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#46845 From: "Mircea Pauca" <mircea.pauca@...>
Date: Tue May 19, 2009 6:34 pm
Subject: Romanian neuro-anti-diversity strikes back
mpauca4
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Romanian parent Mihai Filip has posted on his blog
this riposte to Ari Ne'eman. I'll translate the Romanian
part, then copy the English letter to Newsweek.
http://mariusfilip.blogspot.com/2009/05/scrisoare-catre-newsweek.html
     As I'm not such a great 'political' strategist, I'll let you
the more experienced ones continue the good argument...

Thank you for thinking about this,
Mircea Pauca, Bucuresti, Romania

--

A Letter to Newsweek

The on-line edition of the well-known US magazine *Newsweek* has
published an article http://www.newsweek.com/id/197813/page/1 about
*Ari Ne'eman*, president of *ASAN* (Autism Self-Advocacy Network)
and one of the promoters of the *Neurodiversity* philosophy. Following
the example of Jonathan Mitchell
<http://autismgadfly.blogspot.com/2009/05/asking-newsweek-magazine-for-equal-tim\
e.html>
I've decided to write myself to Newsweek a letter to request that
pro-prevention and pro-cure viewpoints be represented equally.

I consider there is a major interest in this problem for all parents that
desire prevention and/or cure for their children, including the parents
in Romania.

The *Neurodiversity* movement is a thought current inside some high
functioning autistics in a few developed countries that contains ideas like:
autism is _not_ a disease of the brain, but a natural variation of neural
connecting in humans; autism does _not_ have disastrous effects on the
individual touched by it; and the fact that autistics do not integrate in
society is _not_ produced by the grave effects of autism, but a result
of society's intolerance.

All these ideas are, of course, some peerless stupidities that can be
dismantled very easily by applying a test like *Portage* on an autistic
child to prove delays of 10-20-50% or even more in development -
including in the cognitive area, that is, thought. In another words, one
of the effects of autism, maybe the gravest, is the _mental retardation_,
with effects that do not need further mention. But even the case of
Stefanel
<http://www.jurnalul.ro/stire-copii-speciali-intr-o-romanie-autista/in-trei-dece\
nii-de-viata-abia-a-invatat-sa-se-imbrace-singur-507584.html>
, a 35-year-old autistic with a 3-year-old mind cannot
trouble the adepts of this disaxed ('smutty') ideology. They "prove"
with their own persons that autism "is not that bad" - and indeed, in
its easiest forms, autism is not _that_ incapacitating.

The problem with *Neurodiversity* adepts is that they begin, more
and more, to have _political_ influence. The above-named *Ari
Ne'eman*, for instance, pretends that he is a friend to one of
President *Obama* 's counselors. The same *Ari Ne'eman*
sustains that *ASAN* lobbies to grant more government funds
to sustain autistics etc. It isn't hard to deduce that this lobbying
will not reduce only to funding - it will extend soon so that the
*Neurodiversity* philosophy become a State policy.

The USA are the strongest country in the world politically,
economically, militarily, etc. Autism was discovered by
*Dr. Kanner* in the *USA*. *Dr. Skinner*, one of the parents
of behavioral sciences, worked in the *USA*. *Dr. Ivar Lovaas*
has developed *ABA* therapy in the *USA*. The renowned
*Sundberg, Partington and Greer* along many other blessed
researchers, true soldiers on the combat front against autism,
worked in the *USA*. The most funds for research on aetiology,
prevention and cure of autism are allocated in the *USA*. The
most *BCBA* accredited specialists are to be found in the *USA*.
And so on...
Almost all that was revolutionary in the matter of autism has taking
place and is taking place in the *USA*.

Let's pretend now that *Neurodiversity* philosophy will have gained
the cause in the *USA* - not by scientific ways (because they haven't
how) but by _political_ ways. A such victory of the *Neurodiversity*
movement would mean an _unimaginable tragedy_ for the millions of
children with autism present and future, as well as for their families.

Here is what a possible victory of the *Neurodiversity* philosophy
would bring: research funds for prevention and cure of autism would
be suspended, most likely *ABA* would be declared an abusive
practice and will be forbidden, the residential centers for adults with
autism will be disbanded and the cruel truth of autism would be
covered by the thick, ugly smelling layer of political correctness, in
which the simple mention of the negative effects of this disease will
be a crime, and mental retardation and the severe behavioral troubles
of gravely affected autistics will be painted as an alternative form of
existence of human conscience - along many other such aberrations.

It's not hard to forecast that, if *Neurodiversity* wins in the *USA*,
it will win everywhere in the world, in a true domino effect.

For all these considerations, I've considered necessary to join the
action of *Jonathan Mitchell*. My child's fate is not that strongly
affected, because it will be years until a possible victory of the
*Neurodiversity* movement to appear. But if nothing is done,
*Neurodiversity* _surely_ will win. And I consider necessary to
express my opinion, for the future children that would suffer from
the same brain development disorder as my son.

If you desire to join this action, you can write to Newsweek
magazine at: letters@... . To find out more about
*Neurodiversity*, you can start from www.autistics.org.

--
To Whom It May Concern

I have read in the electronic version of your magazine the article about Mr.
Ari Ne'eman, president of ASAN and a self-defined autism advocate, that
reflects the points of view of the Neurodiversity doctrine that Mr. Ne'eman
abides to.

I am writing this letter as the father of a 5 yo autistic boy and as a
person who, while not being an American citizen, is affected by the major
decisions taken in the country that did most in the field of autism. My
letter is a signal that what happens in America in the matter of autism has
far reaching consequences, all over the world.

The autism reality as presented by the  Neurodiversity movement in general
and Mr. Ne'eman in particular is only a small fraction of what autism truly
is. While I do not deny that Mr. Ne'eman has not been impeded much by
autism, that in its mildest forms autism is neither a personal disaster nor
an incapacitating condition and that some children in the autism spectrum
have been teased, mocked and bullied in school or in public places, there
are many others to whom autism is both a personal disaster and a profoundly
incapacitating condition.

Those people fall into the low functioning side of the spectrum. They
cannot go to college like Mr. Ne'eman does, they cannot understand much but
the most simple ideas and some of them cannot even dress or wash themselves.
The problems of those people have been produced neither by bullying in
school nor by society's intolerance. The source of their suffering is
autism - a condition which, according to Mr. Ne'eman, does not destroy
futures and does not ruin lives.

Unfortunately, most people in the lower side of the spectrum are way too
crippled to be able to take a stance in this matter and to present the
destructive effects of autism in their lives. What remains is that people
like Mr. Ne'eman are pretty much the only ones who speak from within, giving
the impression that all autistics share the Neurodiversity philosophy. This
is utterly false.

There are some autistics, like Mr. Jonathan Mitchell, who speak honestly
about how hard it is to live with autism. Those people are profoundly
affected by autism, yet autism has not stolen their capacity to think and
judge, as it happened to so many others. Those people want both to defend
their dignity and to receive a cure, if possible. Those people are neither
proud nor ashamed of being autistic, they simply want an end to this
debilitating disorder of the brain. Those people, albeit in smaller number,
need their voice to be heard, too.

I am writing to you to ask that the Newsweek magazine gives equal space to
the other point of view, too. I am referring to the point of view of the
autistics who want to be cured, who want autism prevented and who
acknowledge the essentially bad effects that autism has upon their lives.

I also believe that the voice of the parents of autistic children and
severely affected adults ought to be heard as well. Those parents have,
unlike Mr. Ne'eman, both the legal and the moral right to speak in the name
of their offspring and to advocate for autism prevention, treatment and cure
if they wish to do so.

