Interesting article of NT girlfriend about (very
likely AS) geek at Dragon'con gamers convention:
http://magic.tcgplayer.com/db/article.asp?ID=5688
     And about a champion of Magic: the Gathering...
http://magic.tcgplayer.com/db/article.asp?ID=5689

     Mircea Pauca, Bucuresti, Romania
[note: I'm not (yet) 'into' Magic: the Gathering, but
into detailed military simulation...]

Shannon Terra wrote:
> I also have Dermatographism, which makes my skin wildly overreact to
> scrapes or punctures.
I'd never heard of that before, but when I looked it up (recognizing
your description of the skin behavior) I realized that I have that as
well.  It seems fairly mild compared to when I was younger, luckily.

> And when I was pregnant, I had some bouts of eczema.
>
> My son has had varying degrees of urticaria and eczema his whole life.
> For years I had to slather him with Eucerin, and sometimes Cortaid (or
> other hydrocortizone creams), to keep it under control. IN the last
> year, as puberty has set in, the skin issues have all but disappeared.
> (To be replaced by pimples and blackheads galore, though!)

I've had eczema my entire life as well, but it doesn't respond to
hydrocortizone creams.  :-p  I've learned that I can control it on my
scalp by using the Neutrogena shampoo intended for severe dandruff
(otherwise I end up with huge weeping patches that I then will go nuts
tearing into with my fingernails), but nothing seems to control it on my
ankles, between my knuckles, or whatever odd place it decides to show up.

I also have -- perhaps relatedly -- hyperhidrosis.  If I sit totally
relaxed and naked in a fairly cold room, I will still end up sweating
like somebody that has been exerting themselves on a hot day.

I have not heard of the "cold urtcaria", but I have had some severe
bouts of skin itching at various times in my life. THe doctors always
say it's anxiety.

I also have Dermatographism, which makes my skin wildly overreact to
scrapes or punctures.

And when I was pregnant, I had some bouts of eczema.

My son has had varying degrees of urticaria and eczema his whole life.
For years I had to slather him with Eucerin, and sometimes Cortaid (or
other hydrocortizone creams), to keep it under control. IN the last
year, as puberty has set in, the skin issues have all but disappeared.
(To be replaced by pimples and blackheads galore, though!)

SA

--- celticess <femaledata@...> wrote:

> Have you heard of cold uticaria?  I get a histamine reaction to cold.
> I also have poor circulation in my hands and feet.  But besides that
> I
> also can get hives, eczema, red/swelling, itchyness, etc.  I was told
> when small my circulatory system was odd.  The sizes of my veins et
> al
> are apprently odd and this is part of why I react as I do.  However I
> find taking antihistamines helps with the cold reaction and using
> a strong cortizoid when it's caused severe eczema.  I have problems
> keeping my hands warm and this also irritates my arthritis.  My hands
> are pretty much always cold... it's just degree's of cold.(and cold
> exposure just makes things worse as mentioned)
>
> - Sue
>
> On Wed, 30 Nov 2005 20:00:44 -0800 (PST)
> Shannon Terra <shannon_terra@...> wrote:
>
> > I had never heard of this, but my hands and feet have ALWAYS had
> times
> > of utterly inexplicable iciness! I suppose maybe I am not
> "clinical",
> > after doing more reading, since I don't think I get WHITE fingers.
> > Nevertheless I have to say it's terribly uncomfortable. I can put a
> > heating pad on my feet, and they will still be so COLD!
> >
> > Shannon
>
>
> ------------------------ Yahoo! Groups Sponsor
> --------------------~-->
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I'm not 100% I'm hyperlexic.  I should of asked the shrink.  But he
says I have >99% vocabularly on the WAIS-III and CAAT2 with a nearly as
high ability to read on the CAAT2.  Yet I have spelling LD(spell
phonetically often) and word finding issues(as well as problems
remembering names... it can take me months to remember a name
sometimes). My non verbal receptive language in other words is
apprently quite high.  My verbal expressive language is okish(ok enough
I can blend but come off as odd), my written expressive is ok as I
can spell check in typing or ask people what the word I'm looking for
is(or substitute or try to search on google for something that means
aprox what I want), and my ability to take in verbal language has
problems. I also have a bit of tinnitus and sometimes lately benign
sounds sound like people speaking to me if I'm trying to sleep.  I
find that a bit disturbing as I know it isn't really people.(I hope
it doesn't mean I'm developing schizophrenia but I'm 38 so that
would be kinda a late onset there)  Here is some info on those other
things:

http://www.aphasia.org/NAAfactsheet.html
http://www.nalandainstitute.org/aspfiles/types.asp#dysnomia
http://www.sjogrens.org/syndrome/
http://www.raynauds.org/faq.cfm
http://dermatology.about.com/cs/hives/a/coldurt.htm
http://www.arthritis.org/conditions/DiseaseCenter/Fibromyalgia/fibromyalgia.asp

- Sue

On Wed, 30 Nov 2005 20:04:32 -0800 (PST)
Shannon Terra <shannon_terra@...> wrote:

> Well, hyperlexia is really common and has well-documented comorbidity
> for people with ASDs.
>
> OTOH, I don't even know what half the other things you mentioned are!
> :-)
>
> SA

Have you heard of cold uticaria?  I get a histamine reaction to cold.
I also have poor circulation in my hands and feet.  But besides that I
also can get hives, eczema, red/swelling, itchyness, etc.  I was told
when small my circulatory system was odd.  The sizes of my veins et al
are apprently odd and this is part of why I react as I do.  However I
find taking antihistamines helps with the cold reaction and using
a strong cortizoid when it's caused severe eczema.  I have problems
keeping my hands warm and this also irritates my arthritis.  My hands
are pretty much always cold... it's just degree's of cold.(and cold
exposure just makes things worse as mentioned)

- Sue

On Wed, 30 Nov 2005 20:00:44 -0800 (PST)
Shannon Terra <shannon_terra@...> wrote:

> I had never heard of this, but my hands and feet have ALWAYS had times
> of utterly inexplicable iciness! I suppose maybe I am not "clinical",
> after doing more reading, since I don't think I get WHITE fingers.
> Nevertheless I have to say it's terribly uncomfortable. I can put a
> heating pad on my feet, and they will still be so COLD!
>
> Shannon

Well, hyperlexia is really common and has well-documented comorbidity
for people with ASDs.

