I am sorry to hear about your little girl's battles. Our son, Sean, was
diagnosed at 10 months and went through intensive chemo, followed by 3-D
Conformal Radiation. He was treated in California for chemo, but we went to
Boston
at MGH for radiation. He was about 16 months old when he was radiated.

The best thing I can tell you is that Sean is with us today, in spite of the
horrible diagnosis...5 years later! He did suffer from Cerebellar
Mutism/Posterior Fossa Syndrome after his first surgery which we later learned
was
actually that he suffered a stroke that day...he is quite disabled as a result.

We got some really good info from St. Judes on their most recent studies
about radiation (which I am sure have been updated many times in the past 5
years)...but it helped us to make our decision to proceed.

I cannot answer for your family if what we face every day now is worth it,
but for my family...it most certainly is...Sean is disabled, but most
importantly, he is happy.

If you would like to talk more, please feel free to email me and we can try
and connect.

One last piece of advice I would say is to remember that there is no false
hope...regardless of the outcome, hope is what gets you out of bed each day to
face the battle...and that is not false.

In hope,

Danielle McCauley
Mom of Sean and Connor
Sean was born 1/11/00 - dx 11/29/00 - clear MRI 5/25/05 - 5 year anniversary
coming up!
_www.seanmccauley.com_ (http://www.seanmccauley.com)
_www.seanshope.org_ (http://www.seanshope.org)



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