Our oncologist is strongly suggesting we do conformal radiation on
Caden. He doesn't believe she has a very good chance without it,
because of her positive CSF-results (although our last test showed
NO CELLS PRESENT!!) and the aggressive type of tumor she has. He
says that although she is young, conformal radiation is safer than
stereotactic and that she may suffer neurological damage, but the
risk is outweighed by the need for the treatment.

Do any of you have kids (young or not) who've been damaged by
radiation, or who've had good results from conformal? Is it really
safer than stereotactic? Would you take the risk?

Caden is 18-months old, and would be two when we started radiation
if we go on this plan. She had a very large (orange-size) cerebellar
ATRT that was pressing on her brainstem. Her CSF was positive for
cancer cells, which I believe made her very high risk when combined
with the chromosomal abnormality present in the tumor (chromosome 22
test results came back this week - it is abnormal in the tumor).
She's on a nasty chemo regimin (etopophos+cisplatin for cycles 1 and
2, and vincristine+etopophos+cytoxan for cycles 3 and 4. Doses are
doubled in cycles 2 and 4 (as compared to what they were in 1 and
3). cycle 5 will be high-dose melphalan+carboplatin followed by stem-
cell rescue. She's also getting triple-intrathecal therapy twice
each cycle (except possibly cycle 5)) but the doctor doesn't think
it's going to be enough to cure her.

Thanks in advance for any help offered

Chelsea, Marlee, and Caden

Hi, everyone tomorrow is the monthly meeting where a lot of city officials
gather, and a lot of youth organizations will also be there, say a little prayer
for me, because this is the hand out I will be passing out.  Rest assured
Rhabdoiod families I will not use your families story without your permission. 
I will either contact you, asking you if I could tell your story, or If you want
your story told, please contact me.  I really feel I have to do this.  In the
last month to young boys were killed 4 blocks to the east of me, and 6 blocks
west of me.  I can not take it any longer.  One boy laid out in the street for
quite awhile before anyone found him, my heart aches so much for his mother!!!! 
As Michael says you can not stir up the community if your not prepared to lead
them.  This is my idea, lets hope it makes a difference.
Love to all I'll let you know how it goes.

Julie
Partners in Friendship
Have your organization or Youth Group partner with the Emily J. Cook
Foundation and develop friendships along the way.

A representative from the Emily Cook Foundation will come visit with your group
with approximately 3 stories of Rhabdoid families.  Each story is tailored to
fit
the average age of the group.  After stories have been discussed, and questions
answered we will do a project for the family.

Project #1- Make homemade cards encouraging the family.

Project # 2- Make a craft for the families, which could include..fake flowers,
since cancer patients can not have real flowers, flower butterfly's for an
angel's family.

Project # 3- The organization may choose to raise items needed for one of our
Rhabdoid Care Paks.

Project # 4- The organization may choose to grant a wish.

This program was developed, because we as a community must take a stand
against the violence in our neighborhood.  Each day I think of the two boys who
were murdered at the corners of my neighborhood.  It is our obligation to our
youth to teach love not hate, however we must provide them that opportunity.
The only opportunity I have is to use Rhabdoid.  I know it changes your life
forever.  I know sick children, and siblings of sick children would love to get
a
stack of cards in the mail.  I want to provide to the youth in my community the
opportunity to show the love they have.
My dream is someday that someone will put the gun down, not for fear of
getting caught but because they care about another human.

For Rhabdoid Stories:
www.rhabdoidkids.com<http://www.rhabdoidkids.com/>
www.emilycookfoundation.bravehost.com<http://www.emilycookfoundation.bravehost.c\
om/>




[Non-text portions of this message have been removed]

I have updated the website today with some new programs.

www.emilycookfoundation.bravehost.com<http://www.emilycookfoundation.bravehost.c\
om/>

Love,
Julie

[Non-text portions of this message have been removed]

