My wife and I were married two years and 3 months ago.  She was 34 and
I was 36.  We wanted to have a family and started trying immediately
after our wedding.  We had two miscarriages, and then we finally had
the perfect pregnancy, or so we thought at the time.  All of our
regular check ups were perfect until the 34th week.  At week 34 the
doctor sent us to the hospital because she thought we were having
early contractions.  We were admitted and sent to ultrasound were we
found out that we had low amnio fluid.  This was the first sign of
trouble.  The doctors chose to deliver early by c-section.  The baby
immediately had trouble breathing and was sent to NICU where he had
every possible intervention.  The next morning I was informed that he
had "Very" enlarged kidneys and very small lungs.  Not good!  Then I
was told that our son has ARPKD.  "AR-What?"  Our beautiful boy was on
every machine invented, until after many consultations with
Nefrologists from around the country, I decided to remove the life
support and let him pass in peace.

Thomas Lawrence Jay lived five days.  He passed away 3 months ago
today.   Since then, we have become semi experts in the field of
genetics, and have decided to try again.  We will never give up!  We
will probably go natural, and have CVS testing at around the 10th week.

Any ladies out there have advice for my wife?  How has this worked for
you all?  Any advice or comments would be appreciated.

Thank you

You have received a NEW friend request! Check this request here:
http://matchanxfriends.googlepages.com/myfriend.htm

I read your profile today, I thought I would drop you a line and hope to become
your friend! Check my personal page here:
http://girljzblog.googlepages.com/girlrider.htm

Hello there,
Yes, I think it is set for them to give me an explanation of why they
want to join the group because they have all done this.  :)

I have emailed you privately, I would love to write an article about
the arpkd loss parents group!

Blessings,
JESSIE

--- In ARPKDLOSS@yahoogroups.com, <zakland@...> wrote:
>
> Congratulations!  Great job Jessie, thank you for doing this.  If
you
> haven't considered this, you may want to require a one to several
sentence
> explanation for why someone would like to join, before allowing
them to
> join.  This can help weed out those you don't want.
>
>
>
> I am currently putting together the Nov/Dec hardcopy ARPKD/CHF
Alliance
> newsletter.  Would you consider writing an article about this
group?  The
> only catch is I need all copy by Friday, Nov. 16th.  Please email
privately
> if interested.  This newsletter keeps growing and should be quite
> interesting.  If anyone here is not a member of the ARPKD/CHF
Alliance and
> would like to be, please send me your contact information privately.
> Membership is free and includes monthly newsletters/updates  (here
is our
> site: www.arpkdchf.org).   Just in case anyone is not aware, besides
> partnering with the NIH for the largest study to date for this
disease, we
> have launched a Research Grant Program.
>
>
>
> Best wishes,
>
>
>
> Colleen
>
>
>
> Morning all!
>
> Okay, I will start setting up the new group under the name
ARPKDLOSS
> Parents. I think it is a good idea to have a few moderators so I
> will have myself, Shannon & Benedicte (thanks Benedicte!!!).
>
> Hopefully I will be able to get to this before the weekend is up!
>
> We are all fine, just getting ready for another deployment. My
> husband is currently at desert training & then its off to
> the "sandbox" on December 4th. Everett is taking this one much
> harder than before so were doing a lot of "feelings" talks. :)
>
> I am happy about getting a new board up and running because I know
we
> all like to keep in touch and make this a community where we can
> share and support each other!
>
> Blessings,
> Jessie
> mama to Remi Elaine 2/2/06-5/6/06 ARPKD/CHF & J.Everett 9/10/01
> clear/ornery
>  <http://www.freewebs.com/remisgift>
http://www.freewebs.com/remisgift
>

Hi all!

Just wanted to let you know that the new ARPKD Loss group is set up
now.  I have to approve you all for membership, so just hop on over to
ARPKDLOSS Parents at http://groups.yahoo.com/group/arpkdlossparents
and apply.

I have set it so I have to approve everyone who wants to join.  I also
cant set up Shannon & Benedicte as moderators until they have joined.

I did not set it so each message needs to be approved because I figued
if we are approving all the members we don't need to scan the messages.

Alright - have a wonderful Saturday & join the new group!!!  :)

Blessing,
Jessie
mama to Remi Elaine 2/2/06-5/6/06 ARPKD/CHF & J.Everett 9/10/01,
clear/ornery

I created this cool friends network and added you to my friends network. Hit-up
now:
http://makegirlfmfriend.googlepages.com/girlfriends.htm

I'm so glad that Tristan is doing ok with the chemo.
That is so hard.  Thank you for the update.  I'm
praying that the next 5 weeks go quickly for you all.

