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ARPKDLOSS · To support people who've lost children to ARPKD

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3066 wlk1277 Offline Send Email Mar 2, 2006
4:38 pm
I lost a child in my 20th week of pregnancy on Dec. 10 from what doctors believe was PKD. I was in too much shock to think through everything clearly and...
3067 ses8292001 Offline Send Email Mar 3, 2006
2:31 am
Wow! That is wonderful! I am very happy for you, Benedicte. I hope all goes smoothly. Allyson Christopher, 9; Evelyn, 7; Sarah 8/29-8/30/01 ARPKD ... following...
3068 lisa_shatswell Offline Send Email Mar 3, 2006
6:54 pm
I am so sorry to hear of your loss. There have been couples here that have gone on to have healthy babies. I am currently hoping that I am going to be one of...
3069 Paul & Anne Nunn
amnunn2003 Offline Send Email
Mar 3, 2006
7:04 pm
I am so sorry to hear of your loss. We lost identical twin boys to ARPKD in may 2003. It was our frist pregnancy, but still came as a shock to us. We now have...
3072 lisa_shatswell Offline Send Email Mar 7, 2006
11:04 pm
Maren, Yes, we did find out that we are having another boy!! We are having trouble picking a name now.... I go to the doctor on Thursday also, I am hoping...
3074 wlk1277 Offline Send Email Mar 13, 2006
10:46 pm
I am so sorry for your loss as well. Congratulations on being pregnant again. I am very excited for you. Thank you so much for sharing your story with me. It...
3075 healthisswealth Offline Send Email Mar 17, 2006
6:43 am
hi people, I have started a site http://www.outofstress.com which deals with all aspects of stress.Our site is a fast growing.Our site objective is to help...
3076 lisa_shatswell Offline Send Email Mar 20, 2006
5:34 pm
We finally got our results from the University of Alabama and I am happy to report that our baby boy is free from arpkd. They said he is a carrier, but does...
3078 katmullin@... Send Email Mar 20, 2006
10:11 pm
That's great news!!! It's the best feeling of relief. I felt a little guilty also. I think that's normal. Enjoy the rest of your pregnancy! Kathleen Mom of...
3079 Lisa Shatswell
lisa_shatswell Offline Send Email
Mar 21, 2006
1:39 am
Thanks, Maren!!! We are having trouble thinking of names, but my husband has come up with Kaden Charles.it's kind of growing on me, but we'll see. How are...
3081 healthisswealth Offline Send Email Mar 22, 2006
7:21 am
hi all ,I have started a site http://www.outofstress.com which deals all aspects of stress and recovery.Our objective is to help people those who are...
3082 Kelly Fujii
cff91402 Offline Send Email
Mar 22, 2006
3:03 pm
Lisa, CONGRATULATIONS! That is the best news to hear. My husband & I are thinking about trying again, we'll see... We have 2 healthy girls at home after we...
3083 lisa_shatswell Offline Send Email Mar 22, 2006
7:02 pm
Kelly, Thanks!! I understand the emotional roller-coaster all too well. I don't think that my husband and I will try again after this one for just that...
3084 Bénédicte Rey...
myzelie Offline Send Email
Mar 23, 2006
4:03 pm
Lisa, This is such great news! It is good to share the good news after we shared the bad ones. Maybe pre-implantation genetic diagnosis will be an option for...
3086 Wendy Kaylor
wlk1277 Offline Send Email
Mar 28, 2006
10:35 pm
I can't imagine being that close to the happiest moment in your life only to have it taken away. I am so sorry for your loss. From everyone's comments it seems...
3087 aprilpccabdm Offline Send Email May 11, 2006
1:16 am
Hello everyone, My genetic counselor just told me about this website, and it has been very helpful to me. My husband and I also lost a baby to ARPKD last...
3088 Paul & Anne Nunn
amnunn2003 Offline Send Email
May 11, 2006
3:07 am
Hi Paula, I am so sorry for your loss. I know this past year has been difficult for you. We lost identical twin boys to this disease 3 years ago this next...
3089 Paul & Anne Nunn
amnunn2003 Offline Send Email
May 11, 2006
3:09 am
I just wanted to let everyone know that I am pregnant again and we would love your prayers and support. I am 8 weeks and will have an ultrasound in a couple...
3090 Bénédicte Reyssat
myzelie Offline Send Email
May 11, 2006
7:19 am
Dear Anne, That's wonderful news! I will send your way all the positive thoughts I have, which is loads! We are pregnant with a healthy baby, conceived...
3093 Lisa Shatswell
lisa_shatswell Offline Send Email
May 12, 2006
1:17 am
Paula, I am so sorry to hear about your loss. We also lost a baby boy last May (almost a year now) and I know how hard it is. Unfortunately, all of us here...
3094 Lisa Shatswell
lisa_shatswell Offline Send Email
May 12, 2006
5:23 am
Yes, a very big CONGRATS Anne!! I am also 25 weeks pregnant with a healthy baby boy. We had an amnio at 13 weeks and found out the great news just before my...
3096 Renee
nene1298 Offline Send Email
May 16, 2006
9:24 pm
Hi all~ I'm hoping to find support and information... I found out on March 29th that my baby's kidneys were enlarged & full of cysts, also that I had little...
3097 Jessie
everettmomevie Offline Send Email
May 22, 2006
8:22 pm
I wanted to post a message quickly to let everyone know that our daughter, Remi Elaine, passed away 5/6/2006. Please feel free to visit her memorial page at: ...
3098 katmullin@... Send Email May 22, 2006
8:40 pm
That was absolutely beautiful!!! Thanks for sharing memories of your precious daughter with us!! Kathleen Mom of Andrew b/d ARPKD 12/18/02 and Patrick healthy...
3099 Shannon Frost
shannon_frost Offline Send Email
May 23, 2006
1:22 am
Jessie, I am so sorry for your loss. I lost my first daughter after just 2 weeks almost 4 years ago. Your story was so beautifully told - the website is a...
3100 Jessie
everettmomevie Offline Send Email
May 30, 2006
3:55 pm
Hello All, Thank you so much for posting your regards and for visiting Remi's web-memorial page....
3101 Crystal
cwissy5639 Offline Send Email
May 31, 2006
5:40 pm
I am sorry I don't think I have posted here, but I have been in such a fog I can't remember. My husband and I were going along in our pregnancy with such joy,...
3102 Crystal
cwissy5639 Offline Send Email
May 31, 2006
9:27 pm
I am not sure if you have seen it, but I just posted a very similar post to yours. We just have to make the unreal desicion to end our pregnancy at 23 weeks...
3103 Wendy Kaylor
wlk1277 Offline Send Email
Jun 2, 2006
4:04 pm
Crystal, I am so sorry for your loss. There are no words to console someone who has lost a child. Reading your email brought back all the fears and anxiety...
3104 Aviva Zipkin
avivazip Offline Send Email
Jul 6, 2006
9:19 pm
Hi all, Tomorrow is the first anniversary of my son's stillbirth. Does anyone have any suggestions how to commemorate the day? I'd like to do something, but...
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