Hi, i'm not really sure how these support groups work, but was given
the site by our nurse. My son Nicky was diagnosed 4 weeks ago with
AT/RT, and after surgery we thought it was just the one primary tumor,
but five new tumors were found on his spine today. We are
starting chemo on oct 1, If anyone
has advice I'll be glad to take it.
Hi, i'm not really sure how these support groups work, but was given the site by our nurse. My son Nicky was diagnosed 4 weeks ago with AT/RT, and after...
Chrissy, I am sorry to hear about Nicky's diagnosis. Can you provide some additional information on the chemotherapy treatment that has been proposed? How...
sorry, i think half of my message got lost. how is your son? did they remove all of his tumor? which chemo did you decide on? ... From: Toby Padfield...
Andrew is doing quite well, all things considered. He is a little over 1 year from diagnosis, and the tumor responded very well to the treatment. The last 2...
hi, his oncologist wanted to do the oral, intrathecal, and iv. DFCI IRB protocol #02-294 his craniotomy was on 9-2-08, and they removed 80%. we'r being treated...
Chrissy, I am sorry that you are now a member of our elite group. I just wanted to pass on this quick bit of advice- don't listen to the prognosis- there...
Hi, my name is Cyndi, my son Owen was diagnosed with AT/Rt back in April 2006 when he was 13 months old. He is 2 years off treatment. Sorry you had to find us...
we set up a care page for nicky its Nicholas07.webs.com ... From: superowenrules <superowenrules@...> Subject: [ATRT] Re: hi To: ATRT@yahoogroups.com ...
Phone interview for ATRT families with Dr. Jaclyn Biegel of CHOP - 12/3 @ 7PM ET Jeff Shaddix, Jonathan Shaddix's dad, has talked with Dr. Jaclyn Biegel, the...
Hi Chrissy, I'm sorry to hear about your son. I agree 100% with other parents about not paying attention to the statistics. When my daughter was first...
Thank you so much, i am trying to stay hopeful. ... From: babyella418 <babyella06@...> Subject: [ATRT] Re: hi To: ATRT@yahoogroups.com Date: Wednesday,...
cindi, thank you for your inspiring words they mean alot to me, your son was the same age as nicky is now, i am glad to hear he is doin ok, they sarted chemo 3...
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