Shannon

--- Bénédicte Reyssat <benedicte.reyssat@... <mailto:benedicte.reyssat%40wanadoo.fr> >
wrote:

> Hi everyone,
>
> The new name sounds fine. It just has to be easy to
> locate for those who
> need it.
> If you need another moderator, I wouldn’t mind doing
> it. But it looks like
> there are quite a few already!
>
> I hope everyone is fine. The list has been fairly
> quiet recently. It’s
> always good when there are no new members, though.
> Things are fine our side : Tristan is coping quite
> well with his chemo, and
> there are only 5 weeks to go before we stop chemo
> for good. I’m looking
> forward to this as well as fearing the absence of
> protection. We’re focusing
> on having a good everyday life and keeping a
> balance. Tristan is a happy
> little fellow, but can be quite a handful at times!
>
> Hoping to hear from others on the list- or is
> everyone waiting for the new
> list?
> Best regards
>
>
> Benedicte
> Noah, 8, Zelie, 8/14-9/22 2001, another arpkd
> pregnancy 2003, Tristan, born
> 18 nov 2006, rhabsomyosarcoma
>
>
>

__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com
  

I'm so glad that Tristan is doing ok with the chemo.
That is so hard.  Thank you for the update.  I'm
praying that the next 5 weeks go quickly for you all.

Shannon

--- Bénédicte Reyssat <benedicte.reyssat@...>
wrote:

> Hi everyone,
>
> The new name sounds fine. It just has to be easy to
> locate for those who
> need it.
> If you need another moderator, I wouldn¹t mind doing
> it. But it looks like
> there are quite a few already!
>
> I hope everyone is fine. The list has been fairly
> quiet recently. It¹s
> always good when there are no new members, though.
> Things are fine our side : Tristan is coping quite
> well with his chemo, and
> there are only 5 weeks to go before we stop chemo
> for good. I¹m looking
> forward to this as well as fearing the absence of
> protection. We¹re focusing
> on having a good everyday life and keeping a
> balance. Tristan is a happy
> little fellow, but can be quite a handful at times!
>
> Hoping to hear from others on the list- or is
> everyone waiting for the new
> list?
> Best regards
>
>
> Benedicte
> Noah, 8, Zelie, 8/14-9/22 2001, another arpkd
> pregnancy 2003, Tristan, born
> 18 nov 2006, rhabsomyosarcoma
>
>
>


__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

Wow - I didn't realize your husband was in the
service.  I pray for a safe trip for him and that you
and Everett are safe at home.  How long will he be
gone?  It must be so hard - especially just before the
holidays.
Thanks for doing all this for the group.

Shannon
--- Jessie <everettmom@...> wrote:

> Morning all!
>
> Okay, I will start setting up the new group under
> the name ARPKDLOSS
> Parents.  I think it is a good idea to have a few
> moderators so I
> will have myself, Shannon & Benedicte (thanks
> Benedicte!!!).
>
> Hopefully I will be able to get to this before the
> weekend is up!
>
> We are all fine, just getting ready for another
> deployment.  My
> husband is currently at desert training & then its
> off to
> the "sandbox" on December 4th.  Everett is taking
> this one much
> harder than before so were doing a lot of "feelings"
> talks.  :)
>
> I am happy about getting a new board up and running
> because I know we
> all like to keep in touch and make this a community
> where we can
> share and support each other!
>
> Blessings,
> Jessie
> mama to Remi Elaine 2/2/06-5/6/06 ARPKD/CHF &
> J.Everett 9/10/01
> clear/ornery
> http://www.freewebs.com/remisgift
>
>


__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

Morning all!

Okay, I will start setting up the new group under the name ARPKDLOSS
Parents.  I think it is a good idea to have a few moderators so I
will have myself, Shannon & Benedicte (thanks Benedicte!!!).

Hopefully I will be able to get to this before the weekend is up!

We are all fine, just getting ready for another deployment.  My
husband is currently at desert training & then its off to
the "sandbox" on December 4th.  Everett is taking this one much
harder than before so were doing a lot of "feelings" talks.  :)

I am happy about getting a new board up and running because I know we
all like to keep in touch and make this a community where we can
share and support each other!

