Hi Lalit,
There is 1 doctor by the name Geeta Shroff. She has been in news
oflately for her controversial successful but not approved by other
doctors Stem Cell Therapy.
I also know an acquaintance of mine who had gone to her sometime
back. He had ALS and did get some relief.
You can google her. She lives n New Delhi. I found some more info
thru the following link:
http://www.healingtherapies.info/hESC.htm

Good Luck..

G.

--- In ALS_India@yahoogroups.com, "Lalit Kumar" <lalitgupta907@...>
wrote:
>
> hello friends
>
> *Do you know about Stem cell therapy ,how much it will patients
having ALS,I
> have enquired a lot and consult with more neurophysician and also
come
> across 12-15 AlS patients in punjab and haryana they all are
helpless like
> me..so now i enquired with neurophysician in AFMC,pune their is
Dr.col
> Gorith has speciallization in stem cell therapy for this MND,,,i
am planning
> to take my dad to AFMC ,Pune.. i am also taking advise from NIHMANS
> institute bangalore..tell me any information regarding STEM cell
threapy..*
> **
> thanx
> with regards
> lalit(09988595075)
>
>
> On 7/19/08, Padma Varanasi <padma.varanasi@...> wrote:
> >
> > Hi gopal.
> >
> > There are many support groups here in LA. There are some in
West LA, one
> > in Pasadena...
> > Today there is one in Pasadena. It has proved very useful for me
> > emotionally and I have also
> > learned from other patients and caregivers.
> > Check out http://webgla.alsa.org/. Click on Patient and Family
services
> > You can find a support group in your area.
> > Also, there is another organization called
http://www.extrahands.org/. My
> > friend Val Waterman is the LA program manager for that org.
Plesae contact
> > her or send her an email.
> >
> >
> > *Valorie Waterman*
> > *Extra Hands for ALS*
> > *Program Manager Southern California*
> > *val@...*** <val@...>
> > *www.extrahands.org*** <http://www.extrahands.org/>
> > *949-231-9549*
> >
> >
> > Extra hands is a great org. They place high school or college
kids who are
> > volutnteers to help the caregivers not with medical stuff but to
help with
> > the home chores.... Caregivers are often overwhelmed.
> >
> >
> >
> >
> > Please don't hesitiate to call me at 818 653 9539. I'm here to
help and
> > support. Check out http://www.ventusers.org/edu/valnews/val21-
3.html
> >
> >
> > I like Gaurav haven't had a chance to grieve yet.
> >
> >
> > Regards,
> > - Padma
> >
> > *Bakersfield Support Group**
> > *2nd Saturday of each month
> > 1:00 p.m. - 2:30 p.m.
> > Leader: Kristan Warren (818) 865-8067 x304
> >
> > HEALTHSOUTH
> > 5001 Commerce Drive - Bakersfield* *
> >
> > *San Bernardino County Support Group
> > *3rd Saturday of each month
> > 1:00 p.m. - 2:30 p.m.
> > Leader: Julie Lacanlale, CMA (909) 558-2128
> >
> > The Carpenter's House Church
> > 13489 Arrow Route, Fontana,
> > located on the corner of Cottonwood and Arrow
> > *Loma Linda Support Group*
> > 3rd Thursday of each month
> > 10:30 a.m. - Noon
> > Leader: Woody Totton, M. Div (909) 797-4213
> > Loma Linda University Neurology
> > 11370 Anderson St.
> > Faculty Medical Office, Loma Linda
> >
> > *Santa Clarita Valley Support Group*
> > 1st Saturday of each month
> > 1:00 p.m. - 2:30 p.m.
> > Leader: Janet Simms, RN (323) 222-1808
> >
> > Valencia United Methodist Church
> > 25718 McBean Parkway, Valencia
> > *Long Beach Support Group** *
> > 3rd Friday of each month
> > Noon - 1:30 p.m.
> > Leader: Teresa Benard, MSW (310) 612-1611
> >
> >
> > The City of Long Beach
> > Health and Human Services
> > Family Health Education Center
> > 3820 Cherry Avenue, Long Beach
> > *Ventura County Support Group*
> > 4th Saturday of each month
> > 1:00 p.m. - 2:30 p.m.
> > Leader: Deborah Saier (805) 551-8622
> >
> >
> > Westlake Village Library Community Room
> > 31200 Oak Crest Drive, Westlake
> >
> > *Pasadena Support Group**
> > *3rd Saturday of each month
> > 2:00 p.m. - 3:30 p.m.
> > Leader: Janet Simms, RN (323) 222-1808