Good Evening everyone,

I just wanted to let you know I am going to take a break from updating the
websites for awhile.  Thing here are moving so fast I can not keep up, just when
I think I am ready to update the foundations website, something new pops up.  I
have been approached by several companies wanting to do things, they think this
is a foundation ran by a host of people, and when I tell them it is just me,
they tell me I need to get a paid staff, and they will help me, so that is what
I am going to do.  HOWEVER, While I was talking with Sherri (Bradley Mother) on
the phone tonight, she really put it into perspective for me.  We were talking
about funeral arrangements and pain meds, and I just wanted to jump on the next
plane to be there with her and her family.  She had to ask to many times are you
still there.  I was just in awe at how strong she is, and thought to myself how
I must have sounded when Emily was going through her final journey, because I
would also have ask, are you still there...where did you go.  So my most
important job, before I take the staff money or even get a staff is to get to MN
in May.  Have the bands ready to be shared with the families, and have my
auction items ready.  That is what I will be working on.  So if you do not get a
update, it is because I am trying to raise money for bands, and for the Emily
Cook Foundation trip in MN, Now I will have to be all over the city to do it,
and I only have apox. one month to do it in.  Pray for me.  You know any of you
can reach me by calling me at 402 451 3360.  If any of you would like to help
the Foundations address is:4757 North 24th Street, Omaha, Ne 68111  Do NOt
forget about Mekala's Bake sale.  Her and friends are making bracelets to sale,
it is this friday 300-630 and sat 900 to 1130.
Love to all,
Julie

[Non-text portions of this message have been removed]

Sorry I mixed the foundations address and my address correct address is
Emily Cook Foundation
4757 North 24th Street
Omaha, NE 68111
402 932 2977
402 451 3360 Home
----- Original Message -----
From: Julie Cook<mailto:just4juls@...>
To: Amy Churchill<mailto:Amy.L.Churchill@...> ; Amy
F<mailto:Afoust@...> ; Arlene
Almarez<mailto:arlene.almarez@...> ; ATRT<mailto:ATRT@yahoogroups.com>
; AZ & Nay<mailto:azthomas1@...> ; Ben's Daddy<mailto:tom@...> ;
bernadette<mailto:bernadette@...> ; brenda
bostwick<mailto:kbbostwick@...> ; Chelsea
Carr<mailto:chelsea.carr@...> ;
chrisb<mailto:chrisb@...> ; Cindy<mailto:hoffs_5@...> ;
csjustplayin<mailto:csjustplayin@...> ; Dawn & Darrell
Anderson<mailto:naughty@...> ; Garo
Derderian<mailto:galanicamax@...> ; Justin, Cora
Korus<mailto:jikorus@...> ; Kim
Spratlen<mailto:Kim@...> ; Lenny and Vicki
Capponi<mailto:capponi@...> ; Laura
Enenbach<mailto:lfleiss1@...> ; Linda Lloyd<mailto:loydomaha@...> ;
Lisa Cook<mailto:Lisa75_2@...> ; Lisa KG<mailto:lgochenour@...> ;
Lisa Pavelka<mailto:pavelkalbj@...> ; Lisa S<mailto:jeepingrl@...>
; Lori Tostenson<mailto:ittybit_lo@...> ; LuAnn
Anglo<mailto:luannanglo@...> ; Mary Dishman<mailto:zdish@...> ;
michelleabeck<mailto:michelleabeck@...> ; Patty
DeBerry<mailto:Patty.DeBerry@...> ; Randi
Bonczynski<mailto:randiski@...> ;
reneewattlesbell<mailto:reneewattlesbell@...> ; Sabrina
Krajicek<mailto:SabrinaKrajicek@...> ; Shelli<mailto:shellimm@...> ;
Smiley0327<mailto:Smiley0327@...> ; Todd
Dickman<mailto:barbtoddra1@...> ; Tracy
Mentzer<mailto:Tmentzer@...> ; Tim & Misty
O<mailto:TimandMisty@...> ; Tara
Dahlem<mailto:Tara.Dahlem@...>
Sent: Thursday, March 31, 2005 4:19 PM
Subject: [ATRT] events


Just a reminder come out onto Ames street Saturday, April 2nd  at 10 am, from
30th Street to 42nd street for the human prayer chain.

Also do not forget about the Bake Sale on Friday 8th and Sat. 9th at 4542 North
36th Ave. For Noah and Bradley.

We will be collecting money for our trip expenses, We are going to Winthrop, MN
on May 13 thru 15th.  We will be representing The Emily Cook Foundation at Dawn
Andersons fundraiser for Noah and Bradley.  We also want to collect enough money
to pay expense of any Rhabdoid families who want to be at the fundraiser.  We
are also going to have video conferences, and ECF would like to help with
expenses.
A 501c3 number is  available  upon request, and on your donation, please note
"MN Trip Expenses."
Emily Cook Foundation
4757 North 36th Ave
Omaha, NE  68111
402 932 2977 Foundation
402 457 3360 Home
Thanks to ALL
Have a good weekend
Love,
Julie

[Non-text portions of this message have been removed]



--------------------------------------------------------------------------------
Yahoo! Groups Links

   a.. To visit your group on the web, go to:
   http://groups.yahoo.com/group/ATRT/<http://groups.yahoo.com/group/ATRT/>

   b.. To unsubscribe from this group, send an email to:
   ATRT-unsubscribe@yahoogroups.com<mailto:ATRT-unsubscribe@yahoogroups.com>

   c.. Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service<http://docs.yahoo.com/info/terms/>.



