Chrissy,



I am sorry to hear about Nicky's diagnosis. Can you provide some additional
information on the chemotherapy treatment that has been proposed? How much
of the tumor was removed during the craniotomy? Where is Nicky being
treated? Unfortunately you have many decisions to make regarding the type
of treatment that you want for Nicky, and not much time. If you haven't
done so, you may want to create a website at CarePages (www.carepages.com
<http://www.carepages.com/> ) or CaringBridge (www.caringbridge.com
<http://www.caringbridge.com/> ). Good luck with everything.





Best wishes,



Toby Padfield

Father of Andrew (2yo dx Sep 2007)

http://www.carepages.com/ (AndrewPadfieldCarePage)





_____

From: ATRT@yahoogroups.com [mailto:ATRT@yahoogroups.com] On Behalf Of
chrissy4u30
Sent: Monday, September 29, 2008 8:55 PM
To: ATRT@yahoogroups.com
Subject: [ATRT] hi



Hi, i'm not really sure how these support groups work, but was given
the site by our nurse. My son Nicky was diagnosed 4 weeks ago with
AT/RT, and after surgery we thought it was just the one primary tumor,
but five new tumors were found on his spine today. We are
starting chemo on oct 1, If anyone
has advice I'll be glad to take it.

Chrissy





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