Hi Everyone, I have had a busy week of ups and downs being in he hospital with Emily. As I read families updates I feel I should not complain, and I guess I...
I feel so out of the loop. Although we have decided to not treat with Chemo anymore, I still have so many questions. In a post someone said, "I think we are...
Dear Anastasia, Even though my daugters diagnose is ATRT, I feel just like you, there is no one that has excatly the same "problems" as she has. But I think...
Anastasia, I know I feel the same way also, that is why I joined this group. I could not get answers that I needed my just reading the upsates of the journals...
Anastasia and Julie, I remember how you feel. As you look for answers to your questions you are only left with more questions. My daughter Kate (the one...
Dear Anastasia and Julie, God, sometimes I am having the worst and most lonely day and then I read an email to remind me we are not alone! I completely relate...
Danielle, I will be praying for your family today. MRI are scary things. I do not think I will ever get used to the feeling in my stomach I have until I hear...
Ben had his MRI on Wednesday. I know I shouldn't jump for joy, but, there was no sign of the tumour. SO I AM JUMPING. The doctors are cautiously optimistic....
Hope is what keeps us going! Glad things are going so well. Kelley m/o Collin ... From: Marilyn Gallagher [mailto:marilyng@...] Sent: Friday, October...
Bravo for Ben...I too am jumping for JOY as Sean had a clear MRI yesterday too! He is now 4 years from diagnosis! There is always hope. Danielle McCauley Mom...
Way to go Sean and Ben! It does my heart well to hear good news. Karrie Kate's Mama DanielleRB@... wrote: Bravo for Ben...I too am jumping for JOY as Sean...
So happy for all of you with good news. I hope it infects to us who has MR coming. Heard today about a great discovery for treating children with cancer. I do ...
So glad to hear about the clear MRI s. This give me hope for Emily. She is having a tough time with this chmo drug she is taking a home. a lot of vomiting....
Anastasia, I saw your post and wanted to write to let you know you are not alone. My son, Pierce, was diagnosed at 4 weeks old with an ATRT that was in the...
Hi to all, I do not know if any of you follow my daughters website, but on Sunday we went to the emeregency room and through a Spinal MRI we found Emily has a...
Nooooooo! Not another inocent child... I am so sorry for you and your family. I will be praying. Ps, Where can I find your website. Maria from Sweden ... ...
Oh Julie that is so unfair and not right and I want to scream and jump up and down. I only wish I knew the words to say that could truly offer you comfort...
Julie, I'm sorry to hear of Emily's new tumor and her decline physically in that she can't use her legs. I'm glad that hospice is going to talk with you about...
I want to thank you for all the prayers everybody is praying for our family. It has only been 2 days since Emily has been home. I was nervous at frist and...
Hi Stacey, I put a link to carters website in the folder our kids website. I am glad you got to go on your trip. Your boys are so cute. Emily is doing...
I just read the update on Emily's site. I know this has to be so hard. The thought of losing Collin seems to be looming over me everyday. We had an MRI...
As my time without Emily grows nearer I have been turning to the Lord and I have been putting some thoughts down and I would like to share them with you, this...
My son Ben was diagnosed with a ATRT 3 months ago, he has had a total resection, and 2 clear MRI's. We are still in the midst of a very aggresive Chemo, we...
I need links to all of your childrens website so I can put a link on Emilys friends page. I already have carters, but I need the rest love, Julie [Non-text...
Thanks Julie. Here is Collin's: http://www3.caringbridge.org/tx/collin/ How are all of you doing? Kelley ... From: Julie Cook [mailto:just4juls@...] Sent:...
