Thank you. Loice has told me about your son (just that he had ATRT and is alive
5 years later). Caden is also undergoing intensive chemotherapy. She will need
stem cell rescue after her fourth and fifth cycles, then four weeks after the
end of her fifth cycle is when we are looking at conformal radiation. Proton
beam is not an option for her, although I cannot remember why at this moment. We
have been fortunate enough to avoid any major bleeds (knock on wood!), and we
had an MRI today that showed a very small amount of shrinkage (it's at least
responding! hurray!). I am leaning toward doing radiation, because there don't
seem to be any other options besides just letting her die without a fight...and
I will not do that.

How disabled do you mean by 'quite disabled', if you don't mind me asking? It is
a blessing that he is happy. I don't care if Caden is disabled or anything as
long as she's happy...even if that means she has to leave us to be where she
truly is joyful. But I'm not giving her up without a fight.

thanks for emailing us and offering your help

Chelsea, Marlee, and Caden

Caden is getting a caringbridge site set up for her -
www.caringbridge.com/visit/caden I believe is the URL.


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