Julie,
I wanted to let you know about a new website called PBT Angels (pediatric brain
tumor angels). This is a site just for parents whose children with brain tumors
are in hospice or have died. The site is
http://health.groups.yahoo.com/group/PBTAngels/<http://health.groups.yahoo.com/g\
roup/PBTAngels/>. You can join from the website or send a post to
PBTAngels-subscribe@yahoogroups.com<mailto:PBTAngels-subscribe@yahoogroups.com>

This was an asked for group from Pediatric Brain Tumors. Some felt like they
could not really vent their emotions for fear of affecting new one adversely.
Others just didn't want to hear about Wish Trips and birthdays and such. Right
now it is a small group but we just opened it up the beginning of this month. I
was talking to a mom whose 18 month old died of a GBM last year. They have also
started a foundation in their girl's name. I thought perhaps it might be a
place for you to share all you do too.

Please feel free to pass this address along to anyone who might benefit. The
main moderator of the group is Elizabeth Bennett. Her son had a medullo dx
before he was one. They went to St. Jude. He recurred and died in Nov 2003.
Elizabeth is an amazing woman. You can see Bennett's Butterfly Fund at -
http://www.bennettsbluebutterfly.org/index.htm<http://www.bennettsbluebutterfly.\
org/index.htm> You might wish to check out the Butterfly Blessing pages and the
Butterfly Angel Pages.

I think I did try to send an invitation off list to Heather and to Anastasia.
If this seems like it would be a good place for you too please feel free to
join. I am not sure if you got them as it was not from this list and may have
fallen into junk mail.

Prayers to Ben and to Noah.

With Hope,
Loice



----- Original Message -----


I am asking for you to pray for Ben, he is having so much pain, and giving him
the amount of meds they have to give him is toxic for his body. This breaks my
heart. The bowens are asking that we pray for complete wisdom when dealing with
the pain, and meds. They have not slept in days.

Please pray for Noah. They have not updated the web site, buy by reading the
guestbook we know they did not get good news from the MRI and are planning to go
home soon. It is a hard thing to walk out of the hospital for the last time.
Please pray for strength and peace for their family.

Thank you all for praying

Love, Julie

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