Hi Chrissy -
My name is Paige Walsh, and my son, Charlie was diagnosed in March '07
with an ATRT. We has just shy of his 3rd birthday. We are 20 months
post diagnosis and Charlie is doing well, again, all things
considered. In fact, he just recently completed the IRSIII protocol,
including 6 weeks of Intensity Modulated Radiation. Charlie's tumor
was 100% resected during the craniotomy. The tumor presented itself in
a rather unusual place - intertwined with the left optic nerve (that
carries the vision to the left eyeball). Charlie certainly had his
rough times at the beginning of treatment, but please hang in there. I
know your head is spinning right now with all the options out there.
I'm so sorry to hear about your son, Nicky.