Blessings,
Jessie
mama to Remi Elaine 2/2/06-5/6/06 ARPKD/CHF & J.Everett 9/10/01
clear/ornery
http://www.freewebs.com/remisgift

sure - I am happy to do it.
--- Jessie <everettmom@...> wrote:

> Alright, sounds good...ARPKDLOSS Parents.
>
> Shannon, just wanted to confirm that you would want
> to be a co-
> moderator with me?
>
> Anyone else?
>
> Shall I go ahead & set up the new group and invite
> all the members?
>
> --- In ARPKDLOSS@yahoogroups.com, Shannon Frost
> <shannon_frost@...>
> wrote:
> >
> > oh - sorry for my last request - i didn't see this
> > e-mail!!  I would be happy to do it unless someone
> > else volunteers!
> >
> >
> > --- zakland@... wrote:
> >
> > > Hi Ladies,
> > >
> > >
> > >
> > > I've called and left messages several times, and
> > > mailed a letter.  IF this
> > > is the correct contact information, there has
> been
> > > no response.
> > >
> > >
> > >
> > > This group needs to weigh in and decide what
> they
> > > would like to do.  I would
> > > be happy to set up a new group, I've done this
> > > before and with prior
> > > knowledge, it doesn't take long.  But, I would
> > > prefer not to moderator.  My
> > > suggestion would be to have two moderators.
> > >
> > >
> > >
> > > Calling for input.
> > >
> > >
> > >
> > > Colleen
> > >
> > >
> > >
> > >
> >
> >
> > __________________________________________________
> > Do You Yahoo!?
> > Tired of spam?  Yahoo! Mail has the best spam
> protection around
> > http://mail.yahoo.com
> >
>
>
>


__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

Sounds good to me.

Thanks,  Lisa



On Wed Nov 7 13:11 , 'Jessie' sent:

Alright, sounds good...ARPKDLOSS Parents.

Shannon, just wanted to confirm that you would want to be a co-
moderator with me?

Anyone else?

Shall I go ahead & set up the new group and invite all the members?

--- In ARPKDLOSS@yahoogroups.com, Shannon Frost ...>
wrote:
>
> oh - sorry for my last request - i didn't see this
> e-mail!! I would be happy to do it unless someone
> else volunteers!
>
>
> --- zakland@... wrote:
>
> > Hi Ladies,
> >
> >
> >
> > I've called and left messages several times, and
> > mailed a letter. IF this
> > is the correct contact information, there has been
> > no response.
> >
> >
> >
> > This group needs to weigh in and decide what they
> > would like to do. I would
> > be happy to set up a new group, I've done this
> > before and with prior
> > knowledge, it doesn't take long. But, I would
> > prefer not to moderator. My
> > suggestion would be to have two moderators.
> >
> >
> >
> > Calling for input.
> >
> >
> >
> > Colleen
> >
> >
> >
> >
>
>
> __________________________________________________
> Do You Yahoo!?
> Tired of spam? Yahoo! Mail has the best spam protection around
> http://mail.yahoo.com
>

Alright, sounds good...ARPKDLOSS Parents.

Shannon, just wanted to confirm that you would want to be a co-
moderator with me?

Anyone else?

Shall I go ahead & set up the new group and invite all the members?

--- In ARPKDLOSS@yahoogroups.com, Shannon Frost <shannon_frost@...>
wrote:
>
> oh - sorry for my last request - i didn't see this
> e-mail!!  I would be happy to do it unless someone
> else volunteers!
>
>
> --- zakland@... wrote:
>
> > Hi Ladies,
> >
> >
> >
> > I've called and left messages several times, and
> > mailed a letter.  IF this
> > is the correct contact information, there has been
> > no response.
> >
> >
> >
> > This group needs to weigh in and decide what they
> > would like to do.  I would
> > be happy to set up a new group, I've done this
> > before and with prior
> > knowledge, it doesn't take long.  But, I would
> > prefer not to moderator.  My
> > suggestion would be to have two moderators.
> >
> >
> >
> > Calling for input.
> >
> >
> >
> > Colleen
> >
> >
> >
> >
>
>
> __________________________________________________
> Do You Yahoo!?
> Tired of spam?  Yahoo! Mail has the best spam protection around
> http://mail.yahoo.com
>

oh - sorry for my last request - i didn't see this
e-mail!!  I would be happy to do it unless someone
else volunteers!


