To all my fellow PALS and CALS. Here's wishing you all a very happy new year. Hope this year brings with itself great discoveries that eliminate ALS and...
Therapies like Aurvedic treatment, Homeopathy, Masssages, Accupressure, Accupuncture etc.. Cast your vote on http://www.orkut.co.in/Main#CommPollVote.aspx? ...
Hey all, I have some 2-3 boxes of Rilutek with me. If anyone wants, I can courier it to them.... Let me know.... Also, I have a Suction Machine and a Bi Pap...
Enter your vote today! A new poll has been created for the ALS_India group: If due to some reason, your loved one suffering with ALS goes into a state of...
ALS_India@yahoogroups...
Feb 13, 2009 6:21 am
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Go to Polls section and participate in the poll pls. Regards, Gaurav...
Hey Gaurav, Â Can you please send me more details on the biap and suction device which you have avaliable at discounted price. Like how much is it for? which...
Dear all, Hope your ALS loved one is doing fine? Please do post their symptoms so that we can help each other. At times, you would be surprised as to how small...
From: alscenter@... To: The ALS Community Date: February 18, 2009 Subject: Robert Packard Center ALS News Network TRIALS OF CELL-BASED THERAPY DON'T COME...
If you have not seen it, I highly recommend the film called So much so fast. I am not sure if it is available in india yet? The film is based on a true story...
HI all, Thanks Padma for sharing such good info with every1... The book behind the movie " SO much So fast" Is " His Brother's Keeper". IN India, you can buy...
Situation: Your PALS cannot control their jaw and while yawning they end up clenching their teeth really hard which may cause pain. Solution: Keep a towel...
(February 26, 2009) - In one of the most significant breakthroughs in the recent history of ALS research, a consortium of scientists organized and funded by...
To provide relief in night for changing positions: Use cushions or pillows between legs (place them under knees and feet) This not only makes your PALS...
WHY THE NEW GENE FINDINGS ARE A CALL TO ACTION - A PACKARD PERSPECTIVE http://www.alscenter.org/news/briefs/090304.cfm In 2003, when New England ALS scientists...
hello gaurav bhaiya Do you know any thing about gopal's mother...one thing i want to know once gopal told me about his neighbour in canada that the person was...
Hi Lalit. Hows ur Father doing now? Feel free to call me if you need any info or help. You can email Gopal on gokeda@... I haven't spoken to him since a...
Dear all, I have a "Respironics Synchrony" Bi Pap Machine and a suction machine (make is Anand company). I had bought both of them for my Dad. There is no need...
Hi Lalit, Please feel free to call me. My phone number is 705-293-0323 and 705-888-1246. My mother is doing very well. I am having hard time getting the...
Dear Gopal, glad 2 hear that ur mum is doing fine... I was able 2 get Carnitine tabs but nt the injections. Sorry about that. Let me know if you still need the...
Dear Gopal, My co bro is travelling to US soon (within 15 days or so). If you can get the injections couriered to him, he can bring it back to India and I can...
Hi Gaurav, Â Thanks for your mail. These injections will be coming from Philippines to Delhi. A friend's friend is doing this favour to me. If you can send...
Situation: Loss of muscle movement in hand. What can we do??? Use a smiley soft foam ball and keep on pressing it whenever you or your patient are free. This...
PACKARD CENTER ANNOUNCES NEW COLLABORATIVE TIES WITH SCOTLAND'S TOP ALS RESEARCH BODY Accomplished stem cell researcher is Packard's first grantee with the ...
NEW COMMON PATHWAY IN NEURODEGENERATIVE DISEASE IS A POSSIBLE DOOR TO A POINT OF NO RETURN "...more important to medicine, it defines how neurological disease...
Interesting to read..... Here is the link to the story of Catherine Royce who died on March 30 after being diagnosed for ALS in 2003. She chose to die and...
NEW LOOK AT DATA POLISHES OLD PRINCIPLE FOR ALS THERAPY http://www.alscenter.org/news/briefs/090430.cfm A sophisticated new look at an old study that...
Dear all, I have some boxes of Rlutek available with me. Whoever needs it, please send their mailing address. First Come First serve basis pls. Thanks and God...