OTOH, I don't even know what half the other things you mentioned are!
:-)

SA

--- celticess <femaledata@...> wrote:

> I've got this but I wonder how many of us have sjogrens too.  Btw FMS
> (which I also have) has 37 other commonly occuring things with it.
> ADHD is one of those but online I've found alot of people with ASD
> also
> seem to have it.  Oh and I also wonder how many of us have symptoms
> of
> hyperlexia and aphasia(and dysnomia for that matter).
>
> - Sue
>
> On Thu, 01 Dec 2005 03:16:49 +0000
> AS-and-Proud-of-it@yahoogroups.com wrote:
>
> >
> > Enter your vote today!  A new poll has been created for the
> > AS-and-Proud-of-it group:
> >
> > Raynaud's Phenomenon is the medical name for unusually cold hands
> and/or feet from time to time, usually caused by an excessive
> vascular response to cold weather.
> >
> >   o I am on the Spectrum and experience Raynaud's Phenomenon
> >   o I am on the Spectrum and do not experience Raynaud's Phenomenon
>
> >   o I am not on the Spectrum and experience Raynaud's Phenomenon
> >   o I am not on the Spectrum and do not experience Raynaud's
> Phenomenon
> >   o I'm not sure if I'm on the Spectrum or if I experience
> Raynaud's Phenomenon
> >
> >
> > To vote, please visit the following web page:
> > http://groups.yahoo.com/group/AS-and-Proud-of-it/surveys?id=2062458
>
> >
> > Note: Please do not reply to this message. Poll votes are
> > not collected via email. To vote, you must go to the Yahoo! Groups
> > web site listed above.
> >
> > Thanks!
>
>
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>
>
>
>
>
>
>
>

I had never heard of this, but my hands and feet have ALWAYS had times
of utterly inexplicable iciness! I suppose maybe I am not "clinical",
after doing more reading, since I don't think I get WHITE fingers.
Nevertheless I have to say it's terribly uncomfortable. I can put a
heating pad on my feet, and they will still be so COLD!

Shannon

--- Denise DeGraf <moggymania@...> wrote:

> desi wrote:
> > wow. i never associated this with AS.
> >
> > AS-and-Proud-of-it@yahoogroups.com wrote:
> > >
> > > Raynaud's Phenomenon is the medical name for unusually cold hands
> > > and/or feet from time to time, usually caused by an excessive
> vascular
> > > response to cold weather.
>
> I've never heard of Raynaud's being associated with the spectrum,
> either... I know it's a part of acquired immune disorders such as
> Systemic Lupus (my mother has it because of that) but I'm not sure of
>
> the link with autism.  Then again, considering we pick up our traits
> genetically, and there are many other odd/rare disabilities more
> prevalent among our kind than NTs, it wouldn't surprise me!
>
> Could the person that made the poll perhaps explain what made them
> suspect a link?  :-)
>
>
> Denise "Moggy" DeGraf
> http://moggymania.livejournal.com
>
>
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I've got this but I wonder how many of us have sjogrens too.  Btw FMS
(which I also have) has 37 other commonly occuring things with it.
ADHD is one of those but online I've found alot of people with ASD also
seem to have it.  Oh and I also wonder how many of us have symptoms of
hyperlexia and aphasia(and dysnomia for that matter).

- Sue

On Thu, 01 Dec 2005 03:16:49 +0000
AS-and-Proud-of-it@yahoogroups.com wrote:

>
> Enter your vote today!  A new poll has been created for the
> AS-and-Proud-of-it group:
>
> Raynaud's Phenomenon is the medical name for unusually cold hands and/or feet
from time to time, usually caused by an excessive vascular response to cold
weather.
>
>   o I am on the Spectrum and experience Raynaud's Phenomenon
>   o I am on the Spectrum and do not experience Raynaud's Phenomenon
>   o I am not on the Spectrum and experience Raynaud's Phenomenon
>   o I am not on the Spectrum and do not experience Raynaud's Phenomenon
>   o I'm not sure if I'm on the Spectrum or if I experience Raynaud's
Phenomenon
>
>
> To vote, please visit the following web page:
> http://groups.yahoo.com/group/AS-and-Proud-of-it/surveys?id=2062458
>
> Note: Please do not reply to this message. Poll votes are
> not collected via email. To vote, you must go to the Yahoo! Groups
> web site listed above.
>
> Thanks!

desi wrote:
> wow. i never associated this with AS.
>
> AS-and-Proud-of-it@yahoogroups.com wrote:
> >
> > Raynaud's Phenomenon is the medical name for unusually cold hands
> > and/or feet from time to time, usually caused by an excessive vascular
> > response to cold weather.

I've never heard of Raynaud's being associated with the spectrum,
either... I know it's a part of acquired immune disorders such as
Systemic Lupus (my mother has it because of that) but I'm not sure of
the link with autism.  Then again, considering we pick up our traits
genetically, and there are many other odd/rare disabilities more
prevalent among our kind than NTs, it wouldn't surprise me!

Could the person that made the poll perhaps explain what made them
suspect a link?  :-)


Denise "Moggy" DeGraf
http://moggymania.livejournal.com

wow. i never associated this with AS.

AS-and-Proud-of-it@yahoogroups.com wrote:

>
> Enter your vote today!  A new poll has been created for the
> AS-and-Proud-of-it group:
>
> Raynaud's Phenomenon is the medical name for unusually cold hands
> and/or feet from time to time, usually caused by an excessive vascular
> response to cold weather.
>
>   o I am on the Spectrum and experience Raynaud's Phenomenon
>   o I am on the Spectrum and do not experience Raynaud's Phenomenon
>   o I am not on the Spectrum and experience Raynaud's Phenomenon
>   o I am not on the Spectrum and do not experience Raynaud's Phenomenon
>   o I'm not sure if I'm on the Spectrum or if I experience Raynaud's
> Phenomenon
>
>
> To vote, please visit the following web page:
> http://groups.yahoo.com/group/AS-and-Proud-of-it/surveys?id=2062458
>
> Note: Please do not reply to this message. Poll votes are
> not collected via email. To vote, you must go to the Yahoo! Groups
> web site listed above.
>
> Thanks!
>
>
>
>
>
>
>
>
>
> --
>
>
>
>
> SPONSORED LINKS
> Autism spectrum
>
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[Non-text portions of this message have been removed]

