sure of
which alternatives could be safely substituted for those staple foods that
Kirsten had been receiving.

      The results were a shocker!  As well as reacting significantly or
severely to all gluten & casein containing foods (wheat, rye, barley, oats,
corn, milk, cheeses), Kirsten also reacts to almonds, green & pinto beans,
cashew, cinnamon, cocoa, grapes, lettuce, mushrooms, mustard, onion, pea,
peanut, rice, safflower, sesame, soybean, mung bean sprouts, cane sugar,
tomato, and both baker's and brewer's yeast.  It is evident that we must
avoid all legume vegetables and nuts as a number of these are on the list.

     Her diet is going to need a major overhaul!

     Does anybody else have experience with such a wide variety of
allergies?  As luck would have it, Kirsten is especially hungry these days
and our options for between-meal snacks have just been cut significantly.

Thanks for any help

Brian & Fiona

#2297 From: "Jay" <Jay@...>
Date: Mon Sep 11, 2000 1:25 pm
Subject: Fw: Italian Salad Dressing
Jay@...
Send Email Send Email
 
Subject: Italian Salad Dressing

From: "The Kramer Family" <nmkramer@...>
Subject: Italian Salad Dressing

Just for fun, here's my...

Aunt Mary's Salad Dressing

1/2 Cup Mazola (no substitutes)
1/4 Cup Olive Oil
1/4 Cup Apple Cider Vinegar
1 tea garlic salt
3 tea sugar
Pinch Oregano

Yields 1 Cup.

Salt and pepper the lettuce, green pepper, cucumber, tomato, and onion and tosses it all with the dressing before serving.

Now - you could use any oil, and if you used GF vinegar you'd have GFCF salad dressing.  (I'm not sure about garlic salt, but pure garlic powder plus salt would be the same flavor).

To make it yeast free, substitute lemon juice for the vinegar and skip the sugar or try stevia.

Personally, I'd go with pure olive oil and use basil instead of oregano, but as my aunt is a purist I thought I'd give her recipe without modifications.  If you can find a shaker bottle, or save an old salad dressing bottle, this will keep in the refrigerator.

Mary K.




#2298 From: "Jay" <Jay@...>
Date: Mon Sep 11, 2000 1:52 pm
Subject: Vanilla flavoring and sugar recipes
Jay@...
Send Email Send Email
 
From: Angela Lowry <artangel@...>
Subject: vanilla

Vanilla extract

1 pint GF liquor, will affect flavor, rum, potato vodka
2 vanilla beans
1 pretty bottle with top

Slit bean lengthwise and flatten out, scrap seeds and pod pith into bottle or container.  Place bean pod in container, fill with liquor.  Let rest for two weeks before using.  Makes great gifts to cooking friends. Use like commercial extract.  You can make in quantity by increasing recipe.

Vanilla sugar

2 vanilla beans or more
4 cups granulated sugar

Cut beans into 1/2" segments.  Put one cup sugar in blender or food processor and blend together until beans are very fragmented.  Stir into rest of sugar.  Store in airtight container for at least two weeks before using.  Use in coffee, baking.  Make stronger by adding more beans and aging longer.

To store whole beans, freeze in airtight bag, store in layers in sugar, or pack whole beans vertically into mason jars and fill with liquor.  Be sure to use the sugar or liquor for flavoring.

Vanilla glycerin

3 vanilla beans
1 pint food quality glycerin

Slit bean lengthwise and flatten out, scrap seeds and pod pith into bottle or container.  Place bean pod in container, fill with glycerin.  Let rest for two weeks before using.  Use like commercial extract.  You can make in quantity by increasing recipe.

Sugar free Vanilla flavoring

2 vanilla beans
1 pint water
1 ice cube tray

Blend water and beans together well, pour into ice cube tray, freeze and store in baggie.  Use in recipes like extract but be sure to reduce liquids to account for the water.


