Hi atrt@yahoogroups.com, I set up a Facebook profile where I can post my pictures, videos and events and I want to add you as a friend so you can see it.
The foundation, Smiles for Sophie Forever, is creating an "awareness tree" for the holiday season to raise awareness about pediatric brain tumors. The tree
Phone interview for ATRT families with Dr. Jaclyn Biegel of CHOP - 12/3 @ 7PM ET Jeff Shaddix, Jonathan Shaddix's dad, has talked with Dr. Jaclyn Biegel, the
Joey was considered an Atypical ATRT- I thought it was because it was located in his neck versus the CNS or kidney. He does has the gene deletion. Hopkins
oh, i think they mean it's atypical because she does NOT have the gene deletion, whereas most kiddos with ATRT do have the deletion, in the tumor cells or all