That must be it. Thanks! :-)

--- Aaron Hosford <hosford42@...> wrote:

> Here's a direct link:
> http://groups.yahoo.com/group/autisminperspective
>
>   Maybe there was a delay before the server was updated...
>
>   --Aaron
>
> Shannon Terra <shannon_terra@...> wrote:
>   Why can't I locate the group? It says there isn't one by that name
> when
> I paste it in the search. What am I doing wrong?
>
> Thanks!
>
> SA
>
> --- Aaron Hosford <hosford42@...> wrote:
>
> > I just started a yahoo group called Autism: A Different Perspective
> > (autisminperspective@yahoogroups.com), for the purpose of working
> on
> > the book, T-shirt, and other ideas for spreading the word. Any of
> you
> > are welcome to join.
> >
> >   --Aaron
> >
> > Shannon Terra <shannon_terra@...> wrote:
> >   Oooh. I'd like to contribute! And the title idea is awesome!
> > Hehehehe!!! :-)
> >
> > --- Aaron Hosford <hosford42@...> wrote:
> >
> > > I like the book idea a lot! Especially having multiple
> > contributors.
> > >
> > >   As for trying to fit into the NT world, I think it's a
> necessary
> > > evil, and will probably continue to be so to some extent. The
> trick
> > > is to find the balance between being yourself and being
> compatible
> > > with those around you, and I think that this is something
> everyone
> > > must figure out for themselves -- even NTs, though it's probably
> > not
> > > as difficult. The unique gift that separates we humans from the
> > rest
> > > of the world is our ability to adapt to or change our
> environment,
> > so
> > > there is no shame in using that gift.
> > >
> > >   --Aaron
> > >
> > > Beti <mbdpargun@...> wrote:
> > >   BTW, I love the T-shirt idea and I'd be the first to buy it if
> it
> >
> > > comes out. Also Aaron, what about writing a book about all of
> this
> > > stuff? Maybe a book with different chapters written by different
> > > listmates here? And the title could be "Yeah, You Look Weird to
> Me
> > > Too" or something like that. Just a suggestion, FWIW. I love the
> > > brainstorming here.
> > >
> > > Okay, finally: what do you guys think of auties like Temple
> Grandin
> >
> > > and Donna Williams? Do you think that they're trying too hard to
> > > adapt to the NT world? I personally think that they're main
> > > contribution lies in changing many preconceptions about people on
>
> > > the spectrum. What do you all think? Too many questions, sorry.
> > >
> > > Beti
> > >
> > > ---------------------------------
> > >  Yahoo! Music Unlimited - Access over 1 million songs. Try it
> free.
> > >
> > > [Non-text portions of this message have been removed]
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> > >
> >
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> > >
> > >
> > > --
> > >
> > > Yahoo! Groups Links
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> >
> >
> >
> > --
> >
> >
> >
> >
> >   SPONSORED LINKS
> >         Autism spectrum   9;s syndrome
> >
> > ---------------------------------
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> >
> >
> >     Visit your group "AS-and-Proud-of-it" on the web.
> >
> >     To unsubscribe from this group, send an email to:
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> >
> >     Your use of Yahoo! Groups is subject to the Yahoo! Terms of
> > Service.
> >
> >
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> >
> >
> >
> >
> >
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> >
> > [Non-text portions of this message have been removed]
> >
> >
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> >
>
--------------------------------------------------------------------~->
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> >
> > --
> >
> > Yahoo! Groups Links
> >
> >
> >
> >
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> >
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>
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> --
>
>
>
>
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>
> [Non-text portions of this message have been removed]
>
>
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> ------------------------ Yahoo! Groups Sponsor
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> Hospital.
> http://us.click.yahoo.com/JrD4fD/lbOLAA/xGEGAA/cPItlB/TM
>
--------------------------------------------------------------------~->
>
>
> --
>
> Yahoo! Groups Links
>
>
>
>
>
>
>

That must be it. Thanks! :-)

--- Aaron Hosford <hosford42@...> wrote:

> Here's a direct link:
> http://groups.yahoo.com/group/autisminperspective
>
>   Maybe there was a delay before the server was updated...
>
>   --Aaron
>
> Shannon Terra <shannon_terra@...> wrote:
>   Why can't I locate the group? It says there isn't one by that name
> when
> I paste it in the search. What am I doing wrong?
>
> Thanks!
>
> SA
>
> --- Aaron Hosford <hosford42@...> wrote:
>
> > I just started a yahoo group called Autism: A Different Perspective
> > (autisminperspective@yahoogroups.com), for the purpose of working
> on
> > the book, T-shirt, and other ideas for spreading the word. Any of
> you
> > are welcome to join.
> >
> >   --Aaron
> >
> > Shannon Terra <shannon_terra@...> wrote:
> >   Oooh. I'd like to contribute! And the title idea is awesome!
> > Hehehehe!!! :-)
> >
> > --- Aaron Hosford <hosford42@...> wrote:
> >
> > > I like the book idea a lot! Especially having multiple
> > contributors.
> > >
> > >   As for trying to fit into the NT world, I think it's a
> necessary
> > > evil, and will probably continue to be so to some extent. The
> trick
> > > is to find the balance between being yourself and being
> compatible
> > > with those around you, and I think that this is something
> everyone
> > > must figure out for themselves -- even NTs, though it's probably
> > not
> > > as difficult. The unique gift that separates we humans from the
> > rest
> > > of the world is our ability to adapt to or change our
> environment,
> > so
> > > there is no shame in using that gift.
> > >
> > >   --Aaron
> > >
> > > Beti <mbdpargun@...> wrote:
> > >   BTW, I love the T-shirt idea and I'd be the first to buy it if
> it
> >
> > > comes out. Also Aaron, what about writing a book about all of
> this
> > > stuff? Maybe a book with different chapters written by different
> > > listmates here? And the title could be "Yeah, You Look Weird to
> Me
> > > Too" or something like that. Just a suggestion, FWIW. I love the
> > > brainstorming here.
> > >
> > > Okay, finally: what do you guys think of auties like Temple
> Grandin
> >
> > > and Donna Williams? Do you think that they're trying too hard to
> > > adapt to the NT world? I personally think that they're main
> > > contribution lies in changing many preconceptions about people on
>
> > > the spectrum. What do you all think? Too many questions, sorry.
> > >
> > > Beti
> > >
> > > ---------------------------------
> > >  Yahoo! Music Unlimited - Access over 1 million songs. Try it
> free.
> > >
> > > [Non-text portions of this message have been removed]
> > >
> > >
> > >
> > > ------------------------ Yahoo! Groups Sponsor
> > > --------------------~-->
> > > Help save the life of a child. Support St. Jude Children's
> Research
> > > Hospital.
> > > http://us.click.yahoo.com/JrD4fD/lbOLAA/xGEGAA/cPItlB/TM
> > >
> >
>
--------------------------------------------------------------------~->
> > >
> > >
> > > --
> > >
> > > Yahoo! Groups Links
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> >
> >
> >
> > --
> >
> >
> >
> >
> >   SPONSORED LINKS
> >         Autism spectrum   9;s syndrome
> >
> > ---------------------------------
> >   YAHOO! GROUPS LINKS
> >
> >
> >     Visit your group "AS-and-Proud-of-it" on the web.
> >
> >     To unsubscribe from this group, send an email to:
> >  AS-and-Proud-of-it-unsubscribe@yahoogroups.com
> >
> >     Your use of Yahoo! Groups is subject to the Yahoo! Terms of
> > Service.
> >
> >
> > ---------------------------------
> >
> >
> >
> >
> >
> >
> > ---------------------------------
> >  Yahoo! Music Unlimited - Access over 1 million songs. Try it free.
> >
> > [Non-text portions of this message have been removed]
> >
> >
> >
> > ------------------------ Yahoo! Groups Sponsor
> > --------------------~-->
> > Help save the life of a child. Support St. Jude Children's Research
> > Hospital.
> > http://us.click.yahoo.com/JrD4fD/lbOLAA/xGEGAA/cPItlB/TM
> >
>
--------------------------------------------------------------------~->
> >
> >
> > --
> >
> > Yahoo! Groups Links
> >
> >
> >
> >
> >
> >
> >
>
>
>
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>
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Enter your vote today!  A new poll has been created for the
AS-and-Proud-of-it group:

Raynaud's Phenomenon is the medical name for unusually cold hands and/or feet
from time to time, usually caused by an excessive vascular response to cold
weather.

   o I am on the Spectrum and experience Raynaud's Phenomenon
   o I am on the Spectrum and do not experience Raynaud's Phenomenon
   o I am not on the Spectrum and experience Raynaud's Phenomenon
   o I am not on the Spectrum and do not experience Raynaud's Phenomenon
   o I'm not sure if I'm on the Spectrum or if I experience Raynaud's Phenomenon


To vote, please visit the following web page:
http://groups.yahoo.com/group/AS-and-Proud-of-it/surveys?id=2062458

Note: Please do not reply to this message. Poll votes are
not collected via email. To vote, you must go to the Yahoo! Groups
web site listed above.

Thanks!

Here's a direct link: http://groups.yahoo.com/group/autisminperspective

   Maybe there was a delay before the server was updated...

   --Aaron

Shannon Terra <shannon_terra@...> wrote:
   Why can't I locate the group? It says there isn't one by that name when
I paste it in the search. What am I doing wrong?

Thanks!

SA

--- Aaron Hosford <hosford42@...> wrote:

> I just started a yahoo group called Autism: A Different Perspective
> (autisminperspective@yahoogroups.com), for the purpose of working on
> the book, T-shirt, and other ideas for spreading the word. Any of you
> are welcome to join.
>
>   --Aaron
>
> Shannon Terra <shannon_terra@...> wrote:
>   Oooh. I'd like to contribute! And the title idea is awesome!
> Hehehehe!!! :-)
>
> --- Aaron Hosford <hosford42@...> wrote:
>
> > I like the book idea a lot! Especially having multiple
> contributors.
> >
> >   As for trying to fit into the NT world, I think it's a necessary
> > evil, and will probably continue to be so to some extent. The trick
> > is to find the balance between being yourself and being compatible
> > with those around you, and I think that this is something everyone
> > must figure out for themselves -- even NTs, though it's probably
> not
> > as difficult. The unique gift that separates we humans from the
> rest
> > of the world is our ability to adapt to or change our environment,
> so
> > there is no shame in using that gift.
> >
> >   --Aaron
> >
> > Beti <mbdpargun@...> wrote:
> >   BTW, I love the T-shirt idea and I'd be the first to buy it if it
>
> > comes out. Also Aaron, what about writing a book about all of this
> > stuff? Maybe a book with different chapters written by different
> > listmates here? And the title could be "Yeah, You Look Weird to Me
> > Too" or something like that. Just a suggestion, FWIW. I love the
> > brainstorming here.
> >
> > Okay, finally: what do you guys think of auties like Temple Grandin
>
> > and Donna Williams? Do you think that they're trying too hard to
> > adapt to the NT world? I personally think that they're main
> > contribution lies in changing many preconceptions about people on
> > the spectrum. What do you all think? Too many questions, sorry.
> >
> > Beti
> >
> > ---------------------------------
> >  Yahoo! Music Unlimited - Access over 1 million songs. Try it free.
> >
> > [Non-text portions of this message have been removed]
> >
> >
> >
> > ------------------------ Yahoo! Groups Sponsor
> > --------------------~-->
> > Help save the life of a child. Support St. Jude Children's Research
> > Hospital.
> > http://us.click.yahoo.com/JrD4fD/lbOLAA/xGEGAA/cPItlB/TM
> >
>
--------------------------------------------------------------------~->
> >
> >
> > --
> >
> > Yahoo! Groups Links
> >
> >
> >
> >
> >
> >
> >
>
>
>
> --
>
>
>
>
>   SPONSORED LINKS
>         Autism spectrum   9;s syndrome
>
> ---------------------------------
>   YAHOO! GROUPS LINKS
>
>
>     Visit your group "AS-and-Proud-of-it" on the web.
>
>     To unsubscribe from this group, send an email to:
>  AS-and-Proud-of-it-unsubscribe@yahoogroups.com
>
>     Your use of Yahoo! Groups is subject to the Yahoo! Terms of
> Service.
>
>
> ---------------------------------
>
>
>
>
>
>
> ---------------------------------
>  Yahoo! Music Unlimited - Access over 1 million songs. Try it free.
>
> [Non-text portions of this message have been removed]
>
>
>
> ------------------------ Yahoo! Groups Sponsor
> --------------------~-->
> Help save the life of a child. Support St. Jude Children's Research
> Hospital.
> http://us.click.yahoo.com/JrD4fD/lbOLAA/xGEGAA/cPItlB/TM
>
--------------------------------------------------------------------~->
>
>
> --
>
> Yahoo! Groups Links
>
>
>
>
>
>
>



--




   SPONSORED LINKS
         Autism spectrum   9;s syndrome

---------------------------------
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     Visit your group "AS-and-Proud-of-it" on the web.

