If you have not seen it, I highly recommend the film called So much so fast. I am not sure if it is available in india yet? The film is based on a true story...
HI all, Thanks Padma for sharing such good info with every1... The book behind the movie " SO much So fast" Is " His Brother's Keeper". IN India, you can buy...
Situation: Your PALS cannot control their jaw and while yawning they end up clenching their teeth really hard which may cause pain. Solution: Keep a towel...
(February 26, 2009) - In one of the most significant breakthroughs in the recent history of ALS research, a consortium of scientists organized and funded by...
To provide relief in night for changing positions: Use cushions or pillows between legs (place them under knees and feet) This not only makes your PALS...
WHY THE NEW GENE FINDINGS ARE A CALL TO ACTION - A PACKARD PERSPECTIVE http://www.alscenter.org/news/briefs/090304.cfm In 2003, when New England ALS scientists...
hello gaurav bhaiya Do you know any thing about gopal's mother...one thing i want to know once gopal told me about his neighbour in canada that the person was...
Hi Lalit. Hows ur Father doing now? Feel free to call me if you need any info or help. You can email Gopal on gokeda@... I haven't spoken to him since a...
Dear all, I have a "Respironics Synchrony" Bi Pap Machine and a suction machine (make is Anand company). I had bought both of them for my Dad. There is no need...
Hi Lalit, Please feel free to call me. My phone number is 705-293-0323 and 705-888-1246. My mother is doing very well. I am having hard time getting the...
Dear Gopal, glad 2 hear that ur mum is doing fine... I was able 2 get Carnitine tabs but nt the injections. Sorry about that. Let me know if you still need the...
Dear Gopal, My co bro is travelling to US soon (within 15 days or so). If you can get the injections couriered to him, he can bring it back to India and I can...
Hi Gaurav, Â Thanks for your mail. These injections will be coming from Philippines to Delhi. A friend's friend is doing this favour to me. If you can send...
Situation: Loss of muscle movement in hand. What can we do??? Use a smiley soft foam ball and keep on pressing it whenever you or your patient are free. This...
PACKARD CENTER ANNOUNCES NEW COLLABORATIVE TIES WITH SCOTLAND'S TOP ALS RESEARCH BODY Accomplished stem cell researcher is Packard's first grantee with the ...
NEW COMMON PATHWAY IN NEURODEGENERATIVE DISEASE IS A POSSIBLE DOOR TO A POINT OF NO RETURN "...more important to medicine, it defines how neurological disease...
Interesting to read..... Here is the link to the story of Catherine Royce who died on March 30 after being diagnosed for ALS in 2003. She chose to die and...
NEW LOOK AT DATA POLISHES OLD PRINCIPLE FOR ALS THERAPY http://www.alscenter.org/news/briefs/090430.cfm A sophisticated new look at an old study that...
Dear all, I have some boxes of Rlutek available with me. Whoever needs it, please send their mailing address. First Come First serve basis pls. Thanks and God...
... Dear As a supporter of the Euan MacDonald Research Centre we are sure that you will be interested to learn that tiny zebrafish could hold the key to stem ...
New Study Shows Agent Can Improve Muscle Strength, Size, in Mouse ALS Model http://www.alscenter.org/news/briefs/090722.cfm Work adds support to the principle...
Hi Gaurav, Â Thanks for sharing this valuable info. Â Could you please let me know whether this ACE 031 is currently available in Indian Pharma market...If...
Before long, Packard Center investigator Jonathan Glass<http://neurology.emory.edu/Faculty/Glass.htm> should be conducting the first FDA-approved trial of stem...
Dear all, Here's hoping that this Diwali not only brings joy and prosperity to your house but also best of health for you and your loved ones. Keep your faith...
http://www.alscenter.org/news/press/091019.cfm FROM THE SOCIETY FOR NEUROSCIENCES 39th ANNUAL MEETING IN CHICAGO: 9 a.m., Monday, October 19 McCormick Place,...
Hello there, Can anyone share their experiences about EMG test in India. Where is the best place in India, to get an EMG test done. I learnt EMG is quite a...
Hi Gopal, My Dad had got an EMG done. Let me get some details from my Mother. As far as best places to get it done from, I will let you know..But they will be...
Hi Gopal, As per my Mum, my father had got EMG done in Delhi at Apollo Hospital. Most of the good MRI/ CT Scan Centres are proficient in doing the same. What...
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