Hi Everybody, I am Hemant. My sister in law (52 yrs old) is suffering with ALS. She was having symptoms from 02 but it could be diagnosed only in 05. It...
Dear all, Here's hoping that this Diwali not only brings joy and prosperity to your house but also best of health for you and your loved ones. Keep your faith...
http://www.alscenter.org/news/press/091019.cfm FROM THE SOCIETY FOR NEUROSCIENCES 39th ANNUAL MEETING IN CHICAGO: 9 a.m., Monday, October 19 McCormick Place,...
Before long, Packard Center investigator Jonathan Glass<http://neurology.emory.edu/Faculty/Glass.htm> should be conducting the first FDA-approved trial of stem...
New Study Shows Agent Can Improve Muscle Strength, Size, in Mouse ALS Model http://www.alscenter.org/news/briefs/090722.cfm Work adds support to the principle...
... Dear As a supporter of the Euan MacDonald Research Centre we are sure that you will be interested to learn that tiny zebrafish could hold the key to stem ...
Dear all, I have some boxes of Rlutek available with me. Whoever needs it, please send their mailing address. First Come First serve basis pls. Thanks and God...
NEW LOOK AT DATA POLISHES OLD PRINCIPLE FOR ALS THERAPY http://www.alscenter.org/news/briefs/090430.cfm A sophisticated new look at an old study that...
Interesting to read..... Here is the link to the story of Catherine Royce who died on March 30 after being diagnosed for ALS in 2003. She chose to die and...
NEW COMMON PATHWAY IN NEURODEGENERATIVE DISEASE IS A POSSIBLE DOOR TO A POINT OF NO RETURN "...more important to medicine, it defines how neurological disease...
PACKARD CENTER ANNOUNCES NEW COLLABORATIVE TIES WITH SCOTLAND'S TOP ALS RESEARCH BODY Accomplished stem cell researcher is Packard's first grantee with the ...
Situation: Loss of muscle movement in hand. What can we do??? Use a smiley soft foam ball and keep on pressing it whenever you or your patient are free. This...
Hi Lalit, Please feel free to call me. My phone number is 705-293-0323 and 705-888-1246. My mother is doing very well. I am having hard time getting the...
Dear all, I have a "Respironics Synchrony" Bi Pap Machine and a suction machine (make is Anand company). I had bought both of them for my Dad. There is no need...
WHY THE NEW GENE FINDINGS ARE A CALL TO ACTION - A PACKARD PERSPECTIVE http://www.alscenter.org/news/briefs/090304.cfm In 2003, when New England ALS scientists...
To provide relief in night for changing positions: Use cushions or pillows between legs (place them under knees and feet) This not only makes your PALS...
(February 26, 2009) - In one of the most significant breakthroughs in the recent history of ALS research, a consortium of scientists organized and funded by...
Situation: Your PALS cannot control their jaw and while yawning they end up clenching their teeth really hard which may cause pain. Solution: Keep a towel...
From: alscenter@... To: The ALS Community Date: February 18, 2009 Subject: Robert Packard Center ALS News Network TRIALS OF CELL-BASED THERAPY DON'T COME...
Dear all, Hope your ALS loved one is doing fine? Please do post their symptoms so that we can help each other. At times, you would be surprised as to how small...
Hey all, I have some 2-3 boxes of Rilutek with me. If anyone wants, I can courier it to them.... Let me know.... Also, I have a Suction Machine and a Bi Pap...
Enter your vote today! A new poll has been created for the ALS_India group: If due to some reason, your loved one suffering with ALS goes into a state of...
Therapies like Aurvedic treatment, Homeopathy, Masssages, Accupressure, Accupuncture etc.. Cast your vote on http://www.orkut.co.in/Main#CommPollVote.aspx? ...
To all my fellow PALS and CALS. Here's wishing you all a very happy new year. Hope this year brings with itself great discoveries that eliminate ALS and...
Have started a new facebook group called ALS / MND India. http://www.facebook.com/home.php#/group.php?gid=42158708100 Another platform to spread our message of...
Hello guys, My father was diagnosed with ALS two months ago at NIMHANS, Bangalore, and has been on riluzole ever since. It has helped him a lot since I noticed...
Dear all, Here's wishing you a very Merry Christmas. May this special day bring a smile on all your faces. God bless u all and here's looking forward to a new...
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