     To unsubscribe from this group, send an email to:
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---------------------------------






---------------------------------
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---------------------------------
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[Non-text portions of this message have been removed]

I'm one of those people who is in the upper reaches of the spectrum,
somewhere between AS and "shadow syndrome" or "broader autistic
phenotype". My diagnosis came later in life - at 30 - at a time in
which I just seemed like a "normal" adult with a few anxiety issues. I
had a classically AS/severe ADHD type of childhood, however.

I wanted to make a few points.

1) I don't consider doing whatever you need to do to cope with the
world around you *in a way that pleases you*, "trying too hard to
adapt to the NT world". Some of my  mechanisms of coping (diet) are
similar to Donna Williams' and some (medication) are similar to
Grandin's. I think the key difference is this question... is your
coping mechanism imposed upon you by others and does it cause you
distress? My coping mechanisms make my life a lot easier.

2) I did not recognize myself as having AS traits until late into my
20s. I am actually glad it was so; I did not form a self-concept based
upon having any kind of diagnosis. Instead, I formed a self-concept
around my own individuality. I still maintain it as thus. I see my
quirks and traits as "Dreia traits", not "part of a neuropathology".
One thing that disturbs me about much of the AS community and the
neuropsych community is the tendency to own many positive human
characteristics, gifts and talents up to a neuropathology once one has
a diagnosis.


On 11/24/05, WD Loughman <wdloughman@...> wrote:> So the
coping methods of those two groups, early- & late-diagnosis, will
> be very different.  Perhaps the 30-ish & under crowd could learn
> something useful from the rest of us.
> The differences in methods and outcomes _should_ be documented.  Before
> we die out, leaving no more "un-sullied ones" for study.
>
> - Bill (73-and-counting ... "fresh" AS)
>
>
>
>
>
>
>
>
>
> --
>
>
>
> ________________________________
> YAHOO! GROUPS LINKS
>
>  Visit your group "AS-and-Proud-of-it" on the web.
>
>  To unsubscribe from this group, send an email to:
>  AS-and-Proud-of-it-unsubscribe@yahoogroups.com
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>  Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.
>  To unsubscribe from this group, send an email to:
>  AS-and-Proud-of-it-unsubscribe@yahoogroups.com
>
>  Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.
>  Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.
> ________________________________
>


--
I love fools' experiments... I am always making them.
  -- Charles Darwin

Why can't I locate the group? It says there isn't one by that name when
I paste it in the search. What am I doing wrong?

Thanks!

SA

--- Aaron Hosford <hosford42@...> wrote:

> I just started a yahoo group called Autism: A Different Perspective
> (autisminperspective@yahoogroups.com), for the purpose of working on
> the book, T-shirt, and other ideas for spreading the word. Any of you
> are welcome to join.
>
>   --Aaron
>
> Shannon Terra <shannon_terra@...> wrote:
>   Oooh. I'd like to contribute! And the title idea is awesome!
> Hehehehe!!! :-)
>
> --- Aaron Hosford <hosford42@...> wrote:
>
> > I like the book idea a lot! Especially having multiple
> contributors.
> >
> >   As for trying to fit into the NT world, I think it's a necessary
> > evil, and will probably continue to be so to some extent. The trick
> > is to find the balance between being yourself and being compatible
> > with those around you, and I think that this is something everyone
> > must figure out for themselves -- even NTs, though it's probably
> not
> > as difficult. The unique gift that separates we humans from the
> rest
> > of the world is our ability to adapt to or change our environment,
> so
> > there is no shame in using that gift.
> >
> >   --Aaron
> >
> > Beti <mbdpargun@...> wrote:
> >   BTW, I love the T-shirt idea and I'd be the first to buy it if it
>
> > comes out. Also Aaron, what about writing a book about all of this
> > stuff? Maybe a book with different chapters written by different
> > listmates here? And the title could be "Yeah, You Look Weird to Me
> > Too" or something like that. Just a suggestion, FWIW. I love the
> > brainstorming here.
> >
> > Okay, finally: what do you guys think of auties like Temple Grandin
>
> > and Donna Williams? Do you think that they're trying too hard to
> > adapt to the NT world? I personally think that they're main
> > contribution lies in changing many preconceptions about people on
> > the spectrum. What do you all think? Too many questions, sorry.
> >
> > Beti
> >
> > ---------------------------------
> >  Yahoo! Music Unlimited - Access over 1 million songs. Try it free.
> >
> > [Non-text portions of this message have been removed]
> >
> >
> >
> > ------------------------ Yahoo! Groups Sponsor
> > --------------------~-->
> > Help save the life of a child. Support St. Jude Children's Research
> > Hospital.
> > http://us.click.yahoo.com/JrD4fD/lbOLAA/xGEGAA/cPItlB/TM
> >
>
--------------------------------------------------------------------~->
> >
> >
> > --
> >
> > Yahoo! Groups Links
> >
> >
> >
> >
> >
> >
> >
>
>
>
> --
>
>
>
>
>   SPONSORED LINKS
>         Autism spectrum   9;s syndrome
>
> ---------------------------------
>   YAHOO! GROUPS LINKS
>
>
>     Visit your group "AS-and-Proud-of-it" on the web.
>
>     To unsubscribe from this group, send an email to:
>  AS-and-Proud-of-it-unsubscribe@yahoogroups.com
>
>     Your use of Yahoo! Groups is subject to the Yahoo! Terms of
> Service.
>
>
> ---------------------------------
>
>
>
>
>
>
> ---------------------------------
>  Yahoo! Music Unlimited - Access over 1 million songs. Try it free.
>
> [Non-text portions of this message have been removed]
>
>
>
> ------------------------ Yahoo! Groups Sponsor
> --------------------~-->
> Help save the life of a child. Support St. Jude Children's Research
> Hospital.
> http://us.click.yahoo.com/JrD4fD/lbOLAA/xGEGAA/cPItlB/TM
>
--------------------------------------------------------------------~->
>
>
> --
>
> Yahoo! Groups Links
>
>
>
>
>
>
>

I just started a yahoo group called Autism: A Different Perspective
(autisminperspective@yahoogroups.com), for the purpose of working on the book,
T-shirt, and other ideas for spreading the word. Any of you are welcome to join.

