Just wanted to wish you a good night sleep Danielle and all the best
tomorrow.
Maria
Olivia 7, ATRT Brain


>From: DanielleRB@...
>Reply-To: ATRT@yahoogroups.com
>To: ATRT@yahoogroups.com
>Subject: Re: [ATRT] re:protocol
>Date: Wed, 13 Oct 2004 10:19:38 EDT
>
>Dear Anastasia and Julie,
>
>God, sometimes I am having the worst and most lonely day and then I read an
>email to remind me we are not alone! I completely relate to how you feel.
>Sean's treatment plan was quite different from what I believe is the
>current
>expected protocal (3 rounds of chemo, stem cell transplant and then three
>rounds
>of high dose chemo with transplant back, then followed by 6 weeks of 3-D
>Conformal radiation to the brain only).
>
>He is pretty profoundly disabled at this point (gtube fed, nonverbal,
>visually impaired, nonambulatory) that I often feel like the families out
>there who
>have kids who survived cancer (even brain tumors) don't really relate to
>what
>we are dealing with...I think at the end of the day I have to find some
>kind of
>Traumatic Brain Injury clinic because the issues Sean faces are really as a
>result of that...
>
>I am praying for your family and more specifically for a little peace for
>you. Suffice it to say that I understand and relate.
>
>Sean's MRI is tomorrow...here is to another sleepless night and hope for
>good
>news!
>
>Regards,
>
>Danielle McCauley
>Mom of Sean and Connor
>Sean was born 1/11/00 - dx 11/29/00 - MRI tomorrow...
>www.seanmccauley.com
>
>
>[Non-text portions of this message have been removed]
>

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