Respectfully,
Marius Filip, father of Eusebiu,
Bucharest, ROMANIA

#46844 From: "Mircea Pauca" <mircea.pauca@...>
Date: Mon Apr 13, 2009 9:38 pm
Subject: Conflating economics, math, insanity
mpauca4
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Hello all,

     This has happened recently. Dissident social critic
Jay Hanson (lots of essays at dieoff.org) - quite well
meaning ideas - is setting to attack economics and
economists [Not that there isn't some good in that!]

     He found this study linking math-ability with 'psychosis':
     http://tinyurl.com/3dg92
which I think is based on two separate things - the real
correlation between math and *autistic traits*, and the
very unfortunate conflation between autism and 'psychosis'.

     He also found Adam Curtis' documentary movies
revealing mass manipulations in contemporary history
(again, good ideas in there) but stating:
" After John Nash was cured of his schizophrenia,
he admitted that his theories were "unsound."
<http://adamcurtisfilms.blogspot.com/2007/09/trap.html>
Unsound? What an understatement! "

     I'm not even really sure how much "schizophrenia"
and how much "autism" was really in John Nash, and
what (or if really) was "cured" in him...

     I would appreciate your advice on how to enlighten
and clarify this group on the differences on all these concepts.

     If there is real blame, there would be in the multi-faced
NT economists and political types who used the math theories
of academic economics to cover up policies leading to
continuing the real evil in this world (that has been before too)...
exploitation of nature and humans close up to self-destruction.

     Thank you for thinking about this,
     Mircea Pauca, Bucuresti, Romania

#46843 From: Terri Latshaw <terrilatshaw@...>
Date: Fri Dec 19, 2008 12:03 am
Subject: Re: So over stimulated he is abusive.
terrilatshaw
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Unfortunatley these outburst are caused by him be over stimulated.  There are
some behavior therapy class of adults available through your local state
healthcare centers.  We use head phones with our 15 year old when the noise
becomes to much for him.
 


--- On Mon, 12/15/08, Ann <mrs_ann_new_creation@...> wrote:

From: Ann <mrs_ann_new_creation@...>
Subject: [AS-and-Proud-of-it] So over stimulated he is abusive.
To: AS-and-Proud-of-it@yahoogroups.com
Date: Monday, December 15, 2008, 9:39 PM






I am married to a man who says he is not AS but I see a lot of the
symptoms in him so I hope you guys can help me.

He is so in tuned to his environment that there is no way his 2 kids,
my 3 kids, or myself can keep from annoying him. He is so sensitive
to sounds that he is always saying we are too loud no matter what we
do. He is always complaining we stink even if we just got out of the
shower. He is so sensitive to tastes that he will not eat anything I
cook. We are always accidently getting in "his space." He does not
like any motion or movement in the house….

The biggest problem is he has tried to make us follow all of his
rules which we can't. It is impossible to not do something he
considers wrong. So he punishes us but cursing, yelling, and
throwing things. He thinks nothing of doubling up his fist, shaking
it in my 13 year old daughter's face and saying, "I wish so bad I
could hit you." He does not do any drugs or alcohol. He is simply
that frustrated with everything we do.

We are separated now, he is in CA and I live in OK. He calls me
constantly wanting me to come back home but I can never live like
that again. Is there any way this relationship can be saved. Is
there any way he can learn to not be overwhelmed by everything we do?


















[Non-text portions of this message have been removed]

#46842 From: "Ann" <mrs_ann_new_creation@...>
Date: Tue Dec 16, 2008 2:39 am
Subject: So over stimulated he is abusive.
mrs_ann_new_...
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I am married to a man who says he is not AS but I see a lot of the
symptoms in him so I hope you guys can help me.

He is so in tuned to his environment that there is no way his 2 kids,
my 3 kids, or myself can keep from annoying him.   He is so sensitive
to sounds that he is always saying we are too loud no matter what we
do.  He is always complaining we stink even if we just got out of the
shower.  He is so sensitive to tastes that he will not eat anything I
cook.  We are always accidently getting in "his space."  He does not
like any motion or movement in the house….

The biggest problem is he has tried to make us follow all of his
rules which we can't.  It is impossible to not do something he
considers wrong.  So he punishes us but cursing, yelling, and
throwing things.  He thinks nothing of doubling up his fist, shaking
it in my 13 year old daughter's face and saying, "I wish so bad I
could hit you."  He does not do any drugs or alcohol.  He is simply
that frustrated with everything we do.

We are separated now, he is in CA and I live in OK.  He calls me
constantly wanting me to come back home but I can never live like
that again.  Is there any way this relationship can be saved.  Is
there any way he can learn to not be overwhelmed by everything we do?

#46841 From: "Mircea Pauca" <mircea.pauca@...>
Date: Mon Oct 6, 2008 7:55 pm
Subject: Music therapy vs conventional lessons
mpauca4
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Hello music lovers and pros,

     I wonder what is (or should be) the difference
between 'Music therapy' and conventional music lessons.
     Longer ago I pestered you all with my complaints
about piano as a kid, and how I was frustrated by teacher.

     Now I still try to literally 'play' with a keyboard, can
move fingers reasonably fast only 'by ear'. Anything else,
esp. reading is too slow and/or errory to be musical.
Real-time multitasking is the main subjective limitation.

     Now, recently I got one 'mentoring' lesson with a
pro teacher, with highest Conservatory and pedagogic
studies (but a bit younger than me). I briefly mentioned
Asperger's in email to her but she didn't know what that was.
     She was nice but what happened at the lesson was
really too overwhelming to understand and fix useful
knowledge. She let me chose a piece (and I chose maybe
a too hard one, with two known difficulty areas: key signature
of D Major (two sharps not written but to be played) and fast
16th notes). The teacher demonstrated advanced 'correct'
techniques way too far for me to be able to produce them
at the lesson, and with enough tries at home afterward.

     Now, I seriously doubt my 'teachability' using
conventional methods. It may be that what I *can* do uses
some personal 'shortcuts', else I'd be much clumsier.
Or they can be seen as 'bad habits' from a real pro.
General-purpose motor unlearning then learning is too ineffective.

     Thank you for thinking about this,
     Mircea Pauca, Bucuresti, Romania

#46840 From: "Mircea Pauca" <mircea.pauca@...>
Date: Fri Jul 25, 2008 1:47 pm
Subject: Google's Knol (new wikipedia-like) on Autism
mpauca4
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I've heard of the recent launching of Knol, Google's
wikipedia-like effort towards a global knowledge base,
in articles called 'knols'. Main difference from wikipedia
is explicit authorship and comments, reducing some of
Wikipedia's untransparent 'flame wars' on sensitive topics.
Use knol.google.com because knol.com is a Dutch co.

     It's very 'empty' now. In the broad area of Autism
there's only one knol now, by Bryna Siegel. Not bad,
still parent-and-professional oriented and a bit clinical,
but much less so than official sites a few years ago.
A few near misspellings of medicines (from a Dr?).
Criticizes mercury/thimerosal vaccine causing autism hypothesis.
Also points to several of her books, by Amazon code ;-)

     Thank you for thinking about this,
     Mircea Pauca, Bucuresti, Romania

#46839 From: "Marsea" <oxeneyed@...>
Date: Wed Jun 11, 2008 10:58 pm
Subject: ABC news video on neurodiversity
oxeneyed
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http://abcnews.go.com/GMA/OnCall/story?id=5033594&page=1

Kristina Chew said on her blog (http://www.autismvox.com) that she
didn't particularly care for them showing Charley with his hands over
his ears.  She said she knows he does that to filter things out and
thus better understand what is going on around him, but to everyone
else he may look like the stereotypical withdrawn child.

