Hi, i'm not really sure how these support groups work, but was given the site by our nurse. My son Nicky was diagnosed 4 weeks ago with AT/RT, and after...
Many of you may or may not know of our our daughter, Mattea. She was diagnosed with ATRT in July 2006. We obtained one of the last openings in THE PROTOCOL...
Hi All - we have been on pins and needles watching a new "spot" that appeared on Zoe's MRI on Sep 16th. Possibilities were: radiation-related changes OR the...
IT'S WITH A VERY HEAVY AND BROKEN HEART, THAT I SAY NICKY EARNED HIS ANGEL WINGS AT 8:15PM OCT 8, 2008.HE WAS ONLY 13 MONTHS OLD. WE BROUGHT NICKY HOME AFTER...
I agree with the statement made about not agreeing with the diagnosis! I sent you an email to your yahoo account, but to confirm the point, please don't take...
The TV station in Hattiesburg, MS did a short report on Cole and his mom, Terry (my sister). Its amazing how much was edited from all the film they made!...
Hi Chrissy - My name is Paige Walsh, and my son, Charlie was diagnosed in March '07 with an ATRT. We has just shy of his 3rd birthday. We are 20 months post...
Welcome new member, suzsudo <KCJoeNSuz@...> who joined saying their son that was diagnosed with AT/RT in March of 2007. Does your son have a carepage?...
Amifostine protects against cisplatin-induced ototoxicity in children with average-risk medulloblastoma Fouladi M, Chintagumpala M, Ashley D, Kellie S,...
Hello to everyone - I haven't posted yet but I'm really glad this group is going again - thanks Michelle. Just wanted to share that Zoe finished her last...
Special thanks to Shaine's parents for posting this information on their website (http://www.caringbridge.org/visit/shainelynn) U of C scientists grow disease...
It is with great sadness that I share with you the passing of Grayson Ketab on Tuesday, August 5th. Grayson had ATRT. Our hearts are with his parents, Leslie...
I'd like to start a discussion about some of the different options for relapse that other parents might know about. I think this kind of information is...
This has been a tough week for our ATRT families. Our hearts go out to the families of Caroline Howard www.carepages.com GICKA42107 and Natalie Cunningham...
Hello, My name is Michelle Kees and I am the mother of Andrew Padfield. Andrew was diagnosed with ATRT in August 2007 and is in week #36 of 51 on the...
Hi I see a lot of names I recognize. Seems like without the updates being sent automatically, a lot of us have lost touch with the other Rhabdoid Kids...
Welcome to the AT/RT group. I am sorry for your circumstances that bring you here and I am sorr that I do not know your name. When you feel ready I would...
Please welcome Paracat22 from Arkansas Welcome and I am sorry for your need to be here. This is a very small group related to AT/RTs with just alittle...
I have typed this on microsoft word while waiting for the phoneline at my aunt's to open up (she has dialup internet), so I apologize for the copy-pasting. I'm...
Please welcome Michelle and her daughter Kaitlyn to the list. Michelle, I am so sorry for your need to be here. Obviously I have read your websites (at least...
Our oncologist is strongly suggesting we do conformal radiation on Caden. He doesn't believe she has a very good chance without it, because of her positive...
Hi, everyone tomorrow is the monthly meeting where a lot of city officials gather, and a lot of youth organizations will also be there, say a little prayer for...
I have updated the website today with some new programs. www.emilycookfoundation.bravehost.com<http://www.emilycookfoundation.bravehost.com/> Love, Julie ...
Good Evening everyone, I just wanted to let you know I am going to take a break from updating the websites for awhile. Thing here are moving so fast I can not...
Sorry I mixed the foundations address and my address correct address is Emily Cook Foundation 4757 North 24th Street Omaha, NE 68111 402 932 2977 402 451 3360...
Just a reminder come out onto Ames street Saturday, April 2nd at 10 am, from 30th Street to 42nd street for the human prayer chain. Also do not forget about...
Hi, Bradley made the news. Bradley has been on hospice since December. Sherri left with him to go Washington DC today, she had enough gas to get there How...
remember to say a prayer for us today if you can not be at any of the public prayer places. God Bless You All. Love, The Cooks [Non-text portions of this...
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