[Non-text portions of this message have been removed]

Just a reminder come out onto Ames street Saturday, April 2nd  at 10 am, from
30th Street to 42nd street for the human prayer chain.

Also do not forget about the Bake Sale on Friday 8th and Sat. 9th at 4542 North
36th Ave. For Noah and Bradley.

We will be collecting money for our trip expenses, We are going to Winthrop, MN
on May 13 thru 15th.  We will be representing The Emily Cook Foundation at Dawn
Andersons fundraiser for Noah and Bradley.  We also want to collect enough money
to pay expense of any Rhabdoid families who want to be at the fundraiser.  We
are also going to have video conferences, and ECF would like to help with
expenses.
A 501c3 number is  available  upon request, and on your donation, please note
"MN Trip Expenses."
Emily Cook Foundation
4757 North 36th Ave
Omaha, NE  68111
402 932 2977 Foundation
402 457 3360 Home
Thanks to ALL
Have a good weekend
Love,
Julie

[Non-text portions of this message have been removed]

Photo E-mail   Play
slideshow<http://photos.msn.com/Viewing/Album.aspx?PST=8nK2AN1B!1JkYezkeWQp2eLkT\
FybgKsbRYbSRyeJfthwxas2vqr44t7WfI*cwoNMqc4vPql*biqXafObvNxvZw%24%24> | Download
images
<http://photos.msn.com/viewing/Photos.aspx?pi_Type=SlideshowTask&Task=Download&s\
tppData=&pi_ImagesOnly=1&Folder=nBuRgwTGIGiVKWz!tWcvyXfIDimbgJj0oKRqw765zIE%24&U\
ser=r1TFiPhDLuektpPqT6RcciArSTXZb6kJ&pi_NoLogin=1>
      
<http://photos.msn.com/Viewing/Album.aspx?PST=8nK2AN1B!1JkYezkeWQp2eLkTFybgKsbRY\
bSRyeJfthwxas2vqr44t7WfI*cwoNMqc4vPql*biqXafObvNxvZw%24%24>


This MSN Photo E-mail slideshow will be available for 30 days.
To share high quality pictures with your friends and family using MSN Photo
E-mail, join MSN<http://g.msn.com/0PHenus1/29>.

[Non-text portions of this message have been removed]

Hi,
Bradley made the news.  Bradley has been on hospice since December.  Sherri left
with him to go Washington DC today, she had enough gas to get there How she was
getting home she did not know yet at the time of our conversation.  I am
collecting Walmart cards for Bradley and Noah.  Please get them to me or send
them to the address listed on their  websites.  Sherri is ready for what ever
the Doctor may tell her.  We all need to be praying for her, and her family. 
Sherri let me know that with walmart cards she can get whatever she needs, even
gas.  I know I have not been sending out many updates, and have not updated
website as much, that is because we have started using the phones, and are
really working on getting some financial backing since the 501c3 number is ready
to go and accept all donations.
http://www.cbs59.com/story.cfm?func=viewstory&storyid=1745<http://wwwcbs59.com/s\
tory.cfm?func=viewstory&storyid=1745>
Love,
Julie

[Non-text portions of this message have been removed]

remember to say a prayer for us today if you can not be at any of the public
prayer places.

God Bless You All.

Love,
The Cooks

[Non-text portions of this message have been removed]

Awareness Dinner have beed found, and are up on the foundation's site.

Got you Lisa P.  You should never hide that beautiful face!!!!!!!!!!!!!!

Love,
Julie
www.emilycookfoundation.bravehost.com<http://www.emilycookfoundation.bravehost.c\
om/>


[Non-text portions of this message have been removed]

Pass this information on Please
www.caringbridge.org/ne/emilycook<http://www.caringbridge.org/ne/emilycook>
www.emilycookfoundation.bravehost.com<http://www.emilycookfoundation.bravehost.c\
om/>
March 11, 2005 8am
Memorial Park (across from UNO)
Unite our prayers around the World.

