I agree with the statement made about not agreeing with the
diagnosis! I sent you an email to your yahoo account, but to confirm
the point, please don't take one doctor/hospital's report. We put
lots of faith into our medical teams, but they don't always know every
answer. Regardless of how good you think they are. We are very
grateful for their wisdom, and naturally, we think St. Jude is the
best since my nephew is being treated there for AT/RT. He is one
patient that has survived when they didn't think he would make it past
the first surgery to remove the tumor! So my advice is to ALWAYS have
hope and faith, and to get other consultations in order to make the
best decision for treatment. I, too, am sorry you had to learn of
this group, but stand firm and know there is HOPE!

www.caringbridge.org/visit/colecarpenter
Cole's Aunt Faye