~Marcie

#46838 From: "Ari Ne'eman" <Aneeman@...>
Date: Tue May 27, 2008 7:28 pm
Subject: Amicus Letter for Nate Tseglin
aspergerslib...
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*At the request of the Tseglin Family, the Autistic Self Advocacy Network
sent the following letter yesterday for use in a court hearing to determine
the future of Nate Tseglin. If you are as of yet unfamiliar with Nate's
case, please visit
**http://www.getnatehome.com/faq.html*<http://www.getnatehome.com/faq.html>
* for details. Please feel free to distribute.*
**


To Whom It May Concern:

The Autistic Self Advocacy Network (ASAN) is an international organization
of adults and youth on the autism spectrum, including Asperger's Syndrome,
working to promote the interests of the autistic self-advocate community
through public policy and social change advocacy. We are writing as friends
of the court to express our concern about the treatment of Nate Tseglin, a
young adult with a diagnosis of Asperger's Syndrome who has been taken away
from his family and placed in an institution under heavy psychotropic
medication.

The right of individuals with disabilities to live in the community has been
well established by the United States Supreme Court under the landmark
Olmstead v. L.C. decision. The ruling requires states to shift funding from
institutional placements to community living supports. Given the clear
evidence that institutional settings and the indiscriminate use of
psychotropic medication negatively impact the quality of life of autistic
adults and youth, we are concerned by Nate's continued placement under
restraint in a residential facility where he is isolated from his family,
his community, and any meaningful educational or social opportunities. The
overwhelming consensus of the scientific community indicates that such a
placement is inappropriate, unnecessary, and counterproductive.

Scientific studies have not found that autistic persons are more likely to
commit violent acts or violent crimes than non-autistic persons despite some
media sensationalism of isolated cases of violence (Murrie, Warren,
Kristiannsson, & Dietz, 2002; Barry-Walsh & Mullen, 2004). Autistic persons
are, however, more likely to experience depression, anxiety, and low
self-esteem, for which cognitive-behavior therapy (CBT) and one-on-one talk
counseling are the recommended interventions (Stewart, Barnard, Pearson,
Hasan, & O'Brien, 2006; Sofronoff, Attwood, & Hinton, 2005). Autistic
persons also require positive support systems, frequent encouragement and
praise, and living and learning environments that are compatible with their
cognitive strengths, challenges, and preferences in order to achieve success
in their life pursuits and gain a high quality of life (Renty & Roeyers,
2006; Plimley, 2007). Psychotropic medications should always be used with
extreme caution with autistic persons as typically these medications are not
specifically tested on this population in clinical studies, and psychotropic
medications may cause substantial harm if used in an indiscriminate fashion.

Nate's current placement does not meet his needs and is likely to result in
long-term physical and emotional damage. We urge the Court to recommend that
Nate be removed from the Fairview Developmental Center and returned to the
community.

Regards,

Ari Ne'eman
The Autistic Self Advocacy Network,
President
1101 15th Street, NW Suite 1212
Washington, DC 20005
aneeman@...
(732) 763-5530


Scott Michael Robertson
The Autistic Self Advocacy Network,
Vice President
srobertson@...
(973) 464-6315



*References:*

Barry-Walsh, J. B., & Mullen, P. E. (2004). Forensic Aspects of Asperger's
Syndrome. The Journal of Forensic Psychiatry & Psychology, 15(1),
96-107.Murrie, D. C.,

Warren, J. I., Kristiannsson, M., & Dietz, P. E. (2002). Asperger's Syndrome
in Forensic Settings. International Journal of Forensic Mental Health, 1(1),
59-70.

Plimley, L. A. (2007). A Review Of Quality Of Life Issues And People With
Autism Spectrum Disorders. British Journal of Learning Disabilities, 35(4),
205-213.

Renty, J. O., & Roeyers, H. (2006). Quality of life in high-functioning
adults with autism spectrum disorder: The predictive Value of Disability And
Support Characteristics. Autism, 10(5), 511-524.

Sofronoff, K., Attwood, T., & Hinton, S. (2005) A randomised controlled
trial of a CBT intervention for anxiety in children with Asperger syndrome,
Journal of Child Psychology and Psychiatry 46 (11) , 1152–1160

Stewart, M. E., Barnard, L., Pearson, J., Hasan R., & O'Brien, G. (2006)
Presentation of depression in autism and Asperger syndrome: A review,
Autism, 10 (1), 103-116



--
Ari Ne'eman
President
The Autistic Self Advocacy Network
1101 15th Street, NW Suite 1212
Washington, DC 20005
http://www.autisticadvocacy.org
732.763.5530


[Non-text portions of this message have been removed]

#46837 From: "Marsea" <oxeneyed@...>
Date: Tue May 13, 2008 11:35 pm
Subject: I now have an essay on-line
oxeneyed
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***Please forward to whoever you think may benefit***

I now have an essay posted on-line entitled "Interpretations of the
Mind: An Exploration of Consciousness and Autism".  It's a paradigm I
serendipitously constructed after years of reading books on autism,
talking to autistic people, and studies neuroscience in general, etc.
  The first part examines the ways the mind interprets the sensory
environment and how it typically integrates those interpretations.
The second part looks at what happens when the sections of the brain
don't "speak" to each other like normal and so mono-processes instead
of multi-tasking.  There's a more detailed outline on the first page.
  You can go directly to the essay here:

http://www.autism-society.org/site/DocServer/Interpretations_of_the_Mind.pdf?doc\
ID=9161

This is being hosted by the Autism Society of America here:

http://www.autism-society.org/site/Clubs?club_id=1168&pg=docs

I would love to here any feedback anyone would care to provide.

Sincerely,
Marcie

#46836 From: Shannon T Ahern <shannon_terra@...>
Date: Wed Apr 2, 2008 5:56 pm
Subject: Re: Plastic smell harmful ?
shannon_terra
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I myself would find that an intolerable work situation. Chemical
smells, along with colognes and perfumes, can make me totally sick.

Here's an interesting story for you. When my office was located next to
a container manufacturer (Ball), sometimes some truly noxious fumes
would waft over into our offices. Many employees (not just me!) would
get terrible headaches, and often I would just leave because of the
level of discomfort. However, the really interesting thing is that
SOMETIMES my tattoos would rise up like welts on my skin!! It was the
weirdest thing EVER! So, it would be like my tattoos were embossed on
my body, and I had to go home and get away from the chemicals and
usually apply Cortaid cream in order to have my skin go back to normal.

Anyway, back to your problem. Is this job something you could do
remotely, once you were familiar with the work?

Shannon :-)


--- Mircea Pauca <mircea.pauca@...> wrote:
> Reluctantly, I started again seeking jobs that may fit.
> I've found one that would seem less bad than others
> (business statistics for controlling)
>     BUT it's in a new steel&glass building and the
> interior smells quite strongly of plastic chemicals.
>     So I wonder if it's wise to try it here, staying
> 8 or more hours every day... if it's really harmful,
> or only my subjective discomfort... if there's any
> "reasonable accomodation" to ask, or something
> that would benefit others too.
>
>     Thank you for thinking about this,
>     Mircea Pauca, Bucuresti, Romania
>
> ------------------------------------
>
> --
> Yahoo! Groups Links
>
>
>
>

#46835 From: "Mircea Pauca" <mircea.pauca@...>
Date: Wed Apr 2, 2008 4:23 pm
Subject: Plastic smell harmful ?
mpauca4
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Hello all,

Reluctantly, I started again seeking jobs that may fit.
I've found one that would seem less bad than others
(business statistics for controlling)
     BUT it's in a new steel&glass building and the
interior smells quite strongly of plastic chemicals.
     I stayed in it now 2 hours, not long enough for
a clear effect but some 'dulling'. The sensation
diminished over time with some 'accustoming' of
sensors. In another case, staying and trying to
concentrate 3-4 hours in a similarly-smelling library
generated strong headaches and confusion.
     Other people clearly had noticed but became
accustomed too (or the money surpassed all).
I had some weird unexplained allergies some time
ago, before such exposures - so unrelated.