Every City and Every Country will unite in prayer on March 11, 2005 at 8am.
Everyone will be praying for Rhabdoid Families, We will be praying for Peace,
Hope, Love, Healing, strength, and a cure.
Special prayers will go out for the Tuzzo family, this is the first anniversary
of Anthony's passing.



After balloon release all are welcome to join us for refreshments and a bible
study at
Afresh Anointing Church
4757 North 24th St
Pastor, Vanessa Ward




[Non-text portions of this message have been removed]

Added to new pages to web site, Awareness Dinner Pictures, and Hope and Healing,
3 more pages to go

Love,
Julie
www.emilycookfoundation.bravehost.com<http://www.emilycookfoundation.bravehost.c\
om/>

[Non-text portions of this message have been removed]

Good Morning Everyone,

I am getting ready to do some major updating on the foundations
web site tomorrow. As I was looking at the Rhabdoid slide show,  I looked at the
faces of these children just a few, many more could be added to it.  There are
times I get discouraged
wondering if I will ever make a difference in finding a cure for this disease. 
Then I am remembered of something Holli, Erin's Mom wrote in her Journal, God
will ultimately decide.  She is right.  I am going to do the best that I can and
leave the rest to God.

Some of the decisions I have been facing is how am I going to take the
foundation to the next level, I am know  that I am going to keep promoting and
raising money for the Hopes and Heroes fund. Before and After June.  I have some
opportunities to have the web site create revenue for the Emily Cook Foundation,
but I think I will use this and have the money to go to Hopes and Heroes, that
way we are raising money all year. Not just with Big Events.
Also some people have expressed to me I should get a colored band for Emily Cook
Foundation,
I may choose to do that, but I will also do one for Hopes and Heroes.  Right now
in
the real near future I will be working on building a true support system for
families.  I feel I have been lacking in this.  I have decided to add a website
for siblings.  This website will be password protected, and it will be done
before the week
is out. I am also going to add a prayer, healing page.  I will be adding an
awareness page
this will be a page dedicated to how we are making the world know about
Rhabdoid.
I will be less involved in the Community Enrichment Arm.  I will do Education
Night, and help with the Medical Library, and pediatric hospice, but I will
leave
the rest to Michael and his team.
I have had a lot of people and business who have expressed they want to help
families right now,
make a difference right now.  This we can do, we can help families with bills,
encouragement, prayers,
and I know one person who since we are scattered all over the world wants to
bring us together, so
we can all meet, This is the type of stuff that I want to focus on.

I need people to help me brainstorm ideas we can create money every month so we
can provide material support to families, shipping needed items while they are
in hospital stays to them, purchasing gift cards, maybe we could do a function
and have people bring items and gift cards, kind of like when people ask for
canned goods.

One thing I was reminded tonight as I watched the children's faces in that show,
It is not just
physically healing, but spiritual healing as well.  I must never forget about
the spiritual reasons why
I do what I do.

Thank You for listening, and all of you who fished.
Love,
Julie

[Non-text portions of this message have been removed]

March 11, 2005 8am
Memorial Park (across from UNO)
Unite our prayers around the World.

Every City and Every Country will unite in prayer on March 11, 2005 at 8am.
Everyone will be praying for Rhabdoid Families, We will be praying for Peace,
Hope, Love, Healing, strength, and a cure.
Special prayers will go out for the Tuzzo family, this is the first anniversary
of Anthony's passing.



After balloon release all are welcome to join us for refreshments and a bible
study at
Afresh Anointing Church
4757 North 24th St
Pastor, Vanessa Ward

Those of you who are not in Omaha, and have not planned anything for this day in
your city or country please do.  Please pass this Email to everyone in your
address book, and make sure you take a whole vacation day so you can join us at
the Church.

As always,
Love,
Julie
www.caringbridge.org/ne/emilycook<http://www.caringbridge.org/ne/emilycook>
www.emilycookfoundation.bravehost.com<http://www.emilycookfoundation.bravehost.c\
om/>

[Non-text portions of this message have been removed]

On March 11 at 8:00am we are gathering in the largest park in Omaha to pray for
Rhabdoid Families, and to celebrate Anthony Tuzzo's Life.  Renee(Dexter's Aunt)
Karrie Bomar, and Sharles and Anthony's family would like to do the same in
their city.  I am annoucing this at the Awareness Dinner, although my reporter
friends know of this and will cover it I am sure.  I need your help in getting
the word out to other families, after I get home from the church tonight I will
be posting it on the Rhabdoid discussion board.  I am also going to contact
people I know in Chicago.  I will be taking prayer request of families also,
since I will be inviting some prayer worriers to this function.  We will be
releasing balloons also.  Any suggestions we can work together on this please
feel free to contact me.

