Please welcome Michelle and her daughter Kaitlyn to the list.

Michelle,
I am so sorry for your need to be here. Obviously I have read your
websites (at least partially). The pictures are wonderful. I hope
your trip turns out well.

Now about the difficult things. I saw that you were talking about
having thoughts of arrangements so that when Kaitlyn is an Angel
things are not so rushed. I thought another group might be helpful
to you as well- PBT Angels. That is a group solely for caretakers
of kids that have run out of options with brain/spinal tumors or
have died. I am a moderator on that group. It is a pretty good
group where one can share their feelings and ask difficult questions.
http://health.groups.yahoo.com/group/PBTAngels/ There are about 60
members in that group.

My thoughts and prayers are with you.

Loice Swisher
moderator of the AT/RT list

------------------original message-------------------
I have a 8 month old daughter with Rhadoid of the spine. She is
currently home on hospice.
www.caringbridge.org/visit/kaitlynschwartz