Welcome to the AT/RT group. I am sorry for your circumstances that bring you
here and I am sorr that I do not know your name. When you feel ready I would
like to know more about Mitchell.
This group is a small group with just a little activity related specifically to
ATRTs; however, many here also belong to other listserves/yahoogroups. I happen
to also be a moderator for PedaitricBrainTumors and PBT Angels. PBT is a high
volume group of almost 700 members dealing with all types of brain tumors at all
stages of this journey. There are Angel parents on that list. PBT Angels is
specifically for those parents that have run out of medical options or parents
of Angels. This might be a group you would find support, comfort and advice.
http://health.groups.yahoo.com/group/PBTAngels/<http://health.groups.yahoo.com/g\
roup/PBTAngels/>
Also you might be interested in Rhadoid Kids. I looked and did not see your
address on the discussion board so I am unsure if you are aware of this site.
http://rhabdoidkids.com/Kids.htm<http://rhabdoidkids.com/Kids.htm>
BTW- sent this on and off list so that you would not miss your introduction as
it seems yahoogroups has had some delay on getting new members on the post
distribution list. To reply to the list chose reply all or ATRT@yahoogroups.com
Thinking of you,
Loice Swisher
list owner, ATRT
------------------------
Our son Mitchell was diagnosed on March 2nd and passed away on March 19th. He
presented as a very happy beautiful baby. We miss our little guy so much.
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