Thanks for the detailed info on Dr. Mulkraj. Please keep us updated
on the same and how your Mother is feeling and if you can also find
out any specific improvements that she is feeling, that would be a
great help for everyone I am sure.
Secondly, regarding Carnitine, I had spoken to a couple of people in
India who had taken Carnitine before. Which form of Carnitine is
being taken in Canada, is it L Carnitine or the other one?
And how many doses.
Will be great if you can tell us the company name. It will help me
to find some more info on the same in India and then take it forward
from there.
Thanks...
Gaurav...
--- In ALS_India@yahoogroups.com, Gopala Krishna Gokeda
<gokeda@...> wrote:
>
> Gentlemen:
>
> Apologies for tardy response. Going through a bit of turbulence at
job these days. Here's what I heard so far.
>
> 1) My parents are still with Dr. MulkRaj Dass. My mom says she is
feeling better. They are planning to stay there for a month. They
are staying at a guest house provided by the lab where my father
works. Otherwise, there are tons of hotels available there. But I
understand they are quite expensive. (About $2000 a night). Dr. Dass
is a very nice genleman, and he is very kind. He sees patients from
morning 9 AM to 1 PM in the mid-night, everyday except sunday.
Everyday, there are 100-200 patients visiting him, seeking treatment
to all kind of illnesses. Sunday is a holiday. He sees patinets at
his home every morning. In the evenings, he sees patients at hotel
called Oak Bass. It's good to get a room there, but again it's busy
and expensive. Most of the times, it is ocupied by foreign patients.
It's very cold there. and my parents are facing it hard to adjust.
Dr. Dass basically puts his fingers at certain parts of the body
(head, spinal, belly button...)
> and my mom says she can literally feel some kind of current
passing through her. Don"t know how much it is helping her, but she
says she is feeling better. And my parents are looking forward to
continuw this treatment. Dr. Dass said it will take atleast 3months
to see a significant difference. Dr. Dass does his services for
free. Anything else, you want to know, let me know and I shall ask
my parents.
>
> 2) I spoke to my family doctor here about the treatment given to
his wife. She is being given a injection called CARNITOR. In India
it is called CARNITINE. Essentially, this regenerates musacles
faster than the antibodies degenrate the muscles. I must say, she is
back into normal life from near death with ALS after being
adminsitered with this medication. This medication in Canada is
quite expensive and is ohbtained only with prescription. It costs
$750 per shot and we need to give 2-3 shots a week depending on
weight of the person.
>
> Now, can anybody please investigate where we can get this
vaccination in India. How much it costs and how to get it.
>
> 3) Does anybody have any experience with doctors in Bangalore
neurology hospital. Apparently, it's quite famous and they are
treating some ALS people there.
>
> Keep the info flowing. God bless all. I can be reached at 705-293-
0323 (Home) and 705-888-1246 (Mobile) if you want to talk.
>
> Gopal
>