> >
> > Lamanda Park Library
> > 140 S. Altadena Dr., Pasadena
> >
> > *Riverside County Support Group
> > *1st Tuesday of the Month
> > 10:30 a.m. - Noon
> > Leader: Griselda Perez (951) 259-9222
> >
> > Portola Community Center
> > 45-480 Portola Ave., Palm Desert
> >
> > *Spanish Speaking Support Group**
> > *El grupo se reune cada tercer sabado
> > en enero, abril, julio, y octubre
> > Por favor comuníquese con
> > Martha Mowatt (562) 889-9452
> > si tiene alguna pregunta.
> >
> > Biblioteca Leland R. Weaver
> > 4035 Tweedy Blvd., South Gate
> >
> > *West Los Angeles Support Group**
> > *2nd Saturday of each month
> > 10:00 a.m. - 11:30 a.m.
> > Leader: Linda O'Connor, LCSW (310) 423-1065
> >
> > Red Cross West LA Regional Service Center
> > Located on the campus of the West LA VA Hospital
> > 11301 Wilshire Boulevard, Los Angeles
> >
> >
> >
> > On Jul 18, 2008, at 6:12 AM, Gopala Krishna Gokeda wrote:
> >
> >
> >
> >
> >
> >
> > Padma:
> >
> >
> >
> > My sister lives in Woodland Hills, LA. She is looking for ALS
support
> > there. If it:s ok with you, could you please me your contact #,
she shall
> > call you. She is looking for support about ALS in US.
> >
> >
> >
> > I can be reached at
> >
> >
> >
> > 705-293-0323
> >
> > 705-888-1246
> >
> > 891-2708330 (Visakhapatnam)
> >
> >
> >
> > Gopal
> >
> >
> >
> >
> >
> >
> > --- On *Fri, 7/18/08, gauravjain_80 <gauravjain_80@...>*wrote:
> >
> > From: gauravjain_80 <gauravjain_80@...>
> > Subject: [ALS_India] Re: Support group
> > To: ALS_India@yahoogroups.com
> > Date: Friday, July 18, 2008, 2:08 PM
> >
> > Hey Padma,
> > I think it's a good idea.
> > Although, I am not sure how many of the group members are
available
> > online on those days?
> > Let's leave the question to the house and see what responses we
get
> > in a week's time.
> > So people, wake up and post your question, concerns, queries etc.
> >
> > I have been talking to a lot of CALS and PALS who do not have
> > Internet access. For them, phone works best. It's amazing to see
how
> > there are so many people out there who do not even understand
what
> > is happening to their bodies and how to cope with it.
> >
> > Padma, if you come across any CALS who have their PALS in India,
> > please forward our group address and let's talk to their PALS and
> > provide some support.
> >
> > I know for sure that emotional support is the biggest
requirement.
> > I for 1 know that I haven't greived the loss of my father still.
> > Blame it on situation, blame it on the timing. I guess I just
didn't
> > get time from being the stronger one for everyone to depend on.
> >
> > Let's see how many people respond to this message and let's tae
from
> > there..
> >
> > Thanks for all your support Padma...
> >
> > We are glad to have you on board with us.
> >
> > Cheers.
> > G.
> >
> > --- In ALS_India@yahoogrou ps.com <ALS_India%40yahoogroups.com>,
Padma
> > Varanasi
> > <padma.varanasi@ ...> wrote:
> > >
> > > Hi Gaurav.
> > >
> > > I'm back in Los Angeles.
> > >
> > > Once a month we have support group where the patients and their
> > care
> > > givers meet and discuss not only
> > > about what is available but also emotions they are going
through
> > and
> > > the stress, worries. It is more pyschological support
> > > too.
> > >
> > > Since everyone in india spread out instead of meeting real-
time,
> > I
> > > thought we could set aside a day/time per month and discuss
> > > over internet? Say the 3rd thursday of the month or something
> > like
> > > that.
> > >
> > > IT is really nice to be able to talk about our feelings,
worries,
> > and
> > > also get the knowledge on ALS and what is available resource
wise
> > etc.
> > >
> > > Also, being in the US I'm happy to help in anyway...
> > >
> > > I'll be in INdia in August.
> > >
> > > Let me know your thoughts.
> > >
> > > Hope your mother is doing well.
> > >
> > > Regards,
> > > - Padma
> > >
> >
> >
> >
> >
> >
> >
> >
> >
>