     So I wonder if it's wise to try it here, staying
8 or more hours every day... if it's really harmful,
or only my subjective discomfort... if there's any
"reasonable accomodation" to ask, or something
that would benefit others too.

     Thank you for thinking about this,
     Mircea Pauca, Bucuresti, Romania

#46834 From: Bourquin <galileoace@...>
Date: Sat Mar 22, 2008 3:17 pm
Subject: Re: Re: For Employers of Aspies ?
bourqie
Online Now Online Now
Send Email Send Email
 
Coincedentally I was just thinking about looking for such an info packet a
few weeks ago.

On 23/03/2008, tikigalharkins@... <tikigalharkins@...> wrote:
>
>   Hi Mircea, Bill & all here,
> This is a super idea!!!! I would also like to see more of this type of
> literature around to help us out here of working age to senior citizens.
> If more people have ideas where we can get such helpful information
> personally, my advice would be to "hit 'em up Witness style" with those
> pamphlets/tracts. For instance, hit job fairs, go door to door (or use
> snail mail) to send out these tracts/pamphlets--even stick 'em in those
> ValPaks to get word out. To phrase this with the least possible words,
> ANYWHERE that could have the potential contact/impact on an Aspie's life
> must be well informed about AS as they presently are about other
> "disabilities" and such which might affect work/production. Take it
> from me, one who has in her 32 years working in the "service"
> industries, faced some bad (read NT type) bosses/managers, politics,
> firings, being "forced to quit" on principle/being turned down from
> positions as an applicant when I knew i was capable (& even
> Goodwill/VR)-yet one of these places today remains very liberal in
> hiring of the homosexual community. HMMMMM.... "Nuff said here.
> Anyone else here with good ideas??
> Sorry I ranted on here...Sore subject that must be talked about.
> Wanda
>
> http://community.webtv.net/tikigalharkins/LETSTALKASPERGERS
>
>
>


[Non-text portions of this message have been removed]

#46833 From: tikigalharkins@...
Date: Sat Mar 22, 2008 3:04 pm
Subject: Re: For Employers of Aspies ?
tikigal1978
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Hi Mircea, Bill & all here,
This is a super idea!!!!  I would also like to see more of this type of
literature around to help us out here of working age to senior citizens.
If more people have ideas where we can get such helpful information
personally, my advice would be to "hit 'em up Witness style" with those
pamphlets/tracts.   For instance, hit job fairs, go door to door (or use
snail mail) to send out these tracts/pamphlets--even stick 'em in those
ValPaks to get word out.  To phrase this with the least possible words,
ANYWHERE that could have the potential contact/impact on an Aspie's life
must be well informed about AS as they presently are about other
"disabilities" and such which might affect work/production.  Take it
from me, one who has in her 32 years working in the "service"
industries, faced some bad (read NT type) bosses/managers, politics,
firings, being "forced to quit" on principle/being turned down from
positions as an applicant when I knew i was capable (& even
Goodwill/VR)-yet one of these places today remains very liberal in
hiring of the homosexual community.  HMMMMM....  "Nuff said here.
Anyone else here with good ideas??
Sorry I ranted on here...Sore subject that must be talked about.
Wanda


http://community.webtv.net/tikigalharkins/LETSTALKASPERGERS

#46832 From: Bourquin <galileoace@...>
Date: Sat Mar 22, 2008 4:18 am
Subject: Re: Jury of peers?
bourqie
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There's no evidence that he is aspies or even autistic at all. Even though I
would surmise such a guess based on what I've read of his court behaviour,
I'm not sure having aspies in the jury would even be beneficial to him.

On 22/03/2008, Sean Casey <sean@...> wrote:
>
>   Being a techie, I've been following the Hans Reiser trial a bit...
>
> Regardless of guilt, it seems like he's getting a lot of judgement for the
> NT interpretation of aspie characteristics. It seems like he'd get more
> fair
> treatment if there were one or more aspies on the jury.
>
> Any thoughts on this? It's pretty disturbing to thing that the legal
> system
> will judge and castigate based on flawed interpretation of vocal and
> nonvocal
> communication.
>
> What may appear to be a towering ego is often someone who has no choice
> but
> to tell the truth as they see it. There's a big difference.
>
> Doesn't it make sense that if you're going to try an AS person there
> should be some on the jury to make sure it's fair?
>
> Sean
>
>


[Non-text portions of this message have been removed]

#46831 From: Sean Casey <sean@...>
Date: Sat Mar 22, 2008 2:03 am
Subject: Jury of peers?
sean@...
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Being a techie, I've been following the Hans Reiser trial a bit...

Regardless of guilt, it seems like he's getting a lot of judgement for the
NT interpretation of aspie characteristics. It seems like he'd get more fair
treatment if there were one or more aspies on the jury.

Any thoughts on this? It's pretty disturbing to thing that the legal system
will judge and castigate based on flawed interpretation of vocal and nonvocal
communication.

What may appear to be a towering ego is often someone who has no choice but
to tell the truth as they see it. There's a big difference.

Doesn't it make sense that if you're going to try an AS person there
should be some on the jury to make sure it's fair?

Sean

#46830 From: WD Loughman <wdloughman@...>
Date: Fri Mar 21, 2008 10:24 pm
Subject: Re: For Employers of Aspies ?
wdlwdl2
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Mircea Pauca wrote:
>     Greetings from Romania !
>
>     I wonder what good materials exist to help bosses etc.
> manage effectively Aspies with not too much frustration.
>
>     The best short one I found so far:
> Barbara Bissonnette - The Employer's Guide to Asperger's Syndrome
> www.forwardmotion.info/home2.html
> The site will direct to write and ask the author.
> She also sent the PDF to me and allowed me to redistribute
> to anyone to whom I'll think it will be useful.
>
>     Other suggestions ?
>     Mircea Pauca, Bucuresti, Romania

    Not written expicitly for supervisors, nonetheless this may be helpful:

<http://www.amazon.com/Asperger-Syndrome-Employment-Workbook-Roger/dp/1853027960\
>

    Meyer's home-page:

<http://www.rogernmeyer.com/index.htm>

    Here's a book list _re_ autism vs. adults.  A few do concern
employment matters; a few of those are fairly recent and may be useful:

<http://www.autism-resources.com/nonfictiontopics/adult.html>

- Bill

--
WD "Bill" Loughman  -  Berkeley, California  USA
http://home.earthlink.net/~wdloughman/wdl.htm

#46829 From: "Mircea Pauca" <mircea.pauca@...>
Date: Fri Mar 21, 2008 8:35 pm
Subject: For Employers of Aspies ?
mpauca4
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Greetings from Romania !

     I wonder what good materials exist to help bosses etc.
manage effectively Aspies with not too much frustration.

     The best short one I found so far:
Barbara Bissonnette - The Employer's Guide to Asperger's Syndrome
www.forwardmotion.info/home2.html
The site will direct to write and ask the author.
She also sent the PDF to me and allowed me to redistribute
to anyone to whom I'll think it will be useful.

