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ARPKDLOSS· To support people who've lost children to ARPKD
I lost a child in my 20th week of pregnancy on Dec. 10 from what doctors believe was PKD. I was in too much shock to think through everything clearly and...
Wow! That is wonderful! I am very happy for you, Benedicte. I hope all goes smoothly. Allyson Christopher, 9; Evelyn, 7; Sarah 8/29-8/30/01 ARPKD ... following...
I am so sorry to hear of your loss. There have been couples here that have gone on to have healthy babies. I am currently hoping that I am going to be one of...
I am so sorry to hear of your loss. We lost identical twin boys to ARPKD in may 2003. It was our frist pregnancy, but still came as a shock to us. We now have...
Maren, Yes, we did find out that we are having another boy!! We are having trouble picking a name now.... I go to the doctor on Thursday also, I am hoping...
I am so sorry for your loss as well. Congratulations on being pregnant again. I am very excited for you. Thank you so much for sharing your story with me. It...
hi people, I have started a site http://www.outofstress.com which deals with all aspects of stress.Our site is a fast growing.Our site objective is to help...
We finally got our results from the University of Alabama and I am happy to report that our baby boy is free from arpkd. They said he is a carrier, but does...
3078
katmullin@...
Mar 20, 2006 10:11 pm
That's great news!!! It's the best feeling of relief. I felt a little guilty also. I think that's normal. Enjoy the rest of your pregnancy! Kathleen Mom of...
Thanks, Maren!!! We are having trouble thinking of names, but my husband has come up with Kaden Charles.it's kind of growing on me, but we'll see. How are...
hi all ,I have started a site http://www.outofstress.com which deals all aspects of stress and recovery.Our objective is to help people those who are...
Lisa, CONGRATULATIONS! That is the best news to hear. My husband & I are thinking about trying again, we'll see... We have 2 healthy girls at home after we...
Kelly, Thanks!! I understand the emotional roller-coaster all too well. I don't think that my husband and I will try again after this one for just that...
Lisa, This is such great news! It is good to share the good news after we shared the bad ones. Maybe pre-implantation genetic diagnosis will be an option for...
I can't imagine being that close to the happiest moment in your life only to have it taken away. I am so sorry for your loss. From everyone's comments it seems...
Hello everyone, My genetic counselor just told me about this website, and it has been very helpful to me. My husband and I also lost a baby to ARPKD last...
Hi Paula, I am so sorry for your loss. I know this past year has been difficult for you. We lost identical twin boys to this disease 3 years ago this next...
I just wanted to let everyone know that I am pregnant again and we would love your prayers and support. I am 8 weeks and will have an ultrasound in a couple...
Dear Anne, That's wonderful news! I will send your way all the positive thoughts I have, which is loads! We are pregnant with a healthy baby, conceived...
Paula, I am so sorry to hear about your loss. We also lost a baby boy last May (almost a year now) and I know how hard it is. Unfortunately, all of us here...
Yes, a very big CONGRATS Anne!! I am also 25 weeks pregnant with a healthy baby boy. We had an amnio at 13 weeks and found out the great news just before my...
Hi all~ I'm hoping to find support and information... I found out on March 29th that my baby's kidneys were enlarged & full of cysts, also that I had little...
I wanted to post a message quickly to let everyone know that our daughter, Remi Elaine, passed away 5/6/2006. Please feel free to visit her memorial page at: ...
3098
katmullin@...
May 22, 2006 8:40 pm
That was absolutely beautiful!!! Thanks for sharing memories of your precious daughter with us!! Kathleen Mom of Andrew b/d ARPKD 12/18/02 and Patrick healthy...
Jessie, I am so sorry for your loss. I lost my first daughter after just 2 weeks almost 4 years ago. Your story was so beautifully told - the website is a...
I am sorry I don't think I have posted here, but I have been in such a fog I can't remember. My husband and I were going along in our pregnancy with such joy,...
I am not sure if you have seen it, but I just posted a very similar post to yours. We just have to make the unreal desicion to end our pregnancy at 23 weeks...
Crystal, I am so sorry for your loss. There are no words to console someone who has lost a child. Reading your email brought back all the fears and anxiety...
Hi all, Tomorrow is the first anniversary of my son's stillbirth. Does anyone have any suggestions how to commemorate the day? I'd like to do something, but...