Love,
Julie

[Non-text portions of this message have been removed]

Sorry forgot the link

www.emilycookfoundation.bravehost.com<http://www.emilycookfoundation.bravehost.c\
om/>

click on Rhadoid slide show

[Non-text portions of this message have been removed]

Hi everyone new slideshow is up.  I could not use some of the photos of
families, because they would not work so my solution to that is I will print the
pictures and display them around the dinner area.  This slide show is slower and
I guess imight like it better, tell me what you think?  Also this slideshow will
stay on the website and if you want your childs picture on it, please email it
to me I hope to add new ones every week.  Next week I will be adding more pages
to the site, an about us, prayer page, Family of the month or week, something to
that effect and an awareness page how we are getting the word out.  Lots to do

Bye for now,

Love,
Julie

[Non-text portions of this message have been removed]

Julie,
I wanted to let you know about a new website called PBT Angels (pediatric brain
tumor angels).  This is a site just for parents whose children with brain tumors
are in hospice or have died.  The site is
http://health.groups.yahoo.com/group/PBTAngels/<http://health.groups.yahoo.com/g\
roup/PBTAngels/>.  You can join from the website or send a post to
PBTAngels-subscribe@yahoogroups.com<mailto:PBTAngels-subscribe@yahoogroups.com>

This was an asked for group from Pediatric Brain Tumors.  Some felt like they
could not really vent their emotions for fear of affecting new one adversely. 
Others just didn't want to hear about Wish Trips and birthdays and such.  Right
now it is a small group but we just opened it up the beginning of this month.  I
was talking to a mom whose 18 month old died of a GBM last year.  They have also
started a foundation in their girl's name.  I thought perhaps it might be a
place for you to share all you do too.

Please feel free to pass this address along to anyone who might benefit.  The
main moderator of the group is Elizabeth Bennett.  Her son had a medullo dx
before he was one.  They went to St. Jude.  He recurred and died in Nov 2003. 
Elizabeth is an amazing woman.  You can see Bennett's Butterfly Fund at -
http://www.bennettsbluebutterfly.org/index.htm<http://www.bennettsbluebutterfly.\
org/index.htm>  You might wish to check out the Butterfly Blessing pages and the
Butterfly Angel Pages.

I think I did try to send an invitation off list to Heather and to Anastasia. 
If this seems like it would be a good place for you too please feel free to
join.  I am not sure if you got them as it was not from this list and may have
fallen into junk mail.

Prayers to Ben and to Noah.

With Hope,
Loice



   ----- Original Message -----


   I am asking for you to pray for Ben, he is having so much pain, and giving him
the amount of meds they have to give him is toxic for his body.  This breaks my
heart.  The bowens are asking that we pray for complete wisdom when dealing with
the pain, and meds.  They have not slept in days.

   Please pray for Noah.  They have not updated the web site, buy by reading the
guestbook we know they did not get good news from the MRI and are planning to go
home soon.  It is a hard thing to walk out of the hospital for the last time. 
Please pray for strength and peace for their family.

   Thank you all for praying

   Love, Julie

   [Non-text portions of this message have been removed]





   Yahoo! Groups Links









[Non-text portions of this message have been removed]

I am asking for you to pray for Ben, he is having so much pain, and giving him
the amount of meds they have to give him is toxic for his body.  This breaks my
heart.  The bowens are asking that we pray for complete wisdom when dealing with
the pain, and meds.  They have not slept in days.

Please pray for Noah.  They have not updated the web site, buy by reading the
guestbook we know they did not get good news from the MRI and are planning to go
home soon.  It is a hard thing to walk out of the hospital for the last time. 
Please pray for strength and peace for their family.