     Other suggestions ?
     Mircea Pauca, Bucuresti, Romania

#46828 From: Kazumi <kazumiH@...>
Date: Wed Feb 27, 2008 12:47 am
Subject: Autreat 2008 Call for Proposals
interabang58
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Please circulate widely:


Autreat is a retreat-style conference run by Autism Network
International, for autistic people and our families, friends,
supporters, and interested professionals. We are accepting
presentation proposals for Autreat 2008, to be held Monday-Friday,
June 23-27, 2008, at a small campus near the New York-Pennsylvania
border, approximately 80 miles from Buffalo.

FOR HELP PREPARING A PROPOSAL:
If you want to submit a proposal but you have trouble reading these
instructions and putting your proposal in the requested format,
contact Jane Meyerding, jmeyerding@..., for help. Send only
plain text messages, with no attachments.

WHAT KINDS OF WORKSHOPS ARE WANTED AT AUTREAT?
Autreat is very different from typical autism conferences:

WHEN PREPARING A PROPOSAL FOR CONSIDERATION, BE AWARE THAT THE
*PRIMARY* AUDIENCE AT AUTREAT IS AUTISTIC PEOPLE.
Parents and professionals do attend, and most who attend find the
presentations to be of interest, but Autreat is basically autistic
space.

Be sure your information is being presented in a manner that is both
helpful to and respectful of autistic people.

We expect that you will be speaking *to* us, not speaking to non-
autistic people *about* us.

We are interested in presentations, by either autistic or non-
autistic people, about POSITIVE WAYS OF LIVING WITH AUTISM, about
functioning as autistic people in a neurotypical world, and about the
disability movement and its significance for autistic people.

We are *not* interested in presentations about how to cure, prevent,
or overcome autism.

We do *not* appreciate having non-autistic people come into our space
to talk to each other about how difficult we are to deal with, or how
heroic they are for putting up with us.

If your presentation is geared toward the interests of parents or
professionals, it should focus on positive ways of appreciating and
supporting autistic people, not on reinforcing negative attitudes
about autism and autistic people.

AUTREAT AIMS TO BE WELCOMING AND RELEVANT TO THE BROADEST POSSIBLE
CROSS-SECTION OF THE AUTISTIC POPULATION.
Autreat is attended by autistic people who speak and by autistic
people who do not speak;
by autistic people who communicate fluently and by autistic people
who have limited communication;
by autistic people who live independently and by autistic people who
need intensive support with daily living;
by autistic people who have jobs and by autistic people who live on
disability benefits;
by autistic people who are able to present as "socially acceptable"
and by autistic people who require support to help them manage their
behavior;
by autistic people who have been labeled "high-functioning" and by
autistic people who have been labeled "low-functioning"--including
some autistic people who have had *both* labels, at different times
or under different circumstances.

While it is not expected that any one presentation will be of
interest to each and every autistic person, we do look for
presentations that will appeal to the widest possible audience.

We are *not* interested in presentations that reinforce what we
consider to be artificial distinctions between members of our
community who are labeled "low-" vs."high-functioning."

A NOTE ABOUT "PERSONAL EXPERIENCE" PRESENTATIONS:
Be aware that everyone at Autreat either knows what it's like to be
autistic, or knows what it's like to care about someone who is autistic.

All of us have our own personal stories. Presentations about the
presenters' personal stories are not going to generate much interest,
unless you're able to use your story in a way that will help other
people to share and understand their own experiences in a new way.

Your proposal should describe what participants can expect to get out
of your presentation, not just what personal experiences you're going
to talk about.

TO LEARN MORE ABOUT PRESENTATION TOPICS OF INTEREST
If you have never attended Autreat before, please review the ANI web
site (www.ani.ac) and the past Autreat brochures (http://www.ani.ac/
past-workshops.htm), and contact Jim Sinclair (jisincla@...) if
you have questions, to make sure you understand what Autreat is about
and whether your topic is relevant to ANI's philosophy.

WHAT IS EXPECTED OF PRESENTERS?
If you submit a proposal, we expect you to be available to attend
Autreat if we accept your proposal, and to give your presentation on
the day and time scheduled. We make every effort to accommodate
presenters' preferences in setting the Autreat schedule, but it is
not always possible to give every presenter his or her preferred time
slot.

Presenters are expected to send advance copies of any handouts or
slides they plan to use, so that we can prepare alternate format
copies for print-impaired attendees.

Presenters are expected to submit an article on their topic for
inclusion in the program book. These also need to be submitted in a
timely manner, so we can prepare copies in alternate formats.

Presenters are expected to consent for their presentations to be
recorded, and for the recordings to be sold by Autism Network
International.

Presenters are invited to attend all of Autreat. If presenters opt
not to attend the entire event, they are expected to arrive on-site
by 8:30 a.m. for afternoon presentations, and to arrive the night
before for morning presentations.

Please be prepared to meet these expectations if you decide to submit
a proposal.

WHAT'S IN IT FOR THE PRESENTERS?
Autreat presenters receive free registration, including on-site meals
and lodging in a shared (2-person) room.

ANI is a volunteer-run, member-supported grassroots organization with
minimal funding. We cannot reimburse for off-site expenses, nor can
we pay travel expenses or honoraria. If your proposal is accepted, we
will send you a formal letter of invitation if this would help you in
raising your own travel funds.

Presenters are entitled to receive one free copy of the recording of
their presentations.

PROPOSALS SHOULD INCLUDE:
* Your name and title (if any) exactly as you want them listed in
program materials should your proposal be accepted
* Contact information (address, phone, fax and/or email if you have
them)
* Title of your proposed presentation
* Detailed description for consideration by the Planning Committee
* Brief (5 sentences or less) abstract exactly as you want it listed
in program materials should your proposal be accepted
* Indicate ONE theme that BEST relates to your proposed presentation:
   [ ] Advocacy skills
   [ ] Life skills/adaptive strategies
   [ ] Helpful support services
   [ ] Communication
   [ ] Social/interpersonal issues
   [ ] Autistic community and culture
   [ ] Education
   [ ] Employment
   [ ] Family issues
   [ ] Residential issues
   [ ] Disability rights and politics
   [ ] Autism research and theory
   [ ] Other (describe):
* Indicate which group(s) you believe would find your proposed
presentation of interest. Check as many as apply. Briefly describe
what your presentation would offer to each group:
   [ ] Autistic adults
   [ ] Autistic teenagers
   [ ] Family members of autistic people
   [ ] Educators
   [ ] Clinicians
   [ ] Service providers
   [ ] Other (specify):
* Brief (5 sentences or less) presenter bio exactly as you want it
listed in program materials should your proposal be accepted
* Any audiovisual equipment you would need for your presentation

If you have never presented at Autreat before, please also include an
introduction for the Planning Committee summarizing your relevant
experience, including any presentations or other education/advocacy
activities elsewhere, and the nature of your interest in autism and/
or in general disability issues.

PROPOSAL DEADLINE: April 1, 2008

HOW TO SUBMIT A PROPOSAL
Proposals can be submitted via email to Jim Sinclair
(jisincla@...), or via postal mail to ANI at the address below,
or submitted online at www.ani.ac/aut08cfp.php.

WHAT IF I DON'T WANT TO PRESENT, BUT I HAVE AN IDEA FOR A
PRESENTATION I'D LIKE TO SEE?
If you want to make suggestions for Autreat presentations, or make
comments about previous presentations or presenters, please fill out
the questionnaire available at www.ani.ac/autplan2.php.

Autism Network International
P.O. Box 35448
Syracuse NY 13235
USA

#46827 From: "Ari Ne'eman" <Aneeman@...>
Date: Mon Feb 18, 2008 3:23 am
Subject: Health officials await results for 12th child
aspergerslib...
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http://www.signonsandiego.com/news/health/20080216-9999-1m16measles.html
Health
officials await results for 12th child*By Cheryl Clark*
UNION-TRIBUNE STAFF WRITER
February 16, 2008
Five more children in San Diego have tested positive for measles, bringing
to 11 the total number of patients in a monthlong outbreak that has spread
to schools, grocery stores, the Del Mar Fairgrounds and Hawaii, county
officials said yesterday.

