Hi gopal.

 

There are many support groups here in LA.  There are some in West LA,  one in Pasadena...

Today there is one in Pasadena.  It has proved very useful for me emotionally and I have also

learned from other patients and caregivers.

Check out http://webgla.alsa.org/.  Click on Patient and Family services You can find a support group in your area.

Also, there is another organization called http://www.extrahands.org/.  My friend Val Waterman is the LA program manager for that org.  Plesae contact her or send her an email.  

 

Valorie Waterman

Extra Hands for ALS

Program Manager Southern California

val@...

www.extrahands.org

949-231-9549

 

Extra hands is a great org.  They place high school or college kids who are volutnteers to help the caregivers not with medical stuff but to help with the home chores....  Caregivers are often overwhelmed.

 

 

Please don't hesitiate to call me at 818 653 9539.  I'm here to help and support.  Check out http://www.ventusers.org/edu/valnews/val21-3.html

 

I like Gaurav haven't had a chance to grieve yet.

 

Regards,

- Padma

Bakersfield Support Group
2^nd Saturday of each month
1:00 p.m. - 2:30 p.m.
Leader: Kristan Warren (818) 865-8067 x304

HEALTHSOUTH
5001 Commerce Drive - Bakersfield 

San Bernardino County Support Group
3^rd Saturday of each month
1:00 p.m. - 2:30 p.m.
Leader: Julie Lacanlale, CMA (909) 558-2128

The Carpenter's House Church
13489 Arrow Route, Fontana,
located on the corner of Cottonwood and Arrow 

Loma Linda Support Group

3^rd Thursday of each month

10:30 a.m. - Noon

Leader: Woody Totton, M. Div (909) 797-4213

Loma Linda University Neurology
11370 Anderson St.
Faculty Medical Office, Loma Linda

Santa Clarita Valley Support Group
1^st Saturday of each month
1:00 p.m. - 2:30 p.m.
Leader: Janet Simms, RN (323) 222-1808

Valencia United Methodist Church
25718 McBean Parkway, Valencia

Long Beach Support Group 

3rd Friday of each month

Noon - 1:30 p.m.

Leader: Teresa Benard, MSW (310) 612-1611 

 

The City of Long Beach 

Health and Human Services

Family Health Education Center

3820 Cherry Avenue, Long Beach

Ventura County Support Group

4th Saturday of each month

1:00 p.m. - 2:30 p.m.

Leader: Deborah Saier (805) 551-8622

 

Westlake Village Library Community Room

31200 Oak Crest Drive, Westlake

Pasadena Support Group
3^rd Saturday of each month
2:00 p.m. - 3:30 p.m.
Leader: Janet Simms, RN (323) 222-1808

Lamanda Park Library
140 S. Altadena Dr., Pasadena 

Riverside County Support Group
1^st Tuesday of the Month
10:30 a.m. - Noon
Leader: Griselda Perez (951) 259-9222

Portola Community Center
45-480 Portola Ave., Palm Desert 

Spanish Speaking Support Group
El grupo se reune cada tercer sabado
en enero, abril, julio, y octubre
Por favor comuníquese con
Martha Mowatt (562) 889-9452
si tiene alguna pregunta.

Biblioteca Leland R. Weaver
4035 Tweedy Blvd., South Gate

West Los Angeles Support Group
2^nd Saturday of each month
10:00 a.m. - 11:30 a.m.
Leader: Linda O'Connor, LCSW (310) 423-1065

Red Cross West LA Regional Service Center
Located on the campus of the West LA VA Hospital
11301 Wilshire Boulevard, Los Angeles

On Jul 18, 2008, at 6:12 AM, Gopala Krishna Gokeda wrote:

 

Padma:     My sister lives in Woodland Hills, LA. She is looking for ALS support there. If it:s ok with you, could you please me your contact #, she shall call you. She is looking for support about ALS in US.     I can be reached at     705-293-0323 705-888-1246 891-2708330 (Visakhapatnam)     Gopal         --- On Fri, 7/18/08, gauravjain_80 <gauravjain_80@...>wrote: From: gauravjain_80 <gauravjain_80@...> Subject: [ALS_India] Re: Support group To: ALS_India@yahoogroups.com Date: Friday, July 18, 2008, 2:08 PM Hey Padma, I think it's a good idea. Although, I am not sure how many of the group members are available  online on those days? Let's leave the question to the house and see what responses we get  in a week's time. So people, wake up and post your question, concerns, queries etc. I have been talking to a lot of CALS and PALS who do not have  Internet access. For them, phone works best. It's amazing to see how  there are so many people out there who do not even understand what  is happening to their bodies and how to cope with it. Padma, if you come across any CALS who have their PALS in India,  please forward our group address and let's talk to their PALS and  provide some support. I know for sure that emotional support is the biggest requirement. I for 1 know that I haven't greived the loss of my father still.  Blame it on situation, blame it on the timing. I guess I just didn't  get time from being the stronger one for everyone to depend on. Let's see how many people respond to this message and let's tae from  there.. Thanks for all your support Padma... We are glad to have you on board with us. Cheers. G. --- In ALS_India@yahoogrou ps.com, Padma Varanasi  <padma.varanasi@ ...> wrote: > > Hi Gaurav. >  > I'm back in Los Angeles. >  > Once a month we have support group where the patients and their  care  > givers meet and discuss not only > about what is available but also emotions they are going through  and  > the stress, worries. It is more pyschological support > too. >  > Since everyone in india spread out instead of meeting real-time,  I  > thought we could set aside a day/time per month and discuss > over internet? Say the 3rd thursday of the month or something  like  > that. >  > IT is really nice to be able to talk about our feelings, worries,  and  > also get the knowledge on ALS and what is available resource wise  etc. >  > Also, being in the US I'm happy to help in anyway... >  > I'll be in INdia in August. >  > Let me know your thoughts. >  > Hope your mother is doing well. >  > Regards, > - Padma >