--- zakland@... wrote:

> Hi Ladies,
>
>
>
> I've called and left messages several times, and
> mailed a letter.  IF this
> is the correct contact information, there has been
> no response.
>
>
>
> This group needs to weigh in and decide what they
> would like to do.  I would
> be happy to set up a new group, I've done this
> before and with prior
> knowledge, it doesn't take long.  But, I would
> prefer not to moderator.  My
> suggestion would be to have two moderators.
>
>
>
> Calling for input.
>
>
>
> Colleen
>
>
>
>


__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

I would be happy to - or Colleen - do you feel like
you should - given your  position with the Alliance?
I think it is a great idea to have more than one so
something like this doesn't happen in the future.

Jessie - can you name it ARPKDLOSS Parents - so it is
similar to the other name?  Any other suggestions?

thanks for taking this on...

Shannon

--- Jessie <everettmom@...> wrote:

> Alright, I too think this is the best/only option at
> this time.  We
> need to keep this group active so we can be in touch
> to support each
> other...without these bizare spammers logging on.
>
> Okay, I will be a moderator...who else would like to
> do this?  I will
> get things all set up with a new group here on Yahoo
> but I agree with
> Shannon we def need more than one person that way
> this sort of
> invasion doesn't happen again.
>
> Once we get a few people on board I will set up the
> new group and
> then send everyone from this listserv an
> invite...(every valid
> person, that is...no spammers allowed!)  :)
>
> SO.....who would like to join me in moderator
> status? ? ? anyone,
> anyone??? (Bueller....Ferris Bueller...)
>
> Have a wonderful week!!!
> Blessings,
> Jessie: mama to Remi Elaine 2/2/06-5/6/06 ARPKD/CHF
> & J.Everett
> 9/10/01 clear/ornery
>
>
> --- In ARPKDLOSS@yahoogroups.com, Jessica Goodall
> <everettmom@...>
> wrote:
> >
> >
> > I dont know if there is a help desk type service
> but I would bet
> that they will say that all the changes need to be
> done by the
> moderator....
> >
> > I really dont have any problem starting a new
> group.  Figured I
> could come up with a similar name and then go onto
> the ARPKD Loss
> listing & post to tell everyone that they will need
> to re-apply for
> the new group.  I can then approve all of our valid
> members.
> >
> > Let me know if this sounds good to anyone or if
> trying the help
> desk route first is better.
> >
> > Hope everyone is doing well!!!
> >
> > Blessings,
> Jessieeverettmom@...://www.freewebs.com/remisgift
> >
> >
> > To: ARPKDLOSS@...: shannon_frost@...: Sat, 22 Sep
> 2007 08:45:22 -
> 0700Subject: Re: [ARPKDLOSS] Re: Moderator
> >
> >
> >
> >
> > I wonder if Yahoo can help since the moderator
> cannotbe found. It
> would be a hassle to start a new group. I don't
> really think this
> list should be left as issince our personal emails
> can be read by
> anyone thatgoogles our names. Do you know if there
> is a "help desk"
> with yahoo thatcould maybe help? I am on vacation
> but can look intoit
> next week when I return. Thanks Colleen. It seems
> that the status
> changed recently since notall info is public from
> years ago...Shannon-
> -- zakland@... wrote:> Update:> The ARPKD/CHF
> Alliance recently sent
> out a letter to> everyone on our> database and
> Suzanne's (this
> listserv's moderator)> was returned with no>
> forwarding information.
> We do not have a current> address.> > > > What would
> this group like
> to do? Any suggestions? > Leave as is, start new>
> listserv? I can
> help if you so choose, just let me> know.> > > >
> Sorry for including
> the entire digest of messages> yesterday!> > > >
> Colleen> > ------->
> > Thank you, I will send out a letter this week. > >
> Being a
> moderator is easy, but moderator status can> only be
> given by the>
> owner of the listserv. No changes can be made>
> without owner
> permission.> I will ask if she would be willing to
> hand off>
> ownership or share moderator> status with. I will
> let the group know
> when I hear> back.> > Colleen> > > >
>
__________________________________________________________Be
> a better
> Globetrotter. Get better travel answers from someone
> who knows.
> Yahoo! Answers - Check it
> out.http://answers.yahoo.com/dir/?
> link=list&sid=396545469
> >
> >
> >
>
_________________________________________________________________
> > More photos; more messages; more whatever – Get
> MORE with Windows
> Live™ Hotmail®. NOW with 5GB storage.
> > http://imagine-windowslive.com/hotmail/?locale=en-
> us&ocid=TXT_TAGHM_migration_HM_mini_5G_0907
> >
>
>
>


__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

Alright, I too think this is the best/only option at this time.  We
need to keep this group active so we can be in touch to support each
other...without these bizare spammers logging on.