Public health experts are awaiting test results for a 12th child.

Two other youngsters have developed symptoms of measles, but county
officials have not discovered a link between them and the current outbreak.

One of the newly confirmed patients is an 8-year-old who may have spread the
measles virus during a visit to Whole Foods Market in Hillcrest that started
at 5 p.m. and lasted about an hour Jan. 29.

Two days later, the child attended "Corteo," a performance by the group
Cirque du Soleil, at the fairgrounds. He or she may have infected spectators
and employees at the 4 and 8 p.m. shows.

The child also went to Trader Joe's in Hillcrest between 1 and 2 p.m. Feb.
3.

"It is extremely important that people, particularly children . . . are
aware that they may have been exposed to measles," said Dr. Wilma Wooten,
the county's public health officer. The potentially fatal and highly
contagious disease takes several weeks to run its course.

Wooten said there's no longer an infection risk at the fairgrounds and two
supermarkets because the measles virus can't survive for more than two hours
after it is expelled by a cough or sneeze.

The measles outbreak is San Diego County's first since 1991. It began when a
7-year-old patient returned from Switzerland on Jan. 15 with what would
later be confirmed as measles. He or she infected two siblings and at least
four classmates. The 8-year-old patient identified yesterday is a classmate
of the 7-year-old.

On Jan. 25, the 7-year-old's parents took the youngster to the Children's
Clinic of La Jolla. The child may have coughed and sneezed in the office,
thus infecting four other children.

Those four patients returned to the clinic between Feb. 5 and 8, possibly
spreading the virus to 60 other children.

All of the 11 confirmed patients, from 10 months to 9 years old, were not
vaccinated either because they were younger than 1 – the minimum age for
measles inoculation – or because their parents objected to having them
vaccinated, county officials said.

School leaders, health officials and physicians say they hope the outbreak
will persuade parents to have their children inoculated against measles,
mumps and rubella. They said the vaccine is safe.

However, a growing number of parents are exercising their right under
California law to decline vaccination for their children. They fear that
vaccines may be linked to autism.

Measles was widespread in the United States before a vaccine was developed
in the early 1960s. At that time, many parents felt relieved when their
children got measles because the infection meant the youngsters would be
immunized for the rest of their lives.

Today, non-immunization rates throughout San Diego County average
1.6percent in preschool students and
2.5 percent in kindergartners, Wooten said.

As the outbreak continues to unfold, health officials in San Diego and
Hawaii are trying to track down the thousands of individuals potentially
exposed to measles.

Infection experts from the national Centers for Disease Control and
Prevention and the state Department of Health Services are working with more
than 30 of San Diego County's employees.

These health officials are seeking prospective patients linked to the San
Diego Cooperative Charter School in Linda Vista; Children's Clinic of La
Jolla in Bird Rock; School of the Madeleine and the Alcott Elementary School
Infant & Toddler Development Program, both in Clairemont; Baldwin Academy
and Murray Callan Swim School, both in Pacific Beach; the fairgrounds; and
the two grocery stores in Hillcrest.

Hawaiian health officials are contacting the roughly 250 passengers who may
have been exposed to measles from an infected child aboard Hawaiian Airlines
Flight 15, which left Lindbergh Field on Feb. 9. Also potentially affected
are people who were at the airport's Terminal 2, Gate 41 between 8:30 a.m.
and 12:30 p.m. that day.

Measles causes a high fever, cough, runny nose and watery eyes. A rash
usually follows.

In the United States, measles can be fatal in up to three per 1,000 children
who contract it. The death rates are higher in developing countries.

Children are more at risk of suffering complications, including pneumonia
and swelling of the brain, than senior citizens. Most adults have been
immunized by the measles vaccine or by getting measles when they were young.
------------------------------
Cheryl Clark: (619) 542-4573;
*cheryl.clark@...*<http://www.signonsandiego.com/news/health/MAILTO:ch\
eryl.clark@uniontrib.com>

      Find this article at:
http://www.signonsandiego.com/news/health/20080216-9999-1m16measles.html


[Non-text portions of this message have been removed]

#46826 From: "Ari Ne'eman" <Aneeman@...>
Date: Fri Feb 8, 2008 3:49 am
Subject: Re: Reminder: ASAN-NJ Autism Spectrum Social Support Group Meeting This Saturday
aspergerslib...
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Slight point of clarification: February 9th is a Saturday, not a Sunday.
Thank you and we hope to see you there.

Regards,
Ari Ne'eman
The Autistic Self Advocacy Network, President
http://www.autisticadvocacy.org
info@...
732.763.5530
On Wed, Feb 6, 2008 at 3:30 AM, Ari Ne'eman <aneeman@...> wrote:

> Hello all,
>
> This Sunday, February 9th, the Autistic Self Advocacy Network's New Jersey
> Chapter will be meeting at 1 PM. The location is below. Please feel free
> to distribute this message.
> ASAN's Jersey Social/Support Group is having its 4th session on:
> Saturday, February 9th, 2008 @ 1:00
> We'll be meeting at:
> Van Gogh's Ear Cafe
> 1017 Stuyvesant Ave
> Union, NJ 07083
>
> The meeting is open to all adults on the autism spectrum, including but
> not limited to Asperger's, NLD, PDD-NOS and other autism spectrum
> neurologies. ASAN encourages family members and other allies of the
> autistic community to contact us at  info@... if they are
> interested in being informed about future meetings open to the general
> public. Please e-mail IanS73@... to RSVP or go
here<http://aspergers.meetup.com/318/calendar/7097761/?a=cv1c_grp>.
> Please indicate in your e-mail if you require any accommodations to attend.
>
> Thank you and we look forward to seeing you there.
>
> Regards,
> Ari Ne'eman
> The Autistic Self Advocacy Network, President
> http://www.autisticadvocacy.org
> info@...
> 732.763.5530
>


[Non-text portions of this message have been removed]

#46825 From: "Ari Ne'eman" <Aneeman@...>
Date: Wed Feb 6, 2008 8:30 am
Subject: Reminder: ASAN-NJ Autism Spectrum Social Support Group Meeting This Sunday
aspergerslib...
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Hello all,

This Sunday, February 9th, the Autistic Self Advocacy Network's New Jersey
Chapter will be meeting at 1 PM. The location is below. Please feel free to
distribute this message.
ASAN's Jersey Social/Support Group is having its 4th session on:
Saturday, February 9th, 2008 @ 1:00
We'll be meeting at:
Van Gogh's Ear Cafe
1017 Stuyvesant Ave
Union, NJ 07083

The meeting is open to all adults on the autism spectrum, including but not
limited to Asperger's, NLD, PDD-NOS and other autism spectrum neurologies.
ASAN encourages family members and other allies of the autistic community to
contact us at  info@... if they are interested in being
informed about future meetings open to the general public. Please e-mail
IanS73@... to RSVP or go
here<http://aspergers.meetup.com/318/calendar/7097761/?a=cv1c_grp>.
Please indicate in your e-mail if you require any accommodations to attend.

Thank you and we look forward to seeing you there.

