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ARPKDLOSS· To support people who've lost children to ARPKD
Hi Cathi, Memorial Day was OK. I kind of just sat around and didn't do much. I refuse to go swimming because I refuse to put on a bathing suit! But of course ...
27
TROY ALEXANDER
tntandr@xxxxxxx.xxxx
Jun 1, 1999 6:18 pm
Leslie, It's sounds as if your spirits are high keep your chin up, I lost a little boy to Arpkd 7 months ago, I know how you feel when you see other kids...
28
Leslie Oberempt
leslie.oberempt@xxxx....
Jun 1, 1999 6:08 pm
Hi Lisa (and everyone), Funny you should mention about the baby kicking. I felt alot of movement but no real whoppers either. I didn't have anything to compare...
29
Leslie Oberempt
leslie.oberempt@xxxx....
Jun 1, 1999 6:18 pm
Hi Suzanne, I'm glad everything is going well for you so far. Good luck with the upcoming ultrasounds. Are you able to have someone go with you so that you are...
30
David DiMarzo
DiMarzo@xxxxx.xxxx
Jun 1, 1999 11:35 pm
Leslie, we sound so much alike it's scary. I can relate to everything you say. I hope you are pregnant by the holidays next November just to soften the blow a...
31
Tracey
tracey@xxxxxx.xxxx
Jun 1, 1999 11:34 pm
Hi Cathi...I don't know why you can't see our pics on our homepage it must be something at your end.You don't have to have a scanner to send pics but you do...
32
TROY ALEXANDER
tntandr@xxxxxxx.xxxx
Jun 2, 1999 3:02 am
Suzanne, My mothers brother had 2 babies to die of ARPKD so I really think it came from my moms side of the family, and that was about 26 years ago. I have ...
33
TROY ALEXANDER
tntandr@xxxxxxx.xxxx
Jun 2, 1999 3:10 am
Tracey, I know it's hard not to think about I'm having trouble my self but they say we can try to hard to get pregnant! keep your chin up I'll keep you in my ...
34
Tracey
tracey@xxxxxx.xxxx
Jun 2, 1999 5:12 am
Wow Tammy I didn't know you had ARPKD in the family.I have met 1 other couple who's cousin had a baby that died if it.We have no signs of it anywhere in either...
35
TROY ALEXANDER
tntandr@xxxxxxx.xxxx
Jun 2, 1999 6:27 pm
Tracey I didn't know about it being in the family until Jacob! My uncle really has never talked about it until Jacob, The only thing I knew was that they had...
36
TTLF@xxx.xxx
Jun 3, 1999 5:41 am
Hey everyone. Thanks for having me. And, before I start, forgive me as I try to learn names/emails, etc. MWilli--Yes, I was able to feel Andre kick. In fact,...
37
Tracey
tracey@xxxxxx.xxxx
Jun 3, 1999 11:34 pm
Hi Tammy, No problems about using that info in my page.Let me know when you've done your page and I'll link it to mine. I know you must be scared to have...
38
Tracey
tracey@...
Jun 3, 1999 11:48 pm
Hi Lisa, I know it's hard wanting to try again,worrying about what people will be thinking.My experience after Gabbie was people asking "when are you going to ...
39
David DiMarzo
DiMarzo@...
Jun 4, 1999 12:57 am
Hi everyone. Tammy, that's wonderful you can think of Jacob and it puts a smile on your face, because when I think of Zachary and what he went through, it...
40
TROY ALEXANDER
tntandr@...
Jun 4, 1999 3:05 am
Tracey, Thankyou so much for letting me use the info you wrote on your web page! Troy and I both had proublems with our kidneys as a child I was put in the ...
41
MWilli7651@...
Jun 4, 1999 3:21 am
Hi Everyone! Suzanne-I'm sorry you are having such a rough week. Isn't it strange how some days we are just fine and then other days it is a struggle just to...
42
TROY ALEXANDER
tntandr@...
Jun 4, 1999 3:33 am
Suzanne, I am so happy for you , and sorry you have had a horrible week, It's ok to cry for Zachary. I too sometime get down and out over Jacob. My story is so...
43
Tracey
tracey@...
Jun 4, 1999 7:55 am
Tammy I loved that poem, you sent it to me a while ago.I think I passed it on to the other mailing list so I just thought I'd let everyone know if they read it...
44
Tracey
tracey@...
Jun 4, 1999 7:57 am
OH DON'T GET ME STARTED ON WHAT STUPID AND INSENSITIVE THINGS PEOPLE HAVE SAID,YOU'LL NEVER GET RID OF ME!!!!!!!!!!! HEHEHEHE Regs Tracey Emanuel Sydney...
45
Tracey
tracey@...
Jun 4, 1999 8:02 am
Suzanne, sorry to hear you were having a bad week.I know being pregnant does make you happy but it doesn't ease the pain if hat makes sense.Also those...
46
Tracey
tracey@xxxxxx.xxxx
Jun 4, 1999 8:08 am
Cathi, Well at least you have a print out of us and the dog and the house and everything else...hehehehe...Earle and I are both 26 years old. speaking of...
47
Leslie Oberempt
leslie.oberempt@xxxx....
Jun 4, 1999 4:39 pm
Cathi, Yes, it has only been a month since we lost Ethan, but about a month or so before he was born my doctor re-ran my bloodwork and he said to start taking...
48
MWilli7651@xxx.xxx
Jun 4, 1999 5:39 pm
Leslie-I know it will be hard for you to go back to work and be around all those children. Are you a nurse? How much longer are you going to take off? That...
49
David DiMarzo
DiMarzo@xxxxx.xxxx
Jun 4, 1999 6:08 pm
I have even called a place that does preimplanation testing but of couse they said they couldn't do it without the gene being identified. That will be the...
50
David DiMarzo
DiMarzo@xxxxx.xxxx
Jun 4, 1999 6:10 pm
Cathy, I wasn't near my computer before, sorry I missed you. I do a lot of work from home and leave my computer turned on and will walk away from it from time...
51
MWilli7651@xxx.xxx
Jun 5, 1999 12:52 pm
My doctor said to go ahead and start trying again. He is so sweet and he feels so badly for me. He said if he were a betting man, everything will work out ...
52
TROY ALEXANDER
tntandr@xxxxxxx.xxxx
Jun 5, 1999 6:08 pm
Cathi, How long has it been between your loss and now, I'm still debating if I have waited long enough before trying again. I lost my son Jacob in Oct. Tammy...
53
Tracey
tracey@xxxxxx.xxxx
Jun 6, 1999 11:21 am
Someone asked about what makes me smile when I think of my girls...I guess it's because I was so lucky with Gabbie that we had really great nurses and doc...
54
Tracey
tracey@xxxxxx.xxxx
Jun 6, 1999 11:25 am
Cathi.. I've been thinking about this pre implantation thing.It got me thinking that if they find the gen in the next couple of years then when it's time when...
55
Tracey
tracey@xxxxxx.xxxx
Jun 6, 1999 11:27 am
Did your doc tell you that your ods are low for havig a 3rd baby infected?I sure hope he's right.That's the way I like to think that life couldn't be so cruel...