Search the web
Sign In
New User? Sign Up
ATRT · Atypical Teratoid Rabdoid Tumors
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Show off your group to the world. Share a photo of your group with us.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
Zoe finished treatment   Message List  
Reply | Forward Message #140 of 183 |
RE: [ATRT] Zoe finished treatment


Hi Maria,

Thanks for checking in!

It sounds like Olivia was switched from the -platin durgs to cyclophosphamide, a
very common med in most of the ATRT protocols.

I am glad to hear that things are going well for Olivia, and that the hearing
loss, while challenging, sounds like it has been manageable.

Michelle

http://www.gowindowslive.com/summergames?ocid=TXT_TAGHM

[Non-text portions of this message have been removed]




Fri Aug 8, 2008 3:07 pm

mkees73
Offline Offline
Send Email Send Email

Forward
Message #140 of 183 |
Expand Messages Author Sort by Date

Hello to everyone - I haven't posted yet but I'm really glad this group is going again - thanks Michelle. Just wanted to share that Zoe finished her last...
isisreturning2m
Offline Send Email
Aug 7, 2008
12:11 pm

Congratulations to Zoe for finishing treatment!! And thanks, Mette, for posting. I would be interested in hearing from other parents about treatment...
M Kees
mkees73
Offline Send Email
Aug 7, 2008
12:34 pm

Hi, Just wanted to add some info about hearing loss. Our daughter Olivia, 11, had (has) her tumours on the nerves that control hearing/balance/facial movement...
Maria Bölja
boelja
Offline Send Email
Aug 7, 2008
2:02 pm

Hi Maria, Thanks for checking in! It sounds like Olivia was switched from the -platin durgs to cyclophosphamide, a very common med in most of the ATRT...
M Kees
mkees73
Offline Send Email
Aug 8, 2008
3:08 pm

Owen is almost 2 years off treatment, as far as side effects from chemo, none. His hearing is great. He has right sided weakness from where ht tumor was...
superowenrules
Offline Send Email
Aug 7, 2008
6:38 pm

Thanks Cyndi, for sharing more about Owen and his journey. I know these days are a bit hectic for you while in the hospital with Owen as he recovers from the...
M Kees
mkees73
Offline Send Email
Aug 8, 2008
3:05 pm

Just wanted to say congrats to Zoe and her family for completing treatment. Also to Owen,  i have followed his story and he is such a brave little man, and...
Jenn Sherlock
jesh260
Offline Send Email
Aug 8, 2008
5:04 pm

The Intra Beam is kind of like a gamma knife, it is a one time high dose of radiation right to the tumor bed site. It is a wand. There have been no other AT/RT...
superowenrules
Offline Send Email
Aug 8, 2008
8:06 pm
Advanced

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help