   --Aaron

Shannon Terra <shannon_terra@...> wrote:
   Oooh. I'd like to contribute! And the title idea is awesome!
Hehehehe!!! :-)

--- Aaron Hosford <hosford42@...> wrote:

> I like the book idea a lot! Especially having multiple contributors.
>
>   As for trying to fit into the NT world, I think it's a necessary
> evil, and will probably continue to be so to some extent. The trick
> is to find the balance between being yourself and being compatible
> with those around you, and I think that this is something everyone
> must figure out for themselves -- even NTs, though it's probably not
> as difficult. The unique gift that separates we humans from the rest
> of the world is our ability to adapt to or change our environment, so
> there is no shame in using that gift.
>
>   --Aaron
>
> Beti <mbdpargun@...> wrote:
>   BTW, I love the T-shirt idea and I'd be the first to buy it if it
> comes out. Also Aaron, what about writing a book about all of this
> stuff? Maybe a book with different chapters written by different
> listmates here? And the title could be "Yeah, You Look Weird to Me
> Too" or something like that. Just a suggestion, FWIW. I love the
> brainstorming here.
>
> Okay, finally: what do you guys think of auties like Temple Grandin
> and Donna Williams? Do you think that they're trying too hard to
> adapt to the NT world? I personally think that they're main
> contribution lies in changing many preconceptions about people on
> the spectrum. What do you all think? Too many questions, sorry.
>
> Beti
>
> ---------------------------------
>  Yahoo! Music Unlimited - Access over 1 million songs. Try it free.
>
> [Non-text portions of this message have been removed]
>
>
>
> ------------------------ Yahoo! Groups Sponsor
> --------------------~-->
> Help save the life of a child. Support St. Jude Children's Research
> Hospital.
> http://us.click.yahoo.com/JrD4fD/lbOLAA/xGEGAA/cPItlB/TM
>
--------------------------------------------------------------------~->
>
>
> --
>
> Yahoo! Groups Links
>
>
>
>
>
>
>



--




   SPONSORED LINKS
         Autism spectrum   9;s syndrome

---------------------------------
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     Visit your group "AS-and-Proud-of-it" on the web.

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---------------------------------






---------------------------------
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[Non-text portions of this message have been removed]

What bothers me is that it is called diagnosis. Diagnosis implies disease, and I
don't think that's what we have. Maybe "identification"? It is good to know
we're different; it helps to understand ourselves and others. But when the idea
that being different is a disease creeps in, it opens the door to all kinds of
negative results including discrimination, low expectations, pity, etc. If we
could be identified from the start as different, but treated as equals instead
of diseased, I think that would be the ideal way. Too bad ideals almost never
happen.

   --Aaron

mommyin0305@... wrote:

In a message dated 11/25/2005 1:28:17 P.M. Eastern Standard Time,
shannon_terra@... writes:

I  respectfully disagree that being undiagnosed is a benefit! There are
many  adults who suffered needlessly and had no SUPPORT who MIGHT have
had very  different lives had they BEEN supported.



I have to completely agree.  I was not treated well because of my  AS.  I was
very smart, but I couldn't organize myself.  And I have  certain things I
just have to touch and certain things I just can't  touch. Plus meltdowns.  And
the obsessions...I won't even go  there.

Diagnosis would have allowed me to get support, both educationally and at
home.  Plus, someone would have been able to give me tips on how to handle  my
hypersensitivities to light, sound etc.

jmo, ymmv

---------------------------------
  Yahoo! DSL Something to write home about. Just $16.99/mo. or less

[Non-text portions of this message have been removed]

I've noticed in myself that often I'm feeling something but not aware of it. It
takes it reaching a certain threshold before it enters my consciousness. I think
maybe it just doesn't cross your threshold most of the time, but I bet you still
think and act like you are feeling those things because you are subconsciously.
"Professionals" don't think we express our emotions as much as NTs, but I think
we just express them differently.

   --Aaron

bethohmy2000 <bethohmy2000@...> wrote:
   After reading the article in suite101, I guess when aspies fit all of
the criteria according to thier diagnoses and they do have emotions
and empathy, they might not fit the whole thing after all if they do
have emotions and empathy but they just don't know how to express it.


I have been accused of not caring and all i care about is myself and
all I think about is myself. Even my own family has said that to me.
"All you care about is yourself." When I wasin highs chool, I would
try to care about others by trying to show empathy but they would tell
me to mind my own business, go away, etc. Then later on they would
tell me I don't care about anyone and I would tell them everytime I do
all they do is tell me to mind my own business so I had learned I'm
supposed to ignore them, pretend I don't see it and then they would
tell me 'nevermind' and move on.  I wouldn't feel anything inside of
me. Does that mean I don't have any emotion in me when I don't feel
anything?

Back in August, when my grandmother got a heart attack at the top of
the ski mountain in Aspen Colorado at my cousin's wedding, I got
scared when I heard my Mom telling my Dad I got really scared. I was
scared she was going to die and I was also scared that she would have
to come home with us and we wouldn't be able to do what i wanted to do
so I was very upset and scared for her health. Then the next day, we
went and saw her in the hospital and she told us that the doctor said
she can go home with her husband through the mountians and would be
able to fly back to Wisconisn. I felt so happy.
I had this feeling in me I've never felt before it seemed like because
I have no memory of having that excitment until now. It made me wonder
if NTs feel their emotions all the time and I don't always do. I can
just be sitting doing my thing like watching Tv and not feel a thing.