#2299 From: "The Kramer Family" <nmkramer@...>
Date: Mon Sep 11, 2000 2:02 am
Subject: Re: Thanks for Resonses to previous request, and results of Kirsten's food allergy tests.
nmkramer@...
Send Email Send Email
 
Hi Brian and Fiona,

Sorry to hear that your daughter is 'allergic to everything'.   I noticed
that you listed no meats, so is she OK with most meats?  My daughter also
has tested bad for many of the same foods (almonds, cashew, cinnamon, cocoa,
grapes, mushrooms, mustard, pea, peanut, rice, soybean, cane sugar, tomato,
and yeast) as well as others.  If your daughter is mustard allergic, then
she can't have any sausage or hot dogs - they all contain mustard (with the
possible exception of Italian Sausage).  My solution to this problem was to
home cook everything from pure sources (no additives) and keep things as
simple as possible.  Rather than make meat balls with herbs, etc. I just
make them from meat, garlic powder and salt.  She seems to do fine with a
variation on Betsy's Cream of Kale soup (I use pureed kale, leeks and
brocolli with pure chicken broth).  She eats broccoli sprouts that I get at
the local Cub Foods grocery store.  Pears work OK for her.

I wonder what blood type your daughter is, and whether the 'right' beans for
her type would be OK.  Are you familiar with this blood type business?  For
some reason the blood type advocates think that beans are very important to
tailor to blood type.  Dr. Mercola's site has a links page, which points to
the Eat Right 4 Your Type page (www.mercola.com).

I think it's very important to let her eat when she's hungry, but 'snacks'
are really just more of the regular meal food choices at our house due to
her limitations.  It's a problem, especially when away from home.  Dried
sheets of Nori seaweed has been useful as an emergency snack for us.
Digestive enzymes really helped my daugher - have you tried them?

Good luck and keep asking, Mary K.

#2300 From: "Andrei Lyashenko" <alyashenko@...>
Date: Tue Sep 12, 2000 3:53 am
Subject: RE: Thanks for Resonses to previous request, and results of Kirsten's food allergy tests.
alyashenko@...
Send Email Send Email
 
Mary,

What digestive enzymes do you use?

Andrei

-----Original Message-----
From: The Kramer Family [mailto:nmkramer@...]
Sent: Sunday, September 10, 2000 7:02 PM
To: AUTISM-FBI@egroups.com
Subject: Re: [AUTISM-FBI] Thanks for Resonses to previous request, and
results of Kirsten's food allergy tests.


Hi Brian and Fiona,

Sorry to hear that your daughter is 'allergic to everything'.   I noticed
that you listed no meats, so is she OK with most meats?  My daughter also
has tested bad for many of the same foods (almonds, cashew, cinnamon, cocoa,
grapes, mushrooms, mustard, pea, peanut, rice, soybean, cane sugar, tomato,
and yeast) as well as others.  If your daughter is mustard allergic, then
she can't have any sausage or hot dogs - they all contain mustard (with the
possible exception of Italian Sausage).  My solution to this problem was to
home cook everything from pure sources (no additives) and keep things as
simple as possible.  Rather than make meat balls with herbs, etc. I just
make them from meat, garlic powder and salt.  She seems to do fine with a
variation on Betsy's Cream of Kale soup (I use pureed kale, leeks and
brocolli with pure chicken broth).  She eats broccoli sprouts that I get at
the local Cub Foods grocery store.  Pears work OK for her.

I wonder what blood type your daughter is, and whether the 'right' beans for
her type would be OK.  Are you familiar with this blood type business?  For
some reason the blood type advocates think that beans are very important to
tailor to blood type.  Dr. Mercola's site has a links page, which points to
the Eat Right 4 Your Type page (www.mercola.com).

I think it's very important to let her eat when she's hungry, but 'snacks'
are really just more of the regular meal food choices at our house due to
her limitations.  It's a problem, especially when away from home.  Dried
sheets of Nori seaweed has been useful as an emergency snack for us.
Digestive enzymes really helped my daugher - have you tried them?

Good luck and keep asking, Mary K.


Fighting For Our Children

#2301 From: "JANINE THETARD" <janinethetard@...>
Date: Tue Sep 12, 2000 12:53 pm
Subject: hi from south africa
janinethetard@...
Send Email Send Email
 
It has taken me over a month to get my computor fixed and still when ever I
am about to sent of a message it freezes...

So a belated thanks to those who inquired on the birth.

Caleb was born on the 10th Augest and is healthly and noisy!!!

Joshua is starting the ABA home program next month and I wondered if anyone
has been doing the program or has anything to say on the subject???

Also I have tried joining Autism-Mercury but think I may have the wrong
address... Mary , you mentioned unsubscribing, do you by any chance have the
subscribing address???

Also I would like to change my hotmail to my e-mail but havn't a clue who to
send the info too ...HELP!!!

