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ARPKDLOSS · To support people who've lost children to ARPKD

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1610 leahcraft@... Send Email Dec 1, 2000
3:38 pm
Simone I am not going back to my ob during Jacob's pregnancy. I would be afraid they'd miss something. Anyway, I'll be considered high risk IFFFFF I get ...
1611 David DiMarzo
DiMarzo@... Send Email
Dec 2, 2000
1:45 am
Hello everyone. Thanks for explaining why I haven't been around Drea. Thanks for noticing I've been gone Simone and thanks for asking for me sherry. Tracey had...
1612 ttlf@... Send Email Dec 3, 2000
9:52 am
Hi everyone. Suzanne. Glad you posted. I'm fine. The baby's fine. I know what you mean about including your deceased son's name on cards and stuff. But my...
1613 David DiMarzo
DiMarzo@... Send Email
Dec 4, 2000
12:20 am
Lisa, how funny, I had terrible varicose veins in my private my whole pregnancy with my second son. It was soooo painful. I'm surprised yours didn't go away...
1614 kimber yank
dogsdogseverywhere@... Send Email
Dec 5, 2000
3:36 pm
hi all, well i did not have the CVS , but dec. 15 i will have an amnio , just wating for my uterus to move , i will be 14 weeks. don't know any think about the...
1615 NCSelbys@... Send Email Dec 6, 2000
4:37 am
Hey all, I apologize for not posting lately. It's been hell getting through the holidays as I'm sure you all know. Not only that but my husband's job is...
1616 Drea Garza
agarza@... Send Email
Dec 6, 2000
5:46 am
MIL- Mother in Law BTDT- Been there done that dh- dear husband (or darned husband, depending on the mood) You'll also see ds, or dd (dear son or daughter) A...
1617 David DiMarzo
DiMarzo@... Send Email
Dec 7, 2000
1:41 am
... Lisa S, Wow, I can't believe your MIL (mother in law) is making you that quilt out of the clothes Grace wore. That is the nicest (and the saddest) thing...
1618 David DiMarzo
DiMarzo@... Send Email
Dec 7, 2000
1:46 am
... Drea, I get Zachary an ornament every year too so far. I saw a little boy that was an angel, had wings and was in white, I was going to buy it, but it...
1619 Drea Garza
agarza@... Send Email
Dec 7, 2000
3:35 am
... That blanket will go through hell and back, and some day when Nicky is older, you'll give him that tattered rag that used to be his favorite blanket....
1620 leahcraft@... Send Email Dec 8, 2000
5:07 am
Limber, Do you know what the statistics are for the linkage testing coming out informative? We are sending our blood samples next week. I pray they come back...
1621 kimber yank
dogsdogseverywhere@... Send Email
Dec 8, 2000
6:26 pm
leah, it takes about 2 week if it goes to UAB frist or 4 week if you send to genzyne frist...your genetic counsler must co-ordinat this. hope this...
1622 NCSelbys@... Send Email Dec 9, 2000
12:43 am
Hi all, I had a couple of requests to post my Christmas letter so here goes: This Christmas we want to thank our family and friends for the outpouring of...
1623 Theresa McLeid
shawnsmom86@... Send Email
Dec 9, 2000
6:13 am
Lisa, Hey just curious where in Indiana are you moving? I live in Indiana, right across from Louisville, Kentucky. It would be neat if you were going to be ...
1624 Christina Banks
christinadbanks@... Send Email
Dec 9, 2000
2:54 pm
Hey guys sorry i haven't been active lately. Alot going on. Well you know our doctors never gave us a DEFINATE diagnosis on Noah. SAid it could be cummings...
1625 NCSelbys@... Send Email Dec 9, 2000
4:00 pm
Theresa, We are moving to Ft. Wayne, Indiana which is NE part of the state. I'm not sure how far that would be from where you are cause it sounds as if you...
1626 David DiMarzo
DiMarzo@... Send Email
Dec 9, 2000
5:14 pm
... Lisa, that was beautiful. I'm sure everyone will be so touched by your card. It is a beautiful gift, your words of thanks. Suzanne...
1627 David DiMarzo
DiMarzo@... Send Email
Dec 9, 2000
5:18 pm
... Christina, I hope everything is ok with Sam. Please let us know. I too had my candelighting ceremony last night and although it was heartbreaking, it was...
1628 Drea Garza
agarza@... Send Email
Dec 10, 2000
4:07 pm
Christina! I'm so sorry about Sam! Oh how awful this must be for you right now! I sure hope that further testing will reveal nothing to worry too much about,...
1629 NCSelbys@... Send Email Dec 10, 2000
4:23 pm
Hey to all: In my local Ann Landers column in the paper today there was an article about Compassionate Friends, an organization that helps bereaved parents &...
1630 Drea Garza
agarza@... Send Email
Dec 10, 2000
4:37 pm
Lisa S., Your family and friends are so thoughtful!! That ornament sounds really nice, and the things that they do and give to you have so much meaning! I went...
1631 Drea Garza
agarza@... Send Email
Dec 10, 2000
4:37 pm
Tonight we're going to the candle ceremony for Nat'l Childrens Memorial Day, with the MISS Foundation and Compassionate Friends. I even got several family...
1632 Drea Garza
agarza@... Send Email
Dec 10, 2000
4:48 pm
I've actually found that these empty rituals have more and more meaning as each year goes by without my little boy. The first year it did nothing for me as far...
1633 David DiMarzo
DiMarzo@... Send Email
Dec 10, 2000
8:55 pm
... LisaS, yes, they do that every year, compassionate friends. I always light a candle. It is sad, but all of these things to me shows me that our babies did...
1634 Leslie Oberempt
leslie.oberempt@... Send Email
Dec 11, 2000
8:04 pm
Lisa, what a beautiful letter. I feel the same way; that even though our precious babies were with us only a short time, they have all touched so many lives. I...
1635 Leslie Oberempt
leslie.oberempt@... Send Email
Dec 11, 2000
8:12 pm
Drea, I agree with you 100 PERCENT!! Friends and family still care, but they move on. I will remember my son forever, as it should be because he is my son. ...
1636 Leslie Oberempt
leslie.oberempt@... Send Email
Dec 11, 2000
8:15 pm
Suzanne, isn't Nicky's first birthday coming up? Or did I miss it? Leslie...
1637 rloest07@... Send Email Dec 11, 2000
9:07 pm
Lisa S. What a beautiful letter...you have expressed exactly what I would have said to all of our family and friends. Everyone who receives it will be...
1638 rloest07@... Send Email Dec 11, 2000
9:11 pm
Christina, My prayers are with you and little Sam. Lisa O....
1639 Drea Garza
agarza@... Send Email
Dec 11, 2000
9:43 pm
I went to the candle ceremony last night, and although it was really nice, I'm not sure if I want to do it again next year. It was just so sad! I cried so...
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