Regards,
Ari Ne'eman
The Autistic Self Advocacy Network, President
http://www.autisticadvocacy.org
info@...
732.763.5530


[Non-text portions of this message have been removed]

#46824 From: "Marsea" <oxeneyed@...>
Date: Sat Feb 2, 2008 12:33 am
Subject: VOICES OF AUTISM 'SILENCED' BY CHARITY
oxeneyed
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*
http://www.newscien tist.com/ channel/health/ mg19726414. 300-voices-
of-autism- silenced- by-charity. html(subscription
required)
*

*
*

*VOICES OF AUTISM 'SILENCED' BY CHARITY*
02 February 2008

AN EXTRAORDINARY dispute has broken out between people with autism and a
charity that aims to help them. At stake is how such people are
perceived by
the general public.

Like many people with autism, an autistic blogger who goes by the screen
name "Abscout" is angry about the way the condition is portrayed by some
charities. To try and paint a different picture, Abscout set up a spoof
website called NTSpeaks.org, a parody of the site of the New York-based
charity Autism Speaks. The NT stands for neurotypical, a term
sometimes used
by people with autism to describe the rest of the population.

Last week, however, in response to demands from Autism Speaks, Abscout
took
the site down. Autism Speaks claims the site infringed its copyright, and
that it could have confused people looking for information about autism.
That in turn has outraged Abscout's supporters, who say that Autism Speaks
is suppressing the views of the very people it is supposed to
represent and
help.

"If we do speak, we're only allowed a voice if it agrees exactly with the
people who say they're speaking for us," says Amanda Baggs, another
blogger
with autism based in Burlington, Vermont. "That keeps people believing the
same thing Autism Speaks wants people to believe, including every negative
stereotype of autism out there."

Autism Speaks says its aim is "to change the future for all who struggle
with autism spectrum disorders". One of its stated goals is to "cure"
autism
- an aim some people with autism find offensive. "The autism spectrum is
something that is intrinsic to our personalities, " says Ari Ne'eman,
president of the Autism Self Advocacy Network in Baltimore, Maryland. "We
can no more separate the autistic part of ourselves than we could our
gender
or race."

Particularly galling for people with autism, he says, is a video on the
charity's site called Autism Everyday, in which mothers of children with
autism talk about the emotional and financial impact the condition has had
on their lives. "Autism Speaks puts out a very fear-based message," says
Ne'eman.

NTSpeaks.org carried a much more assertive message. Under the slogan
"Learn
the signs of NTism", it listed "dislike for people who are different",
"refusal to accept that there is a problem" and "conforming attitude".
Another one of its headlines read, "NTs destroying AS/Auties pride and
joy".

Autism Speaks says that people could have confused NTSpeaks.org with
its own
site, as it carried a similar logo. "If an improper use of our name or
logo
creates confusion among those we serve about the source of information, it
is a disservice to all," a charity spokesman says.

Baggs insists there is a need for people with autism to publicise
their own
messages. She says the charities "change a lot about how autistic
people are
treated and understood by other people and by professionals" .

Gareth Nelson, who founded the autism rights group Aspies For Freedom is
doing his bit. In protest at Autism Speaks's actions, he has secured the
NTSpeaks.net and NTSpeaks.com domains and posted new parodies of Autism
Speaks there. "It is important to do this in order to stop Autism Speaks
from simply silencing their critics and to show them that we are not going
to sit back while they intimidate people," he says.

#46823 From: "Ari N." <Aneeman@...>
Date: Fri Jan 11, 2008 6:07 pm
Subject: Reminder: ASAN-NJ Social/Support Group Meeting Tomorrow
aspergerslib...
Offline Offline
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Hello all,
Just a reminder: The Autistic Self Advocacy Network will be holding our New
Jersey Social/Support Group Meeting tomorrow. The time and location are
below. Please feel free to distribute this message.

ASAN's Jersey Social/Support Group is having its 3rd session on:
Saturday, January 12th 2008 @ 1:00
We'll be meeting at:
Van Gogh's Ear Cafe
1017 Stuyvesant Ave
Union, NJ 07083

The meeting is open to all adults on the autism spectrum, including but not
limited to Asperger's, NLD, PDD-NOS and other autism spectrum
neurologies. ASAN encourages family members and other allies of the autistic
community to contact us at info@... if they are interested
in being informed about future meetings open to the general public. Please
e-mail IanS73@... to RSVP or go
here<http://aspergers.meetup.com/318/calendar/6878989/>.
Please indicate in your e-mail if you require any accommodations to attend.

Thank you and we look forward to seeing you there.

Regards,
Ari Ne'eman
The Autistic Self Advocacy Network, President
http://www.autisticadvocacy.org
info@...  <info@...>


[Non-text portions of this message have been removed]

#46822 From: "Ari N." <Aneeman@...>
Date: Thu Jan 10, 2008 10:06 pm
Subject: Re: Poll on IANProject About Cure
aspergerslib...
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If you don't see it, then click on "About ASDS" and then scroll a little bit
down. It should be in the middle of the page, off the right.

Ari

On Jan 10, 2008 5:04 PM, Adam Sanford <gryph@...> wrote:

>   Ari N. wrote:
> >
> >
> > The IAN Project, which is funded by Autism Speaks and hosted by Kennedy
> > Krieger, is hosting a poll directed at adults on the spectrum, asking if
> we
> > want a "cure". Let's give them a strong and unequivocal "No." Currently,
> the
> > polling is running about 57% against a cure. If you could take a few
> seconds
> > out of your day to vote, it would be appreciated.
> >
> > http://www.iancommunity.org/cs/about_asds/
> > <http://www.iancommunity.org/cs/about_asds/>
> >
> > -Ari
>
> Ari, where is the poll? I can't find it on this page anywhere.
>
> Griff
>
>


[Non-text portions of this message have been removed]

#46821 From: Adam Sanford <gryph@...>
Date: Thu Jan 10, 2008 10:04 pm
Subject: Re: Poll on IANProject About Cure
gryph_pagan
Offline Offline
Send Email Send Email
 
Ari N. wrote:
>
>
> The IAN Project, which is funded by Autism Speaks and hosted by Kennedy
> Krieger, is hosting a poll directed at adults on the spectrum, asking if we
> want a "cure". Let's give them a strong and unequivocal "No." Currently, the
> polling is running about 57% against a cure. If you could take a few seconds
> out of your day to vote, it would be appreciated.
>
> http://www.iancommunity.org/cs/about_asds/
> <http://www.iancommunity.org/cs/about_asds/>
>
> -Ari

Ari, where is the poll? I can't find it on this page anywhere.

Griff

#46820 From: tikigalharkins@...
Date: Thu Jan 10, 2008 3:47 pm
Subject: Re: Poll on IANProject About Cure
tikigal1978
Offline Offline
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Hi all,
I found it difficult to find the poll page but I did tell them what I
want as a "middle aged 47 yo AC".    I capitalized the words "acceptace"
& "patience."  I further went on to say that as adults, we desperately
need funding to go towards assistance programs which would help us
during transitional/crunch times (like attaining housing, education,
employment & relationships) which impact one's independence & quality of
life.  Also having better accessibility in attaning communication and
social skills assistance is a must.  I mean, we show more compassion to
those who are HIV+!
WHASSSSUP?
Wanda-whose dollar's worth wants to thank you for her rant.



http://community.webtv.net/tikigalharkins/LETSTALKASPERGERS

#46819 From: Shannon T Ahern <shannon_terra@...>
Date: Thu Jan 10, 2008 6:16 am
Subject: Re: Poll on IANProject About Cure
shannon_terra
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Oh, Ari!! I missed THAT, probably because I am so focused on the
current target of my wrath. However, what you noted is much more
egregious. There's nothing "autism-LIKE" about Asperger's! Hence its
being *on* the autistic spectrum! How annoying! [This reminds of
Schafer insisting that we Aspies are not autistic and therefore don't
count. Grrrr!]