Thank you all for praying

Love, Julie

[Non-text portions of this message have been removed]

I sure will be praying for you.  Long after the 18th. I love the pictures, thank
you.
Love,
Julie
   ----- Original Message -----
   From: Heather Cooperman<mailto:cooprulz04@...>
   To: ATRT@yahoogroups.com<mailto:ATRT@yahoogroups.com>
   Sent: Tuesday, February 15, 2005 3:44 PM
   Subject: [ATRT] Asking for prayers


   Hello to All

   While I know most prayers are a call for a child, I am
   asking for you all to pray for me.  It's been 15
   months since Riley's death and nearly 8 months that I
   have been separated from her father.  Friday the 18 we
   will sit down to a mediation to end our marriage.  I
   filed for the divorce, too many things have occured
   for there to be a repair between us.  I won't talk
   badly of my X, I can only reassure you all that this
   is the wisest most powerful decision I have ever made.
   I will be battling for my financial, personal and
   emotional freedom from this man.  It has always been
   my AT/RT family that has helped me thru the hardest 3
   years of my life, I am asking for your support now
   too.

   With gratitude and love
   Heather

   >

   __________________________________________________
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   Tired of spam?  Yahoo! Mail has the best spam protection around
   http://mail.yahoo.com<http://mail.yahoo.com/>

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------------------------------------------------------------------------------
   Yahoo! Groups Links

     a.. To visit your group on the web, go to:
     http://groups.yahoo.com/group/ATRT/<http://groups.yahoo.com/group/ATRT/>

     b.. To unsubscribe from this group, send an email to:
    
ATRT-unsubscribe@yahoogroups.com<mailto:ATRT-unsubscribe@yahoogroups.com?subject\
=Unsubscribe>

     c.. Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service<http://docs.yahoo.com/info/terms/>.



[Non-text portions of this message have been removed]

Heather,



You are dealing with soooo much. I will pray for you for strength and your X
that he remain respectful & fair in the proceedings.



May you feel GODs arms around you at this difficult time.



Kelley



-----Original Message-----
From: Heather Cooperman [mailto:cooprulz04@...]
Sent: Tuesday, February 15, 2005 3:45 PM
To: ATRT@yahoogroups.com
Subject: [ATRT] Asking for prayers



Hello to All

While I know most prayers are a call for a child, I am
asking for you all to pray for me.  It's been 15
months since Riley's death and nearly 8 months that I
have been separated from her father.  Friday the 18 we
will sit down to a mediation to end our marriage.  I
filed for the divorce, too many things have occured
for there to be a repair between us.  I won't talk
badly of my X, I can only reassure you all that this
is the wisest most powerful decision I have ever made.
I will be battling for my financial, personal and
emotional freedom from this man.  It has always been
my AT/RT family that has helped me thru the hardest 3
years of my life, I am asking for your support now
too.

With gratitude and love
Heather

>

__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com <http://mail.yahoo.com>





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[Non-text portions of this message have been removed]

Hello to All

While I know most prayers are a call for a child, I am
asking for you all to pray for me.  It's been 15
months since Riley's death and nearly 8 months that I
have been separated from her father.  Friday the 18 we
will sit down to a mediation to end our marriage.  I
filed for the divorce, too many things have occured
for there to be a repair between us.  I won't talk
badly of my X, I can only reassure you all that this
is the wisest most powerful decision I have ever made.
  I will be battling for my financial, personal and
emotional freedom from this man.  It has always been
my AT/RT family that has helped me thru the hardest 3
years of my life, I am asking for your support now
too.

With gratitude and love
Heather

>

__________________________________________________
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Thank God........I am so glad I have some good news to share at the Dinner.

Love,
Julie
   ----- Original Message -----
   From: Kelley Canada<mailto:kcanada@...>
   To: 'ATRT@yahoogroups.com'<mailto:'ATRT@yahoogroups.com'>
   Sent: Tuesday, February 15, 2005 2:03 PM
   Subject: RE: [ATRT] Slide show


   Looks great Julie,



   I will try to get you some pics of Collin by himself.



   By the way, thanks for checking on Collin. I was waiting till the Cyber
   knife doc viewed the scans, but the radiologist said that they are stable or
   even a little better!



   Yea!



   I'll talk to you later. Swamped with work.  I also want to send you some
   stuff for the events you are doing.



   -----Original Message-----
   From: Julie Cook [mailto:just4juls@...]
   Sent: Tuesday, February 15, 2005 1:42 PM
   To: Amy Churchill; ATRT; brenda bostwick; Brenda stomberg; Cindy; Kim
   Spratlen; Lenny and Vicki Capponi; csjustplayin; chrisb; Lisa Pavelka;
   michelleabeck; Patty DeBerry; reneewattlesbell; Tara Dahlem; Todd Dickman
   Subject: [ATRT] Slide show



   Hi,
   Put the slide show on web site I am still working on it however and I would
   like to get more pictures, so if you do not see your child's picture and
   would like it there please email me some pictures, I welcome them all.