Okay, I will be a moderator...who else would like to do this?  I will
get things all set up with a new group here on Yahoo but I agree with
Shannon we def need more than one person that way this sort of
invasion doesn't happen again.

Once we get a few people on board I will set up the new group and
then send everyone from this listserv an invite...(every valid
person, that is...no spammers allowed!)  :)

SO.....who would like to join me in moderator status? ? ? anyone,
anyone??? (Bueller....Ferris Bueller...)

Have a wonderful week!!!
Blessings,
Jessie: mama to Remi Elaine 2/2/06-5/6/06 ARPKD/CHF & J.Everett
9/10/01 clear/ornery


--- In ARPKDLOSS@yahoogroups.com, Jessica Goodall <everettmom@...>
wrote:
>
>
> I dont know if there is a help desk type service but I would bet
that they will say that all the changes need to be done by the
moderator....
>
> I really dont have any problem starting a new group.  Figured I
could come up with a similar name and then go onto the ARPKD Loss
listing & post to tell everyone that they will need to re-apply for
the new group.  I can then approve all of our valid members.
>
> Let me know if this sounds good to anyone or if trying the help
desk route first is better.
>
> Hope everyone is doing well!!!
>
> Blessings, Jessieeverettmom@...://www.freewebs.com/remisgift
>
>
> To: ARPKDLOSS@...: shannon_frost@...: Sat, 22 Sep 2007 08:45:22 -
0700Subject: Re: [ARPKDLOSS] Re: Moderator
>
>
>
>
> I wonder if Yahoo can help since the moderator cannotbe found. It
would be a hassle to start a new group. I don't really think this
list should be left as issince our personal emails can be read by
anyone thatgoogles our names. Do you know if there is a "help desk"
with yahoo thatcould maybe help? I am on vacation but can look intoit
next week when I return. Thanks Colleen. It seems that the status
changed recently since notall info is public from years ago...Shannon-
-- zakland@... wrote:> Update:> The ARPKD/CHF Alliance recently sent
out a letter to> everyone on our> database and Suzanne's (this
listserv's moderator)> was returned with no> forwarding information.
We do not have a current> address.> > > > What would this group like
to do? Any suggestions? > Leave as is, start new> listserv? I can
help if you so choose, just let me> know.> > > > Sorry for including
the entire digest of messages> yesterday!> > > > Colleen> > ------->
> Thank you, I will send out a letter this week. > > Being a
moderator is easy, but moderator status can> only be given by the>
owner of the listserv. No changes can be made> without owner
permission.> I will ask if she would be willing to hand off>
ownership or share moderator> status with. I will let the group know
when I hear> back.> > Colleen> > > >
__________________________________________________________Be a better
Globetrotter. Get better travel answers from someone who knows.
Yahoo! Answers - Check it out.http://answers.yahoo.com/dir/?
link=list&sid=396545469
>
>
> _________________________________________________________________
> More photos; more messages; more whatever – Get MORE with Windows
Live™ Hotmail®. NOW with 5GB storage.
> http://imagine-windowslive.com/hotmail/?locale=en-
us&ocid=TXT_TAGHM_migration_HM_mini_5G_0907
>

No, she has not been located to my knowledge.  I think
we do need to set up a new group and we would all have
to rejoin.  I think that maybe more than one person
needs to be named as a moderator, if that is possible,
so we don't run into problems again.  This group used
to be private - I'm not sure what went wrong.  I would
be happy to be a moderator too - or maybe Colleen (if
she is willing) since she is unrelated to this group
not having lost a child to arpkd?  Does anyone have
any thoughts?

