Good Morning Everyone,

I am getting ready to do some major updating on the foundations
web site tomorrow. As I was looking at the Rhabdoid slide show, I looked at the
faces of these children just a few, many more could be added to it. There are
times I get discouraged
wondering if I will ever make a difference in finding a cure for this disease.
Then I am remembered of something Holli, Erin's Mom wrote in her Journal, God
will ultimately decide. She is right. I am going to do the best that I can and
leave the rest to God.

Some of the decisions I have been facing is how am I going to take the
foundation to the next level, I am know that I am going to keep promoting and
raising money for the Hopes and Heroes fund. Before and After June. I have some
opportunities to have the web site create revenue for the Emily Cook Foundation,
but I think I will use this and have the money to go to Hopes and Heroes, that
way we are raising money all year. Not just with Big Events.
Also some people have expressed to me I should get a colored band for Emily Cook
Foundation,
I may choose to do that, but I will also do one for Hopes and Heroes. Right now
in
the real near future I will be working on building a true support system for
families. I feel I have been lacking in this. I have decided to add a website
for siblings. This website will be password protected, and it will be done
before the week
is out. I am also going to add a prayer, healing page. I will be adding an
awareness page
this will be a page dedicated to how we are making the world know about
Rhabdoid.
I will be less involved in the Community Enrichment Arm. I will do Education
Night, and help with the Medical Library, and pediatric hospice, but I will
leave
the rest to Michael and his team.
I have had a lot of people and business who have expressed they want to help
families right now,
make a difference right now. This we can do, we can help families with bills,
encouragement, prayers,
and I know one person who since we are scattered all over the world wants to
bring us together, so
we can all meet, This is the type of stuff that I want to focus on.

I need people to help me brainstorm ideas we can create money every month so we
can provide material support to families, shipping needed items while they are
in hospital stays to them, purchasing gift cards, maybe we could do a function
and have people bring items and gift cards, kind of like when people ask for
canned goods.

One thing I was reminded tonight as I watched the children's faces in that show,
It is not just
physically healing, but spiritual healing as well. I must never forget about
the spiritual reasons why
I do what I do.

Thank You for listening, and all of you who fished.
Love,
Julie

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