   Tell me what you think, and how can I make it better?
  
http://www.emilycookfoundation.bravehost.com/show.html<http://www.emilycookfound\
ation.bravehost.com/show.html>
  
<http://www.emilycookfoundation.bravehost.com/show.html<http://www.emilycookfoun\
dation.bravehost.com/show.html>>
  
<http://www.emilycookfoundation.bravehost.com/show.html<http://www.emilycookfoun\
dation.bravehost.com/show.html>
  
<http://www.emilycookfoundation.bravehost.com/show.html<http://www.emilycookfoun\
dation.bravehost.com/show.html>> >

   Love, Julie

   [Non-text portions of this message have been removed]






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[Non-text portions of this message have been removed]

Looks great Julie,



I will try to get you some pics of Collin by himself.



By the way, thanks for checking on Collin. I was waiting till the Cyber
knife doc viewed the scans, but the radiologist said that they are stable or
even a little better!



Yea!



I'll talk to you later. Swamped with work.  I also want to send you some
stuff for the events you are doing.



-----Original Message-----
From: Julie Cook [mailto:just4juls@...]
Sent: Tuesday, February 15, 2005 1:42 PM
To: Amy Churchill; ATRT; brenda bostwick; Brenda stomberg; Cindy; Kim
Spratlen; Lenny and Vicki Capponi; csjustplayin; chrisb; Lisa Pavelka;
michelleabeck; Patty DeBerry; reneewattlesbell; Tara Dahlem; Todd Dickman
Subject: [ATRT] Slide show



Hi,
Put the slide show on web site I am still working on it however and I would
like to get more pictures, so if you do not see your child's picture and
would like it there please email me some pictures, I welcome them all.

Tell me what you think, and how can I make it better?
http://www.emilycookfoundation.bravehost.com/show.html
<http://www.emilycookfoundation.bravehost.com/show.html>
<http://www.emilycookfoundation.bravehost.com/show.html
<http://www.emilycookfoundation.bravehost.com/show.html> >

Love, Julie

[Non-text portions of this message have been removed]






Yahoo! Groups Sponsor



ADVERTISEMENT

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phealth/S=1705061104:HM/EXP=1108583062/A=2532114/R=2/SIG=12kl5ki1n/*http:/cl
k.atdmt.com/NFX/go/yhxxxnfx0020000014nfx/direct/01/&time=1108496662013972>


<http://view.atdmt.com/NFX/view/yhxxxnfx0020000014nfx/direct/01/&time=110849
6662013972>



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[Non-text portions of this message have been removed]

Hi,
Put the slide show on web site I am still working on it however and I would like
to get more pictures, so if you do not see your child's picture and would like
it there please email me some pictures, I welcome them all.

Tell me what you think, and how can I make it better?
http://www.emilycookfoundation.bravehost.com/show.html<http://www.emilycookfound\
ation.bravehost.com/show.html>

Love, Julie

[Non-text portions of this message have been removed]

Good afternoon everyone,

I am writing to tell you of a letter campaign Anthony Tuzzo's Grandma is writing
to Oprah.  Those of you who have a close loved one with Rhaboid, probably
already saw it in the Rhabdoid discussion board, and those of you who are
following our stories thru the website, I want to encourage you to write a
letter also.  You have been affected by this disease, some way also.

Sharles Dennehy, Anthony's Aunt has said she will accept the Email stories and
she will forward them on to Oprah.  Her email address is
sdennehy@...<mailto:sdennehy@...>

Thanks,
Love, Julie
www.caringbridge.org/ne/emilycook<http://www.caringbridge.org/ne/emilycook>
www.emilycookfoundation.bravehost.com<http://www.emilycookfoundation.bravehost.c\
om/>

[Non-text portions of this message have been removed]

HI Julie-
Please include your address.....  I will be praying for all these wonderful
things to come to you but I am sure that they need to know where to go.
Love
Heather

Julie Cook <just4juls@...> wrote:
Hi everyone,

The stress of trying this pull this thing together is trying to creep into me. 
I know that God really has it in his hands, but I do need your prayers most of
all.  I have a lot of things that are needed, and no way of filling the need
only with faith that some how the Lord will provide. Here is what is needed to
put on the awareness dinner.