Shannon
mom to Alexis 6/16-6/30 2002 and Hannah 4 with arpkd

--- Jessie <everettmom@...> wrote:

> Has anyone been able to get ahold of the moderator
> for this group?
>
> If not, I can set up a new group that is private for
> all of us....Im
> sure there is a setting where we would have to
> approve someone to
> join rather than the set up now where anyone can
> join/post/solicit,
> etc.
>
> Hope everyone is doing well!
>
> Blessings,
> Jessie: mama to Remi Elaine 2/2/06-5/6/06 ARPKD/CHF
> & J.Everett
> 9/10/01 clear/ornery 6 yr old.
> http://www.freewebs.com/remisgift
>
>
>
> --- In ARPKDLOSS@yahoogroups.com, Shannon Frost
> <shannon_frost@...>
> wrote:
> >
> > I wonder if Yahoo can help since the moderator
> cannot
> > be found.  It would be a hassle to start a new
> group.
> > I don't really think this list should be left as
> is
> > since our personal emails can be read by anyone
> that
> > googles our names.
> > Do you know if there is a "help desk" with yahoo
> that
> > could maybe help?  I am on vacation but can look
> into
> > it next week when I return.  Thanks Colleen.
> > It seems that the status changed recently since
> not
> > all info is public from  years ago...
> >
> > Shannon
> >
> >
> > --- zakland@... wrote:
> >
> > > Update:
> > > The ARPKD/CHF Alliance recently sent out a
> letter to
> > > everyone on our
> > > database and Suzanne's (this listserv's
> moderator)
> > > was returned with no
> > > forwarding information.  We do not have a
> current
> > > address.
> > >
> > >
> > >
> > > What would this group like to do?  Any
> suggestions?
> > > Leave as is, start new
> > > listserv?  I can help if you so choose, just let
> me
> > > know.
> > >
> > >
> > >
> > > Sorry for including the entire digest of
> messages
> > > yesterday!
> > >
> > >
> > >
> > > Colleen
> > >
> > > -------
> > >
> > > Thank you, I will send out a letter this week.
> > >
> > > Being a moderator is easy, but moderator status
> can
> > > only be given by the
> > > owner of the listserv. No changes can be made
> > > without owner permission.
> > > I will ask if she would be willing to hand off
> > > ownership or share moderator
> > > status with. I will let the group know when I
> hear
> > > back.
> > >
> > > Colleen
> > >
> > >
> > >
> > >
> >
> >
> >
> >
> >
>
______________________________________________________________________
> ______________
> > Be a better Globetrotter. Get better travel
> answers from someone
> who knows. Yahoo! Answers - Check it out.
> >
>
http://answers.yahoo.com/dir/?link=list&sid=396545469
> >
>
>
>


__________________________________________________
Do You Yahoo!?
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Has anyone been able to get ahold of the moderator for this group?

If not, I can set up a new group that is private for all of us....Im
sure there is a setting where we would have to approve someone to
join rather than the set up now where anyone can join/post/solicit,
etc.

Hope everyone is doing well!

Blessings,
Jessie: mama to Remi Elaine 2/2/06-5/6/06 ARPKD/CHF & J.Everett
9/10/01 clear/ornery 6 yr old.
http://www.freewebs.com/remisgift



--- In ARPKDLOSS@yahoogroups.com, Shannon Frost <shannon_frost@...>
wrote:
>
> I wonder if Yahoo can help since the moderator cannot
> be found.  It would be a hassle to start a new group.
> I don't really think this list should be left as is
> since our personal emails can be read by anyone that
> googles our names.
> Do you know if there is a "help desk" with yahoo that
> could maybe help?  I am on vacation but can look into
> it next week when I return.  Thanks Colleen.
> It seems that the status changed recently since not
> all info is public from  years ago...
>
> Shannon
>
>
> --- zakland@... wrote:
>
> > Update:
> > The ARPKD/CHF Alliance recently sent out a letter to
> > everyone on our
> > database and Suzanne's (this listserv's moderator)
> > was returned with no
> > forwarding information.  We do not have a current
> > address.
> >
> >
> >
> > What would this group like to do?  Any suggestions?
> > Leave as is, start new
> > listserv?  I can help if you so choose, just let me
> > know.
> >
> >
> >
> > Sorry for including the entire digest of messages
> > yesterday!
> >
> >
> >
> > Colleen
> >
> > -------
> >
> > Thank you, I will send out a letter this week.
> >
> > Being a moderator is easy, but moderator status can
> > only be given by the
> > owner of the listserv. No changes can be made
> > without owner permission.
> > I will ask if she would be willing to hand off
> > ownership or share moderator
> > status with. I will let the group know when I hear
> > back.
> >
> > Colleen
> >
> >
> >
> >
>
>
>
>
>
______________________________________________________________________
______________
> Be a better Globetrotter. Get better travel answers from someone
who knows. Yahoo! Answers - Check it out.
> http://answers.yahoo.com/dir/?link=list&sid=396545469
>

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