Is anyone using DMG ( dimenthelglycene) Joshua has been taking them for a
couple of months and we just took him off them recently due to
unavailability and all of the sudden he seems to be doing better??? but with
Joshua that could probably be just about anything. We have also started him
on the homeopathic secretin so who knows???

we'll speak soon again.. gotta run before my computor decides to freeze
again

lotsa luv

JANINE


_________________________________________________________________________
Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

Share information about yourself, create your own public profile at
http://profiles.msn.com.

#2302 From: "The Kramer Family" <nmkramer@...>
Date: Tue Sep 12, 2000 2:46 pm
Subject: Re: Thanks for Resonses to previous request, and results of Kirsten's food allergy tests.
nmkramer@...
Send Email Send Email
 
> What digestive enzymes do you use?
>
> Andrei

Hi, My daughter uses Creon prescription enzyme.  I've finally leaned to
adjust the amount according to how much she eats and whether the BMs are
coming frequently enough, but generally she gets 2 or 2.5 Creon 20's per
day.  I've recently reduced it - maybe she needs less?  Dr. Mercola
prescribes this.  All enzymes helped her, but Creon helped the most both for
stool formation and general behavior.

Mary K.

#2303 From: "The Kramer Family" <nmkramer@...>
Date: Tue Sep 12, 2000 2:43 pm
Subject: Re: hi from south africa
nmkramer@...
Send Email Send Email
 
JANINE,

Congrats on Caleb!  You've got your hands full now!

To change email names, go to www.egroups.com and sign in, click on 'my
profile', then click on 'change email address'

For Autism-Mercury, go to  http://www.egroups.com/group/Autism-Mercury and
sign in (upper right hand side of page) and join there.

Good luck with your new baby,

Mary K.

#2304 From: ndow32408@...
Date: Tue Sep 12, 2000 1:54 pm
Subject: mercury list
ndow32408@...
Send Email Send Email
 
Here is the subcription info for the Autism- Mercury List.
It has been quite busy lately.
Nancy

Community email addresses:
   Post message: Autism-Mercury@onelist.com
   Subscribe:    Autism-Mercury-subscribe@onelist.com
   Unsubscribe:  Autism-Mercury-unsubscribe@onelist.com
   List owner:   Autism-Mercury-owner@onelist.com

Shortcut URL to this page:
   http://www.onelist.com/community/Autism-Mercury
------------------------------------------------------------------------

#2305 From: Margie8688@...
Date: Tue Sep 12, 2000 7:43 pm
Subject: Re: FRAZZLED!!!! - Kraft Products
Margie8688@...
Send Email Send Email
 
i don't know about good seasons but " wishbone italian " is gluten and casein
free.

#2306 From: kmachef@...
Date: Tue Sep 12, 2000 10:24 pm
Subject: Re: hi from south africa
kmachef@...
Send Email Send Email
 
janine:

we did the ABA program for our son and it really did help.  we started it
when he was 27 months old and completely non-verbal.  we did it 24-28 hours
per week for 2 1/2 years and believe me, i was ready for it to be over!  it's
very invasive having people in your home every day (we did it 7 days a week)
but i really think kevin benefitted from it.  i found it was easier to run
errands while he was in a session.  quite often in the beginning of the
program he would cry a LOT, so it was better for me to not be there to hear
it.  hang in there and give it a good shot.  this program doesn't work for
everyone, and i just knew in my heart when it was time to stop.

as for the DMG, my son did better off it.  not everyone benefits from it, so
if you think he's better off it, by all means don't start it up again.  just
because it works for some kids doesn't mean it's for everyone.

how exciting that you have a new baby!  best wishes.

katie

#2307 From: Betsy Prohaska <prohaska@...>
Date: Thu Sep 14, 2000 11:05 pm
Subject: DAN-San Diego
prohaska@...
Send Email Send Email
 
This may miss some, but if you're on your way to San Diego this weekend,
are you interested in meeting for breakfast on Sunday?  I'll be staying at
the Town and Country, but for my room ask for Victoria Martin (my roommate
who made the reservation).  We could have a "Meet the face behind the
screen" breakfast.  Email me privately or call my room for more details.  I
get in LATE Friday night.
          Betsy

Messages 2278 - 2307 of 7786   Oldest  |  < Older  |  Newer >  |  Newest
Add to My Yahoo!      XML What's This?

Copyright © 2010 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines NEW - Help