15 days to awareness dinner night, 10 days(I believe) to Education night. OH MY
Gosh, sometimes I wonder what I have gotten myself into. If I can pull next week
off I will know I can do anything. I will not be home for three days. I have
service tonight, I have a class all day tomorrow , and then Sunday school and
Church on Sunday.
I know I need to update the donations website, which I may be able to do tonight
after bedtime, if I drink enough coffee to stay awake until my children will go
to sleep. I figured that I will post a list of needs on here, and maybe someone
can help. I only have two ladies, and God helping me, put this together so we
are working really hard. I still need ink, and felt, or some kind of paper we
can cover caulk board with to post stories on. We also need table cloths, and
paper products. The menu is spaghetti, salad, bread, and cake. We need salad,
dressings, hamburger, bread, and cake. We also need people to serve the food,
cook the food, and help me put together my presentations. If you can not help,
please pray that we will get what we need, Prayer works, we all know that.

With next week coming and $500 worth of bills due, and nothing really to feed
everyone, and Education night to oversee, I will just trust in the Lord he will
send these things our way.

One a good note:
Omaha World Hearld will be doing a story on the Emily Cook Foundation. More
information to follow.

Love,
Julie



[Non-text portions of this message have been removed]


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[Non-text portions of this message have been removed]

Hi everyone,

The stress of trying this pull this thing together is trying to creep into me. 
I know that God really has it in his hands, but I do need your prayers most of
all.  I have a lot of things that are needed, and no way of filling the need
only with faith that some how the Lord will provide. Here is what is needed to
put on the awareness dinner.

15 days to awareness dinner night, 10 days(I believe) to Education night. OH MY
Gosh, sometimes I wonder what I have gotten myself into. If I can pull next week
off I will know I can do anything. I will not be home for three days. I have
service tonight, I have a class all day tomorrow , and then Sunday school and
Church on Sunday.
I know I need to update the donations website, which I may be able to do tonight
after bedtime, if I drink enough coffee to stay awake until my children will go
to sleep. I figured that I will post a list of needs on here, and maybe someone
can help. I only have two ladies, and God helping me, put this together so we
are working really hard. I still need ink, and felt, or some kind of paper we
can cover caulk board with to post stories on. We also need table cloths, and
paper products. The menu is spaghetti, salad, bread, and cake. We need salad,
dressings, hamburger, bread, and cake. We also need people to serve the food,
cook the food, and help me put together my presentations. If you can not help,
please pray that we will get what we need, Prayer works, we all know that.

With next week coming and $500 worth of bills due, and nothing really to feed
everyone, and Education night to oversee, I will just trust in the Lord he will
send these things our way.

One a good note:
Omaha World Hearld will be doing a story on the Emily Cook Foundation. More
information to follow.

Love,
Julie



[Non-text portions of this message have been removed]

Julie,

Please tell me which photo is yours so that I may vote.


Thanks!
Christy

  In loving memory of
Jared Graham Masoner
10/22/00 - 02/14/02

----- Original Message -----
   From: Julie Cook
   To: Amy Churchill ; ATRT ; bernadette ; brenda bostwick ; Brenda stomberg ;
Stacy S ; kelly F ; christy H ; Molly D ; christy b ; erin f ; Jess W ; justine
b ; jamie r ; lisa svec ; beth ; jenn F ; Sarah e ; kristy s ; sheryl yost ;
sara f ; angel P ; jenni allen ; annie ; Cindy ; csjustplayin ; Gail Rice ; Kim
Spratlen ; lil bit ; Lenny and Vicki Capponi ; Lisa Pavelka ; Lori Tostenson ;
LuAnn Anglo ; michelle ; Michelle Carmicheal ; michelleabeck ; Patty DeBerry ;
Tara Dahlem ; Todd Dickman
   Sent: Tuesday, February 08, 2005 10:28 AM
   Subject: [ATRT] Emily in photo contest


   I forgot I put the girls in a photo contest vote for them please
http://parenthood.com/photo_contest.html<http://parenthood.com/photo_contest.htm\
l> what ever we win goes to the foundation

   love,
   Julie

   [Non-text portions of this message have been removed]


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[Non-text portions of this message have been removed]

I forgot I put the girls in a photo contest vote for them please
http://parenthood.com/photo_contest.html<http://parenthood.com/photo_contest.htm\
l> what ever we win goes to the foundation

love,
Julie

[Non-text portions of this message have been removed]