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ATRT · Atypical Teratoid Rabdoid Tumors

Group Information

  • Members: 51
  • Category: Health Care
  • Founded: Sep 15, 2004
  • Language: English
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Description

This group is for the support of parents, caregivers and friends who are dealing with a child who has an atypical teratoid rhabdoid tumor.

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Check out my photos on Facebook
Hi atrt@yahoogroups.com, I set up a Facebook profile where I can post my pictures, videos and events and I want to add you as a friend so you can see it.
Posted - Mon Jun 22, 2009 10:49 pm
Danielle McCauley
DaniMcCauley
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Holiday Awareness Tree for Pediatric Brain Tumors
The foundation, Smiles for Sophie Forever, is creating an "awareness tree" for the holiday season to raise awareness about pediatric brain tumors. The tree
Posted - Tue Nov 25, 2008 12:27 am
loicebill
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Phone interview for ATRT families with Dr. Jaclyn Biegel of CHOP - 1
Phone interview for ATRT families with Dr. Jaclyn Biegel of CHOP - 12/3 @ 7PM ET Jeff Shaddix, Jonathan Shaddix's dad, has talked with Dr. Jaclyn Biegel, the
Posted - Sat Oct 25, 2008 3:34 pm
M Kees
mkees73
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Re: To Mette - ?Aytpical ATRT
Joey was considered an Atypical ATRT- I thought it was because it was located in his neck versus the CNS or kidney. He does has the gene deletion. Hopkins
Posted - Fri Oct 17, 2008 9:20 pm
KCJoeNSuz@...
suzsudo
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Re: To Mette - ?Aytpical ATRT
oh, i think they mean it's atypical because she does NOT have the gene deletion, whereas most kiddos with ATRT do have the deletion, in the tumor cells or all
Posted - Fri Oct 17, 2008 7:25 pm
isisreturning2m
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2009 1
2008 11 11 7 31 1
2007 1
2006 9 2 1
2005 7 18 10 3 7 3
2004 15 21 21 3
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