There come times when I do feel depressed, bored, restless,
frustration, annoyed, lost, etc.

---------------------------------
  Yahoo! Music Unlimited - Access over 1 million songs. Try it free.

[Non-text portions of this message have been removed]

At the last place I worked, I had time occasionally to stand out front of the
building and watch people. One day a man who was clearly homeless (his hair was
unkempt, he hadn't shaved, and his skin was worn and blistered from the
elements) came walking past the store in a suit! Though the suit was used and
mismatched, I was still intrigued, so I continued to follow him on his course
through the parking lot. He walked into the gas station next door, and after a
couple of minutes re-emerged carrying a couple of trash bags. He carried them
out to the dumpster, then went back into the gas station. When he came back out,
he was carrying a couple of bills in his hand and wearing a smile. It was
immediately clear how he had gotten the suit.

   Seeing this level of entrepreneurship in someone I would expect to be hopeless
and resigned really changed my perspective. I wouldn't be surprised to find out
someday that this guy had worked until he could really appear like he wasn't
homeless anymore, and thus was able to get a more reliable source of income
working a respectable job. After that it would only be a matter of time until he
could afford a place to live.

   I would follow his lead to start off. I'm sure there are many other ways to
earn money as a homeless person, and I would spend plenty of time thinking about
this. One interesting idea: Have you ever done the math on how much someone
standing at a streetlight makes, on average? As a really pessimistic estimate,
imagine you only average $1 each time the light turns red, and the light only
turns red every 10 minutes. You are already making $6/hr, better than minimum
wage, and tax-free at that. If you average $5 per stop (not uncommon in a large
city) and the light is red every 6 minutes, you are making $50/hr. Sometimes I
think maybe I should quit my job ;) but I like being productive and useful.

   --Aaron

quiet freedom <quiet_freedom@...> wrote:
   Aaron wrote:

"I finally realized I don't need any particular person
or thing to get where I want to go. If I were homeless
and naked on the street, I could find a way back out
(ask me -- I'll tell you what I'd do)."

``````
Hi Aaron,

I'm new, here, and I'm enjoying your thoughts. The
above statement intrigued me... okay, what would you
do?

just call me,
-"quiet"

---------------------------------
  Yahoo! Music Unlimited - Access over 1 million songs. Try it free.

[Non-text portions of this message have been removed]

Oooh. I'd like to contribute! And the title idea is awesome!
Hehehehe!!! :-)

--- Aaron Hosford <hosford42@...> wrote:

> I like the book idea a lot! Especially having multiple contributors.
>
>   As for trying to fit into the NT world, I think it's a necessary
> evil, and will probably continue to be so to some extent. The trick
> is to find the balance between being yourself and being compatible
> with those around you, and I think that this is something everyone
> must figure out for themselves -- even NTs, though it's probably not
> as difficult. The unique gift that separates we humans from the rest
> of the world is our ability to adapt to or change our environment, so
> there is no shame in using that gift.
>
>   --Aaron
>
> Beti <mbdpargun@...> wrote:
>   BTW, I love the T-shirt idea and I'd be the first to buy it if it
> comes out. Also Aaron, what about writing a book about all of this
> stuff? Maybe a book with different chapters written by different
> listmates here? And the title could be "Yeah, You Look Weird to Me
> Too" or something like that. Just a suggestion, FWIW. I love the
> brainstorming here.
>
> Okay, finally: what do you guys think of auties like Temple Grandin
> and Donna Williams? Do you think that they're trying too hard to
> adapt to the NT world? I personally think that they're main
> contribution lies in changing many preconceptions about people on
> the spectrum. What do you all think? Too many questions, sorry.
>
> Beti
>
> ---------------------------------
>  Yahoo! Music Unlimited - Access over 1 million songs. Try it free.
>
> [Non-text portions of this message have been removed]
>
>
>
> ------------------------ Yahoo! Groups Sponsor
> --------------------~-->
> Help save the life of a child. Support St. Jude Children's Research
> Hospital.
> http://us.click.yahoo.com/JrD4fD/lbOLAA/xGEGAA/cPItlB/TM
>
--------------------------------------------------------------------~->
>
>
> --
>
> Yahoo! Groups Links
>
>
>
>
>
>
>

I like the book idea a lot! Especially having multiple contributors.

   As for trying to fit into the NT world, I think it's a necessary evil, and
will probably continue to be so to some extent. The trick is to find the balance
between being yourself and being compatible with those around you, and I think
that this is something everyone must figure out for themselves -- even NTs,
though it's probably not as difficult. The unique gift that separates we humans
from the rest of the world is our ability to adapt to or change our environment,
so there is no shame in using that gift.

   --Aaron

Beti <mbdpargun@...> wrote:
   BTW, I love the T-shirt idea and I'd be the first to buy it if it
comes out. Also Aaron, what about writing a book about all of this
stuff? Maybe a book with different chapters written by different
listmates here? And the title could be "Yeah, You Look Weird to Me
Too" or something like that. Just a suggestion, FWIW. I love the
brainstorming here.

Okay, finally: what do you guys think of auties like Temple Grandin
and Donna Williams? Do you think that they're trying too hard to
adapt to the NT world? I personally think that they're main
contribution lies in changing many preconceptions about people on
the spectrum. What do you all think? Too many questions, sorry.

Beti

---------------------------------
  Yahoo! Music Unlimited - Access over 1 million songs. Try it free.

[Non-text portions of this message have been removed]

This is a British program about some students at a school for students
with Autism.
I thought they showed too much of the stress and the tantrums. On the
other hands the kids interviewed seemed to have a good grasp about
their situation and seemed very smart.

--- In AS-and-Proud-of-it@yahoogroups.com, "bethohmy2000"
<bethohmy2000@y...> wrote:
>
> Dudes, when I first saw Murcery Rising, I thought all autistics were
> like Simon. Can't talk, scream when touched, can do those code things
> Simon can. It was even the first time I heard the word 'autistic.'
>

That pretty much describes my reaction to Raymond (Dustin Hoffman's
character in Rain Man).

Bob

This is about a therapist who copies autistic behavior in order to
communicate with autist.

-Marcie

http://www.autismtoday.com/find.htm

http://www.californiaconnected.org/wp/archives/181

Link to Taylor Cross's film, "Normal People Scare
Me". Taylor is a 16 year old boy with autism who created this film for
a high school film festival. The link contains a
short documentary about Taylor and the film, but not the film itself.

Beti

In a message dated 11/25/2005 1:28:17 P.M. Eastern Standard Time,
shannon_terra@... writes:

I  respectfully disagree that being undiagnosed is a benefit! There are
many  adults who suffered needlessly and had no SUPPORT who MIGHT have
had very  different lives had they BEEN supported.



I have to completely agree.  I was not treated well because of my  AS.  I was
very smart, but I couldn't organize myself.  And I have  certain things I
just have to touch and certain things I just can't  touch. Plus meltdowns.  And
the obsessions...I won't even go  there.

Diagnosis would have allowed me to get support, both educationally and at
home.  Plus, someone would have been able to give me tips on how to handle  my
hypersensitivities to light, sound etc.

jmo, ymmv




[Non-text portions of this message have been removed]

Mare Ann wrote:
>>Whoever wants to pick up that project:  Remember that Adult AS comes in
>
> flavors.  Those diagnosed as children who are adults now; and those
> *not* diagnosed as children, but rather only late in life - as I was.
> [snip]
> So the coping methods of those two groups, early- & late-diagnosis,
> will
> be very different.  Perhaps the 30-ish & under crowd could learn
> something useful from the rest of us.
> The differences in methods and outcomes _should_ be documented.  Before
> we die out, leaving no more "un-sullied ones" for study.
>
> - Bill (73-and-counting ... "fresh" AS)>
>
>   That's basically what I was thinking.  People who are new to something are
in one of the best positions to learn, because they haven't absorbed other
people's opinions.  So, both people that have always known and people who just
found out a month ago have something to share.
>
>   I also find interesting the differences between the reactions of people when
they find out and how there opinion changes over time (in both cases).
>
>   -Marcie

My "reactions" likely are as atypical as they could be.  I "knew" all my
life something was odd about me, and investigated what I could when I
could over nearly seven decades.  In April of this year, I *really*
knew.  So *I* initiated meetings with a shrink; walked in "off the
street" as it were, and asked him to "Confirm or Deny."  Shortly ago he
confirmed.

As so many other adult "fresh AS" have reported, I experienced vast
relief having a name at last for my, ah, ...condition.  But knowing the
name _for sure_ didn't change anything for me.  For some years I'd been
mulling the potential consequences, finding little to disturb me.

Since I'm settled into a reasonably comfortable retirement, I don't
expect a diagnosis to make any difference.  If it did, at my age, "Who
cares?"

In another post, I said I'd "dodged the bullet".  The implied extreme
good fortune - now, participating in this forum - forces me to examine
critically the experiences of others.  My own reactions inevitably are,
will be, vicarious.  By turns and by degrees, I'm fascinated and appalled.

Those feelings are enhanced as I consider a (far distant) grandson's
circumstance and compare it to what I read here.  Diagnosed c.25 years
ago as Tourette's, he gets meds, "therapies", and other "interventions"
which have made his life hell.  Almost certainly he's really AS.

- Bill

>Whoever wants to pick up that project:  Remember that Adult AS comes in
flavors.  Those diagnosed as children who are adults now; and those
*not* diagnosed as children, but rather only late in life - as I was.
[snip]
So the coping methods of those two groups, early- & late-diagnosis,
will
be very different.  Perhaps the 30-ish & under crowd could learn
something useful from the rest of us.
The differences in methods and outcomes _should_ be documented.  Before
we die out, leaving no more "un-sullied ones" for study.

- Bill (73-and-counting ... "fresh" AS)>

   That's basically what I was thinking.  People who are new to something are in
one of the best positions to learn, because they haven't absorbed other people's
opinions.  So, both people that have always known and people who just found out
a month ago have something to share.

   I also find interesting the differences between the reactions of people when
they find out and how there opinion changes over time (in both cases).

   -Marcie


---------------------------------
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[Non-text portions of this message have been removed]

Shannon Terra wrote:
> I respectfully disagree that being undiagnosed is a benefit! There are
> many adults who suffered needlessly and had no SUPPORT who MIGHT have
> had very different lives had they BEEN supported.

In a general way, I agree.  Having a diagnosis available for use *if and
when needed* _today_ certainly could be a huge benefit for some.

But consider the times in which I was a child.  Autism (when it finally
got invented) was a truly terrible thing which struck terror into
parents' hearts.  Would a diagnosis for me, _then_, have been a benefit?
   The lobotomies that came into favor would have been helpful? The later
Lovaas "therapies" would have helped me?

My essential point was:
    My cohort grew up without therapy of any kind.
    Yours(?) grew up with abundant therapies available.
I posit the outcomes - the life experiences - of these two cohorts
likely differ.  The differences should be documented and studied.

>
> I am gifted and scored high enough on my PSATs to qualify for national
> merit scholarship, but I was utterly disorganized, and baffled and
> overwhelmed by the social pressures of high school, so I ended up
> dropping out.

I bet I can match you for "gifted", scholarships, bafflement and
dropping out.  That's not the point.

The point is I succeeded in life anyway.
I posit that's because I "dodged the bullet", growing up in an era when
my eccentricities were tolerated, the better to make use of my mental
capacities.  I further posit there are many like me; and they'll be
found in the ranks of the, ah, er, ...elderly AS.

>
> Because my mother didn't know what was going on with me, I was
> constantly being punished, physically and metally, for my social faux
> pas.

It's sad to hear stories like yours.  It's saddening to realize how
common they are.  I was lucky, without question.  My mother was loving,
intensely protective, and supportive of everything I wanted to achieve.

>
> There are myriad ways in which a diagnosis could have benefitted me as
> a child, I am sure. I think a categorical assignment of benefit or
> detriment of diagnosis is far too simplistic and can't take into
> account the complexities of any individual's personality and particular
> presentation.

Hmmm.  To the extent I did any categorical anything, it was to point out
the value of documentation and study.  Not to make invidious comparisons
or value judgments.

Hey!  We're on the same side - really!

>
> Shannon :-)
>
> --- WD Loughman <wdloughman@...> wrote:
> Perhaps because they learned to cope while

- Bill  ("...elderly AS")