we set up a care page for nicky its  Nicholas07.webs.com

--- On Wed, 10/1/08, superowenrules <superowenrules@...> wrote:

From: superowenrules <superowenrules@...>
Subject: [ATRT] Re: hi
To: ATRT@yahoogroups.com
Date: Wednesday, October 1, 2008, 6:12 PM






Hi, my name is Cyndi, my son Owen was diagnosed with AT/Rt back in
April 2006 when he was 13 months old. He is 2 years off treatment.
Sorry you had to find us but I think we are a pretty knowledgeable
group who were right were you are at one time. If the diagnosis isn't
scary enough, there are the statics, they are just numbers. Not one
doctor knows everything so reach out to as many as you can, it is
better to have 3 or 4 people thinking about what is best for your son
then just one person. There is another website you might want to
check out www.rhabdoidkids. com/v2 It has a lot more AT/RT families,
who will be very helpful and supportive to you. If there is any thing
I can do or if you have any questions don't be afraid to ask. Your
family will be in my thoughts and prayers.
Believe in Hope,
Cyndi (Owen's Mom)
www.caringbridge. org/visit/ owenlyons

--- In ATRT@yahoogroups. com, "chrissy4u30" <chrissy4u30@ ...> wrote:
>
> Hi, i'm not really sure how these support groups work, but was given
> the site by our nurse. My son Nicky was diagnosed 4 weeks ago with
> AT/RT, and after surgery we thought it was just the one primary tumor,
> but five new tumors were found on his spine today. We are
> starting chemo on oct 1, If anyone
> has advice I'll be glad to take it.
>
>
> Chrissy
>


















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