Glad to hear you guys got some relief with MRI news. These spots can
really scare you. The waiting is just terrible you hope for the best
but prepare for the worst. Owen had a few spots turn up on his MRI
about a year from diagnosis, it was scar tissue, but like you we had
to wait the three weeks to do another MRI. Owen's scar tissue has
caused us a lot of problems, but that is due to the kind of radiation
he had IntraBeam. Scar tissue usually doesn't cause any problems.
Owen also just had a MRI, two years off treatment and still cancer
free!! You guys are doing great! Have a great weekend.
Cyndi (Owen's Mom)
www.caringbridge.org/visit/owenlyons

--- In ATRT@yahoogroups.com, "isisreturning2m" <metteearlywine@...> wrote:
>
> Hi All - we have been on pins and needles watching a new "spot" that
appeared on Zoe's
> MRI on Sep 16th. Possibilities were: radiation-related changes OR
the dreaded tumor
> recurrence.
>
> As we all know all too well, chances were good it was tumor
recurrence. After 3 long
> weeks of waiting for a follow-up MRI, we found out yesterday that
the "previous area of
> enhancement shows diminished prominence." Or, as our doctor put it:
"It looks better." !
>
> We are surprised and very relieved. A smaller spot seems to suggest
radiation changes
> rather than tumor (which, with ATRT, would almost certainly have
grown in 3 weeks time,
> and would almost certainly NOT get smaller).
>
> We know this result isn't a guarantee of anything. It's tricky to
know for sure exactly
> what the spot is. Time will tell. We know that every single day with
her is indeed a
> precious gift. We are still soaking her up into every fibre of our
beings. And, we are glad
> for our "stay of execution", however long it may last (indefinitely,
we hope!).
>
> I know some of you have been on this rollercoaster, too. I try to
ride the highs when they
> come, knowing that the lows will just as surely follow (or maybe
it's vice versa - the
> highs follow the lows).
>
> And, I am praying and thinking daily about those of you who are
currently dealing with
> the dreaded recurrence. I am reading your websites, praying for
healing, praying for
> peace, praying for a lovely and loving transition, if that's the way
things unfold.
>
> My thoughts are also with those of you whose children have already
transitioned beyond
> their physical bodies. I know you miss your babies so much. As
always, I wish that with
> each foot you manage to put in front of the other, the effort of it
gets easier, and that
> slowly joy returns and puts a bounce back in your step.
>
> Hugs and love to all of you out there -
>
> Mette Earlywine
>