The problem is that the general community is being overrun by newbies
who have done little research, therefore are not educated enough to
know the correct terminology, or nefarious types who are advancing
their own agendas, political or financial, at the expense of those of
us who are in this for the long haul and/or are autistic ourselves.

Very disappointing. Surely we don't need "help" from either of those
types of people!

Shannon


--- "Ari N." <Aneeman@...> wrote:

> I'm somewhat annoyed about their referring to Asperger's and PDD-NOS
> as
> "autism-like". They are all part of the same spectrum, and when
> they're
> spoken about in the media, the term autistic people is used to refer
> to all
> of us.
>
> Quote I'm referring to from the site: "Add into the mix conditions
> that are
> *autism-like* –such as Asperger's Syndrome and Pervasive
> Developmental
> Disorder Not Otherwise Specified (PDD-NOS)—and there is even more
> variation."
>
>
>
> On Jan 9, 2008 11:58 PM, Shannon T Ahern <shannon_terra@...>
> wrote:
>
> >   I voted!
> >
> > I also sent a strongly-worded letter about the devolution of a
> genuine
> > medical phrase, "autistic spectrum", into the grammar fiasco,
> "autism
> > spectrum". It's a pet peeve of mine and I am now perseverating on
> it.
> > "Autism" isn't an adjective, therefore cannot modify "spectrum".
> Sigh.
> >
> > Shannon :-)
> >
> >
> > --- "Ari N." <Aneeman@... <Aneeman%40gmail.com>> wrote:
> >
> > > The IAN Project, which is funded by Autism Speaks and hosted by
> > > Kennedy
> > > Krieger, is hosting a poll directed at adults on the spectrum,
> asking
> > > if we
> > > want a "cure". Let's give them a strong and unequivocal "No."
> > > Currently, the
> > > polling is running about 57% against a cure. If you could take a
> few
> > > seconds
> > > out of your day to vote, it would be appreciated.
> > >
> > > http://www.iancommunity.org/cs/about_asds/
> > >
> > > -Ari
> > >
> > >
> > > [Non-text portions of this message have been removed]
> > >
> > >
> > >
> > > --
> > >
> > > Yahoo! Groups Links
> > >
> > >
> > >
> > >
> >
> >
> >
>
>
> [Non-text portions of this message have been removed]
>
>
>
> --
>
> Yahoo! Groups Links
>
>
>
>

#46818 From: "Ari N." <Aneeman@...>
Date: Thu Jan 10, 2008 5:01 am
Subject: Re: Poll on IANProject About Cure
aspergerslib...
Offline Offline
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I'm somewhat annoyed about their referring to Asperger's and PDD-NOS as
"autism-like". They are all part of the same spectrum, and when they're
spoken about in the media, the term autistic people is used to refer to all
of us.

Quote I'm referring to from the site: "Add into the mix conditions that are
*autism-like* –such as Asperger's Syndrome and Pervasive Developmental
Disorder Not Otherwise Specified (PDD-NOS)—and there is even more
variation."



On Jan 9, 2008 11:58 PM, Shannon T Ahern <shannon_terra@...> wrote:

>   I voted!
>
> I also sent a strongly-worded letter about the devolution of a genuine
> medical phrase, "autistic spectrum", into the grammar fiasco, "autism
> spectrum". It's a pet peeve of mine and I am now perseverating on it.
> "Autism" isn't an adjective, therefore cannot modify "spectrum". Sigh.
>
> Shannon :-)
>
>
> --- "Ari N." <Aneeman@... <Aneeman%40gmail.com>> wrote:
>
> > The IAN Project, which is funded by Autism Speaks and hosted by
> > Kennedy
> > Krieger, is hosting a poll directed at adults on the spectrum, asking
> > if we
> > want a "cure". Let's give them a strong and unequivocal "No."
> > Currently, the
> > polling is running about 57% against a cure. If you could take a few
> > seconds
> > out of your day to vote, it would be appreciated.
> >
> > http://www.iancommunity.org/cs/about_asds/
> >
> > -Ari
> >
> >
> > [Non-text portions of this message have been removed]
> >
> >
> >
> > --
> >
> > Yahoo! Groups Links
> >
> >
> >
> >
>
>
>


[Non-text portions of this message have been removed]

#46817 From: Shannon T Ahern <shannon_terra@...>
Date: Thu Jan 10, 2008 4:58 am
Subject: Re: Poll on IANProject About Cure
shannon_terra
Offline Offline
Send Email Send Email
 
I voted!

I also sent a strongly-worded letter about the devolution of a genuine
medical phrase, "autistic spectrum", into the grammar fiasco, "autism
spectrum". It's a pet peeve of mine and I am now perseverating on it.
"Autism" isn't an adjective, therefore cannot modify "spectrum". Sigh.

Shannon :-)


--- "Ari N." <Aneeman@...> wrote:

> The IAN Project, which is funded by Autism Speaks and hosted by
> Kennedy
> Krieger, is hosting a poll directed at adults on the spectrum, asking
> if we
> want a "cure". Let's give them a strong and unequivocal "No."
> Currently, the
> polling is running about 57% against a cure. If you could take a few
> seconds
> out of your day to vote, it would be appreciated.
>
> http://www.iancommunity.org/cs/about_asds/
>
> -Ari
>
>
> [Non-text portions of this message have been removed]
>
>
>
> --
>
> Yahoo! Groups Links
>
>
>
>

#46816 From: Gracie Groove <mscoolout@...>
Date: Thu Jan 10, 2008 4:53 am
Subject: Re: Poll on IANProject About Cure
mscoolout
Offline Offline
Send Email Send Email
 
Done.

The "No" vote is up to 75%.

--- "Ari N." <Aneeman@...> wrote:

> Try it now:
> http://www.iancommunity.org/cs/about_asds/
>
> On Jan 9, 2008 10:56 PM, Gracie Groove
> <mscoolout@...> wrote:
>
> >
> > I agree on the vote, but the link didn't work for
> me
> > even after I deleted a few spaces. Could you
> repost?
> >
> >
> > > -----Original Message-----
> > > From: Ari N. <Aneeman@...
> <Aneeman%40gmail.com>>
> > > Bcc: kgrant5709@... <kgrant5709%40aol.com>
> > > Sent: Wed, 9 Jan 2008 6:39 pm
> > > Subject: [AS-and-Proud-of-it] Poll on IANProject
> > > About Cure
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > > The IAN Project, which is funded by Autism
> Speaks
> > > and hosted by Kennedy
> > > Krieger, is hosting a poll directed at adults on
> the
> > > spectrum, asking if we
> > > want a "cure". Let's give them a strong and
> > > unequivocal "No." Currently, the
> > > polling is running about 57% against a cure. If
> you
> > > could take a few seconds
> > > out of your day to vote, it would be
> appreciated.
> > >
> > > http://www.iancommunity.org/cs/about_asds/
> > >
> > > -Ari
> > >
> > >
> > > [Non-text portions of this message have been
> > > removed]
> > >
> > >
> > >
> > > --
> > >
> > > Yahoo! Groups Links
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> >
>
__________________________________________________________
> > > More new features than ever. Check out the new
> AOL
> > > Mail ! - http://webmail.aol.com
> > >
> > >
> > > [Non-text portions of this message have been
> > > removed]
> > >
> > >
> >
> > =============================================
> >
> > Gonna make you think if it's the last thing I do.
> >
> >
>
__________________________________________________________
> > Never miss a thing. Make Yahoo your home page.
> > http://www.yahoo.com/r/hs
> >
> >
>
>
> [Non-text portions of this message have been
> removed]
>
>


=============================================

Gonna make you think if it's the last thing I do.


      
________________________________________________________________________________\
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